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X-WR-CALNAME:Rett Syndrome Angels
X-ORIGINAL-URL:https://rsangels.org
X-WR-CALDESC:Events for Rett Syndrome Angels
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20201017T000000
DTEND;TZID=America/New_York:20201017T235959
DTSTAMP:20260407T065750
CREATED:20200910T152522Z
LAST-MODIFIED:20200910T152522Z
UID:5699-1602892800-1602979199@rsangels.org
SUMMARY:Scientific/Research Webinar
DESCRIPTION:Download the Agenda for the BCH Rett Scientific Symposium \nLook at the progress Rett research has made in the last ten years! \nThank you to Dr. Michela Fagiolini for spearheading this virtual event. \nShe is gathering prominent researchers and clinicians who will participate\, presenting information and answering your questions. \nThis is sure to be a great opportunity for us.  Make sure to sign up to get the updated information as we announce it! \nSign-Up to View our Virtual Event\n Click Here \nSTAY SOCIAL (follow us)
URL:https://rsangels.org/event/scientific-research-webinar/
CATEGORIES:Education
ATTACH;FMTTYPE=image/jpeg:https://rsangels.org/wp-content/uploads/2020/09/x-chromosome.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20201017T000000
DTEND;TZID=America/New_York:20201017T235959
DTSTAMP:20260407T065750
CREATED:20200910T152522Z
LAST-MODIFIED:20200910T152522Z
UID:6403-1602892800-1602979199@rsangels.org
SUMMARY:Scientific/Research Webinar
DESCRIPTION:Download the Agenda for the BCH Rett Scientific Symposium \nLook at the progress Rett research has made in the last ten years! \nThank you to Dr. Michela Fagiolini for spearheading this virtual event. \nShe is gathering prominent researchers and clinicians who will participate\, presenting information and answering your questions. \nThis is sure to be a great opportunity for us.  Make sure to sign up to get the updated information as we announce it! \nSign-Up to View our Virtual Event\n Click Here \nSTAY SOCIAL (follow us)
URL:https://rsangels.org/event/scientific-research-webinar-2/
CATEGORIES:Education
ATTACH;FMTTYPE=image/jpeg:https://rsangels.org/wp-content/uploads/2020/09/x-chromosome.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20191026T103000
DTEND;TZID=America/New_York:20191026T103000
DTSTAMP:20260407T065750
CREATED:20190820T104421Z
LAST-MODIFIED:20190820T104421Z
UID:6387-1572085800-1572085800@rsangels.org
SUMMARY:BLUE SKY DAY 2019
DESCRIPTION:Saturday\, October 26\, 2019 – 10:30am \n\nAn outdoor event to honor our children\, gather with RSAM families\, Rett researchers and members of the Boston Children’s Hospital Rett Program. Lunch will follow. Please plan to attend and to continue the Blue Sky tradition here in Boston.\n \n\n\nNew This Year\, “Blue Sky Day Purple Sky Night” \nThis year the city of Boston is again helping to bring more awareness to Rett Syndrome. The evening of October 26th\, Boston City Hall and City Hall Plaza\, The Top of the Prudential Building and the Zakim Bridge will all be lit up purple. If you are in town\, be sure to catch the sights and make sure to tell all your family and friends as well. \n\n\n\n 
URL:https://rsangels.org/event/blue-sky-day-2019-2/
CATEGORIES:Education,Recreation
ATTACH;FMTTYPE=image/jpeg:https://rsangels.org/wp-content/uploads/2019/08/blue-sky-day-2019.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20191026T103000
DTEND;TZID=America/New_York:20191026T103000
DTSTAMP:20260407T065750
CREATED:20190820T104421Z
LAST-MODIFIED:20190820T104421Z
UID:2688-1572085800-1572085800@rsangels.org
SUMMARY:BLUE SKY DAY 2019
DESCRIPTION:Saturday\, October 26\, 2019 – 10:30am \n\nAn outdoor event to honor our children\, gather with RSAM families\, Rett researchers and members of the Boston Children’s Hospital Rett Program. Lunch will follow. Please plan to attend and to continue the Blue Sky tradition here in Boston.\n \n\n\nNew This Year\, “Blue Sky Day Purple Sky Night” \nThis year the city of Boston is again helping to bring more awareness to Rett Syndrome. The evening of October 26th\, Boston City Hall and City Hall Plaza\, The Top of the Prudential Building and the Zakim Bridge will all be lit up purple. If you are in town\, be sure to catch the sights and make sure to tell all your family and friends as well. \n\n\n\n 
URL:https://rsangels.org/event/blue-sky-day-2019/
CATEGORIES:Education,Recreation
ATTACH;FMTTYPE=image/jpeg:https://rsangels.org/wp-content/uploads/2019/08/blue-sky-day-2019.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20190924T190000
DTEND;TZID=America/New_York:20190924T210000
DTSTAMP:20260407T065750
CREATED:20190820T104220Z
LAST-MODIFIED:20190820T104220Z
UID:6386-1569351600-1569358800@rsangels.org
SUMMARY:Research Update from Rett Syndrome Research Trust
DESCRIPTION:Research Update From Rett Syndrome Research Trust\nSeptember 24th\, 7pm\n79 Robbins St.\, Acton\, MA\nPlease join for a presentation from Tim Riley\, Chief Scientific Office for RSRT. Tim will provide an update and overall review of RSRT’s Roadmap to a Cure. Tim will be joined by Jonathan Watts from UMass Medical School\, presenting his MECP2 DNA and RNA editing project.\nPlease RSVP: info@rsam.org\n  \n 
URL:https://rsangels.org/event/research-update-from-rett-syndrome-research-trust-2/
CATEGORIES:Education
