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X-WR-CALNAME:Rett Syndrome Angels
X-ORIGINAL-URL:https://rsangels.org
X-WR-CALDESC:Events for Rett Syndrome Angels
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DTSTART;TZID=UTC:20250208T080000
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UID:8365-1739001600-1744459200@rsangels.org
SUMMARY:Maria McTernan Sibling College Scholarships
DESCRIPTION:Is now open! \n\n\n\nVisit https://rsangels.org/sibling-scholarship/ for application and more information
URL:https://rsangels.org/event/maria-mcternan-sibling-college-scholarship/
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DTSTART;TZID=UTC:20250210T060000
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DTSTAMP:20250209T201138Z
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UID:8592-1739167200-1740744000@rsangels.org
SUMMARY:Rare Disease Day
DESCRIPTION:Rett Syndrome Awareness: Rare Disease Day 2025 \n\n\n\nEvery year on February 28th\, we come together to observe Rare Disease Day\, a global event dedicated to raising awareness for the over 7\,000 rare diseases that affect millions of people worldwide. Today\, we highlight Rett Syndrome—a rare neurological disorder that profoundly impacts individuals and families around the world. \n\n\n\nWhat is Rett Syndrome?\n\n\n\nRett Syndrome is a rare genetic disorder that primarily affects girls\, leading to a period of normal development followed by the loss of purposeful hand movements\, speech\, and motor skills. Individuals with Rett require lifelong support\, yet research continues to bring hope for treatments and a cure. \n\n\n\nAlthough October is Rett Syndrome Awareness Month\, Rare Disease Day gives us another opportunity to shine a light on Rett and amplify our voices for change. \n\n\n\nWhy Awareness Matters\n\n\n\nEven though Rett Syndrome is considered rare\, its impact is life-altering. Raising awareness helps to: \n\n\n\n\nAdvance research: More awareness leads to more funding and scientific breakthroughs.\n\n\n\nBuild community: Families affected by Rett need to connect and support each other.\n\n\n\nPromote advocacy: The more people know about Rett\, the more we can push for policies\, treatments\, and resources.\n\n\n\n\nJoin Us: Rett Is Rare\n\n\n\nThis Rare Disease Day\, we invite you to spread awareness by using our official Rett awareness profile picture on social media. Show your support by sharing the message that Rett is rare\, and our community is strong. \n\n\n\nHow You Can Help: \n\n\n\n✅ Post our profile picture on your social media accounts.✅ Use the hashtags #RettIsRare and #RettSyndromeAngels to start conversations and spread awareness.✅ Share your story if you or someone you love is affected by Rett Syndrome.✅ Support Rett research—every donation helps move us closer to a cure. \n\n\n\nTogether\, let’s use Rare Disease Day as another chance to shine a light on Rett Syndrome and make an impact. Thank you for standing with us! \n\n\n\n\n\n\n\n💜 #RettIsRare #RettSyndromeAngels
URL:https://rsangels.org/event/rare-disease-day/
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