Maria McTernan Sibling College Scholarships
2025-02-08 08:00 - 2025-04-12 12:00 UTC
Is now open!

Visit https://rsangels.org/sibling-scholarship/ for application and more information

Virtual house call with Dr. Lieberman
2025-03-20 19:30 - 20:30
Rett Syndrome Angel’s Fifth Annual House Call with David Lieberman, MD,PhD,

Director of the Boston Children’s Hospital Rett Clinic

This Year’s Topic

“Updates in Rett Syndrome Gene Therapy Trials”

Zoom Program March 20, 2025 at 7:30pm EST

Dr. Lieberman will discuss the Neurogene and Taysha gene therapy trials taking place at Boston Children’s Hospital.

Dr. Lieberman will also discuss non-interventional studies that are being launched in the Boston Rett Clinic. In addition he can address questions regarding Daybue (Trofinetide) and other topics.

Don’t miss your Annual Visit!

REGISTER NOW FOR THIS VERY POPULAR VIRTUAL EVENT

Registration Closes March 15th

Sign Up Today

3rd Annual WooSox Family Day
2025-05-24 14:00
Swing by for a day you won’t forget! Private Buffet and Pavillon just for us! This family outing has become a popular event for the entire family. A private 2-hour buffet starting at 2:00 PM. and Pavillion seating at the Shaw’s Home Bullpen near the 3B/LF line. Worcester Red Sox vs the Durham Bulls starts at 3:05 PM. Access to a sensory friendly room, family restrooms and a fully accessible ballpark. Opportunity for “Catch on the Field” post-game… we hope to see you there!

Deadline May 5th, 2025 unless sells out first!

Register Below, Tickets are limited.

http://rsangels.betterworld.org/events/woosox25

A Home Run Event Courtesy of Acadia!

Tickets are going fast, Deadline is May 5th!

Equine Movement Experience
2025-06-08 09:00 - 11:00, 2025-07-20 09:00 - 11:00, 2025-08-24 09:00 - 11:00, 2025-09-21 09:00 - 11:00
Pre Registration Required

Sponsored by Acadia Pharmaceuticals

Sign up for a free 30 minute hippotherapy session with https://www.cloverphysicaltherapy.com/ in Pepperell, MA on Sunday mornings throughout the summer.

RS Angels Golf Tournament
2025-06-30 09:00 - 17:00 | Northern Spy Golf Club, 40 Scales Lane, Townsend, Massachusetts, 01469, United States
9:30 Shotgun Start

4-man scramble format

Dinner after golf

Contact Larry Fallon for questions: Larry@rsangels.org

Sand, Sun & Speaking Fun
2025-08-23 10:00 - 15:00
Rett Camp Day 2025

Location: Waterford, CTDate: Saturday, August 23, 2025 (10:00am to 3:00pm)Rain Date: This is a one-day event — there is no rain date.

A Day of Joy, Communication & Community

Join Rett Syndrome Angels for a full day of beachside fun and meaningful connection designed for individuals with Rett Syndrome and their families.

Activities Include:

🏊‍♀️ Swimming

🔍 Interactive scavenger hunt

💬 AAC and low-tech communication exploration

🏖️ Beach fun, community time, and more!

A licensed speech-language pathologist from Village Voices, will lead the scavenger hunt with built-in communication supports. Whether you’re new to the communication journey, need a refresher, or just want to join the fun—this day is for you. No experience needed!

Registration Information

$30 Registration Fee

Covers up to 4 people per family (immediate family/caretakers only)

Please note: Registration does not guarantee participation due to limited availability

If selected, you’ll receive an email with instructions to confirm your spot and pay the $30 final participation fee. Be sure to respond promptly—spots will fill quickly!

Last year’s event had a waitlist, so timely follow-up is key!

📣 Important Notes

All camp activities are designed to be accessible and inclusive

Low-tech communication boards will be available on-site

Held at the beach pavilion with full access to restrooms and shaded areas

Accessible playground

Questions?

Contact Maggie at Maggie@rsangels.org

Social Story for Rett Camp 2025

My Day at Rett Camp

😊 Going to Camp

Today I go to Rett Camp by the ocean. I will have fun with friends. When I arrive, we will do scratch art and hair fun activities. The helpers are nice and will take care of me. I can communicate with them using my AAC device, communication board, or in my own way.

📷 Picture Time

We will walk to the ocean to take a group photo. I can see the beautiful water. I can be in the picture with my friends, or I can choose to watch from nearby. I can tell the helpers what I want using my communication device or board. Both choices are great.

🔍 Scavenger Hunt Teams

The helpers will make teams for a scavenger hunt. I will be on a team with other campers. My team will help me look for special things. I can use my AAC device to share ideas with my team. We will work together and have fun.