ATTACH;FMTTYPE=image/png:https://rsangels.org/wp-content/uploads/2019/08/rsrt-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20190924T190000
DTEND;TZID=America/New_York:20190924T210000
DTSTAMP:20260407T065750
CREATED:20190820T104220Z
LAST-MODIFIED:20190820T104220Z
UID:2684-1569351600-1569358800@rsangels.org
SUMMARY:Research Update from Rett Syndrome Research Trust
DESCRIPTION:Research Update From Rett Syndrome Research Trust\nSeptember 24th\, 7pm\n79 Robbins St.\, Acton\, MA\nPlease join for a presentation from Tim Riley\, Chief Scientific Office for RSRT. Tim will provide an update and overall review of RSRT’s Roadmap to a Cure. Tim will be joined by Jonathan Watts from UMass Medical School\, presenting his MECP2 DNA and RNA editing project.\nPlease RSVP: info@rsam.org\n  \n 
URL:https://rsangels.org/event/research-update-from-rett-syndrome-research-trust/
CATEGORIES:Education
ATTACH;FMTTYPE=image/png:https://rsangels.org/wp-content/uploads/2019/08/rsrt-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20190622T083000
DTEND;TZID=America/New_York:20190622T170000
DTSTAMP:20260407T065750
CREATED:20190424T081315Z
LAST-MODIFIED:20190424T081315Z
UID:6385-1561192200-1561222800@rsangels.org
SUMMARY:RettEd Day
DESCRIPTION:Exciting News! Registration for the RettEd Day Conference is now OPEN! Don’t miss this amazing opportunity to hear from the leading doctors\, researchers and service professionals in the Boston area.\nIntended for everyone wanting to connect with experts in the field of Rett syndrome especially families\, caregivers\, educators\, clinicians\, and therapists. Attendees will enjoy a rich and informative day of topics and discussion that will cover: research updates\, medical and therapeutic interventions\, Massachusetts specific programs & services\, school and communication strategies. \nProgram Subject to Change \nWHEN | Saturday\, June 22\, 2019\nWHERE | Boston Children’s Hospital\, 1 Autumn Street\, Boston\, MA 02215\nAuditorium A&B (located in the basement)\nTIME | 8:30 a.m. – 5:00 p.m.\nView Flyer »\nRSAM will host an onsite networking reception immediately following. \nFee:\n$10/per person. Diagnosed children are FREE. \nIncludes:\nPresentations\, interactive panel discussion\, continental breakfast and lunch\, evening reception \n[fusion_button link=”https://www.rettsyndrome.org/EdDayMA2019/registration” text_transform=”” title=”” target=”_blank” link_attributes=”” alignment=”” modal=”” hide_on_mobile=”small-visibility\,medium-visibility\,large-visibility” class=”” id=”” color=”default” button_gradient_top_color=”” button_gradient_bottom_color=”” button_gradient_top_color_hover=”” button_gradient_bottom_color_hover=”” accent_color=”” accent_hover_color=”” type=”” bevel_color=”” border_width=”” size=”” stretch=”default” shape=”” icon=”” icon_position=”left” icon_divider=”no” animation_type=”” animation_direction=”left” animation_speed=”0.3″ animation_offset=””]Register »[/fusion_button]
URL:https://rsangels.org/event/retted-day-2/
CATEGORIES:Education
ATTACH;FMTTYPE=image/png:https://rsangels.org/wp-content/uploads/2019/04/EdDay.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20190622T083000
DTEND;TZID=America/New_York:20190622T170000
DTSTAMP:20260407T065750
CREATED:20190424T081315Z
LAST-MODIFIED:20190424T081315Z
UID:2245-1561192200-1561222800@rsangels.org
SUMMARY:RettEd Day
DESCRIPTION:Exciting News! Registration for the RettEd Day Conference is now OPEN! Don’t miss this amazing opportunity to hear from the leading doctors\, researchers and service professionals in the Boston area.\nIntended for everyone wanting to connect with experts in the field of Rett syndrome especially families\, caregivers\, educators\, clinicians\, and therapists. Attendees will enjoy a rich and informative day of topics and discussion that will cover: research updates\, medical and therapeutic interventions\, Massachusetts specific programs & services\, school and communication strategies. \nProgram Subject to Change \nWHEN | Saturday\, June 22\, 2019\nWHERE | Boston Children’s Hospital\, 1 Autumn Street\, Boston\, MA 02215\nAuditorium A&B (located in the basement)\nTIME | 8:30 a.m. – 5:00 p.m.\nView Flyer »\nRSAM will host an onsite networking reception immediately following. \nFee:\n$10/per person. Diagnosed children are FREE. \nIncludes:\nPresentations\, interactive panel discussion\, continental breakfast and lunch\, evening reception \n[fusion_button link=”https://www.rettsyndrome.org/EdDayMA2019/registration” text_transform=”” title=”” target=”_blank” link_attributes=”” alignment=”” modal=”” hide_on_mobile=”small-visibility\,medium-visibility\,large-visibility” class=”” id=”” color=”default” button_gradient_top_color=”” button_gradient_bottom_color=”” button_gradient_top_color_hover=”” button_gradient_bottom_color_hover=”” accent_color=”” accent_hover_color=”” type=”” bevel_color=”” border_width=”” size=”” stretch=”default” shape=”” icon=”” icon_position=”left” icon_divider=”no” animation_type=”” animation_direction=”left” animation_speed=”0.3″ animation_offset=””]Register »[/fusion_button]
URL:https://rsangels.org/event/retted-day/
CATEGORIES:Education
ATTACH;FMTTYPE=image/png:https://rsangels.org/wp-content/uploads/2019/04/EdDay.png
END:VEVENT
END:VCALENDAR