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X-WR-CALDESC:Events for Rett Syndrome Angels
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DTSTART;TZID=UTC:20250208T080000
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SUMMARY:Maria McTernan Sibling College Scholarships
DESCRIPTION:Is now open! \n\n\n\nVisit https://rsangels.org/sibling-scholarship/ for application and more information
URL:https://rsangels.org/event/maria-mcternan-sibling-college-scholarship/
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DTSTART;TZID=UTC:20250320T193000
DTEND;TZID=UTC:20250320T203000
DTSTAMP:20250123T035534Z
CREATED:20250102T021356Z
LAST-MODIFIED:20250123T035534Z
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SUMMARY:Virtual house call with Dr. Lieberman
DESCRIPTION:Rett Syndrome Angel’s Fifth Annual House Call with David Lieberman\, MD\,PhD\,\n\n\n\n Director of the Boston Children’s Hospital Rett Clinic \n\n\n\nThis Year’s Topic \n\n\n\n“Updates in Rett Syndrome Gene Therapy Trials” \n\n\n\nZoom Program March 20\, 2025 at 7:30pm EST \n\n\n\nDr. Lieberman will discuss the  Neurogene and Taysha gene therapy trials taking place at Boston Children’s Hospital.  \n\n\n\nDr. Lieberman will also discuss non-interventional studies that are being launched in the Boston Rett Clinic. In addition he can address questions regarding Daybue (Trofinetide) and other topics. \n\n\n\n            Don’t miss your Annual Visit! \n\n\n\n            REGISTER NOW FOR THIS VERY POPULAR VIRTUAL EVENT \n\n\n\nRegistration Closes March 15th \n\n\n\n\n\n\n\n\nSign Up Today
URL:https://rsangels.org/event/virtual-house-call/
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