🍎 Lunch Time

Time to eat! The RS Angels will bring snacks and food for lunch. I can eat what I like and leave what I don’t want. I can tell helpers about my food preferences using my communication device. There will be a comfortable place to sit and eat.

💦 Splash Attack

After lunch, we play with water in an activity called “Splash Attack.” I can use my AAC device to tell helpers if I want to get wet and play in the water, or if I prefer to watch my friends play. The helpers will keep everyone safe and respect my choices.

🏖️ Beach Fun Time

This is my free time at the beach! I can touch the sand, look for pretty shells, or just sit and watch the waves. I can communicate my choices using my AAC device or communication board. I choose what feels good for me. The helpers will stay close by and understand how I communicate.

👋 Time to Go Home

At the end of our fun day, it’s time to say goodbye. I will pack up my things and say goodbye to my new friends and helpers using my communication device, AAC board, or however I like to communicate. I might feel happy or sad – both feelings are okay.

🌟 What I Know About Rett Camp

• The helpers keep me safe all day • I can do activities in my own way • I can take breaks whenever I need them • All my friends at camp are unique and special • I belong at this camp • Everyone understands how I communicate • I can use my AAC device, communication board, or communicate in my own special way • The helpers know different ways to communicate and will listen to me

🌊 I’m going to have a great day at the beach with my friends! 🌊

THANK YOU TO OUR DONORS!

Everyone deserves the opportunity to engage fully in life’s activities. EaZyHold’s mission is to deliver innovative tools that support individuals with physical challenge. We are grateful for their donation to make our day CAMP-TASTASTIC!

THANK YOU VILLAGE VOICES FOR YOUR CREATIVITY FOR OUR EVENT!

Contact Maggie at Maggie@rsangels.org

REGISTRATION IS CLOSED

see ya at the beach

RettEd Day coming to Boston
2025-09-13 09:00 - 17:00
Join us for RettEd Day — immersive, full-day educational events happening at our Center of Excellence clinics nationwide. These special gatherings offer expert-led sessions, helpful local resources, and the chance to connect with other families and caregivers in your community. This event is going to be one you don’t want to miss! From 3:30-5:00pm there will be a social hour!

Click below on International Rett Syndrome Foundation below as the details unfold! We hope to see you there.

https://www.rettsyndrome.org/families/rett-education/retted-bch25/

Livy's V.I.P. Dance
2025-10-05 14:00 - 17:00
A Royal Invitation

You’re cordially invited to dance, dine, and dress up with Ariel, Cinderella, Prince Eric, and Prince Charming! Join us for appetizers, dancing, and fairy tale fun. Dress like royalty if you wish, or come as comfortable as you’d like for our enchanted celebration – after all, true magic comes from within!”

Join us for a Royal Meet & Greet!

NEW LOCATION!

Wilbraham Senior Center, 250 Springfield Street. You must have ticket purchased to attend!

Meet Ariel, Cinderella, Prince Eric, and Prince Charming!

✨ Dancing

✨ Food

✨ Photos

✨ Magical memories

In honor of Olivia Hillario and to those who lost their life from Rett Syndrome

THANK YOU TO OUR EVENT DONOR!

RAFFLES AND SILENT AUCTION ITEMS ARE LINING UP NICELY!

Graciously Donated by Country Bank:

Raffle Rules: One raffle entry per event ticket purchased by 11:59 PM on September 10th (supportive donation tickets do not qualify for raffle entries). Winner will be randomly selected and announced at the event. Winner must be present at Livy’s VIP Dance to claim prize. iPad will be a brand new iPad available at time of drawing. This promotion is not affiliated with or endorsed by Apple Inc. All purchased event tickets made prior to deadline are automatically entered.

WE HAVE MORE AT THE EVENT!!

Email: Shanon (Event Director), mom to Livy (shanon.m.hardy@gmail.com

Email: Maggie (Donation/Sponsor Coordinator), mom to Mads (maggie@rsangels.org)

ROYALLY RESERVE TODAY!

Blue Sky Day
2025-10-25 10:45 - 14:00 | Boston Children’s Hospital Area
Don’t miss this very special Saturday when families gather in Boston to honor our children. There will be clowns, cheerleaders, music, a selfie station and more.

There is no charge for this day and lunch will be provided by Rett Syndrome Angels.

Register by October 16th!

Check out the highlight video from last year here

Boston Prudential Center Lights up Purple for Rett
2025-12-21 17:00 - 23:30 | Prudential Center, 800 Boylston Street, Boston, Massachusetts, 02199
Boston Prudential Center shines purple in support of Rett Angels and families affected by Rett Syndrome. If you’re in the area, take a picture and tag us. #purpleforrett #RettSyndromeAngels #NewEnglandGlowsPurple

Enchanted Dreams: A Fantasy Gala for Rett Syndrome
2026-05-02 16:00 - 21:00 | Sunset Meadows, 514 Corinna Center Road
Have you ever wanted to dress like you were in a fairytale book? Maybe Yule Ball from Harry Potter, or even Velaris Starfall Ball and be like Feyre from ACOTAR. This is the night to shine with gorgeous ball gowns, masks, fae ears, wings, your most stylish tunic, suite or maybe you have a Jon Snow getup waiting to be used! All of this to raise money and awareness for the International Rett Syndrome Foundation to help contribute to all that they do for our Rett girls and boys.

(This event is not hosted or related to Rett Angels, but we wanted to share for our families who may want to attend)

Hippotherapy in Pepperell
2026-05-17 09:00 - 11:00, 2026-06-07 09:00 - 11:00, 2026-07-26 09:00 - 11:00, 2026-08-23 09:00 - 11:00, 2026-09-20 09:00 - 11:00 | Clover Physical Therapy, 44 Prescott Street, Pepperell, Massachusetts, 01463
Pre-registration Required (sign up below)

Have you ever wanted your Rett Syndrome loved one to try hippotherapy? It has many benefits to improve coordination, muscle tone, mood, mobility, balance & motor skills. Come join other Rett families for a casual Sunday morning with horses! Beginners totally welcome! No pressure & all the equipment is provided. A licensed physical therapist will help your loved one get comfortable with the horse, ride & do exercises to their individual comfort level. We have been running this program for a few years and it has been such a joy for the families. All abilities welcome.

New England RettAway 2026
2026-05-29 15:00 - 2026-05-31 10:00
Adaptive Outdoor Fun and Equipment Trial

A heartfelt thank you to Acadia and the Adaptive Outdoor Education Center for making this incredible weekend possible. Your generosity and dedication to our families means everything.

REGISTER HERE

We can’t wait to see everyone in Maine!

Woosox Family Day!
2026-07-12 11:00 - 17:00 | POLAR PARK WORCESTER
Open to all Rett Families!

RS Angels Family Day at the Worcester Red Sox!

Family outing at the WooSox with private buffet and pavilion seating.

Polar Park, 100 Madison St., Worcester, MA,

July 12th, 2026, with the Rett Syndrome Angels of Massachusetts

Ticket purchase required and is on a first come, first serve basis with a limit of 50 tickets available. A maximum of 6 total tickets per family this includes your Rett Angel or Angels.

Your ticket includes: -Private 2 Hour VIP Buffet starts at 12:05 pm, Pavilion access with tables and chairs (Shaw’s Home Bullpen) and access to Sensory Friendly Room and Family Restrooms. Gates open at 11:05 am and First Pitch is at 1:05 pm

Register Today!

pst. it’s okay if you aren’t a Red Sox fan, we still would love for you to join us!

Splashin’ at Spec Pond: Annual Family Picnic!
2026-08-08 11:00 - 15:00 | Spec Pond-Post Office Park Wilbraham, MA, 2540 Boston Post Road, Wilbraham, Massachusetts, 01095
Open to Families Touched by Rett Syndrome

By popular demand, we are bringing back one of our favorite community traditions! After such a big hit a few years ago, the Rett Syndrome Angels are heading back to Spec Pond for another afternoon of sun, splashes, and smiles in Western MA!

This is a wonderful opportunity for our families to get together, reconnect, and enjoy a fully accessible day of fun!

☀️ A Day of Fun at Spec Pond! ☀️

Date: August 8, 2026

Time: 11:00 am – 3:00 pm

Location/Venue: Spec Pond Recreation Area, Wilbraham, MA

Cost: Completely Free! 🎈 We know that life with our amazing Rett kiddos can change in a heartbeat. Because space is limited and we want to make sure every family gets to join in, please let us know if your plans change! If you need to cancel—even if it’s right at that 48-hour mark—just shoot a quick text to 860-514-7630. We’ll gently pass your spot to a sweet family on our waitlist, no guilt attached! 💕

🧺 Pack a Picnic: Please bring along your family’s favorite picnic lunch to enjoy under the sun!

🍦 Sweet Treats on Us: RS Angels will be providing yummy desserts and a variety of refreshing cold drinks to keep everyone smiling!

💦 Splash, Play & Relax: There is truly something for everyone! Splash around the Splash Pad, sink your toes in the sand at the Spec Pond Beach, or run wild at the Playground. (And don’t worry about packing extra gear—we’ll have beach toys ready for everyone! 🧸🏖️)

♿ Rolling with Joy: We want everyone to join the fun! Accessible beach wheelchairs are available upon request so no one misses out on the sand and sun. Just let us know if your rockstar needs one!

🏐 Friendly Competition: Feeling playful? We’ll have Cornhole and Volleyball set up and ready to go!

📝 Save Your Spot: We can’t wait to see you! Everyone must register to attend, so please sign up today!

RAIN OR SHINE!

Registration is now open! We can’t wait to see everyone there!

PICNIC REGISTRATION

DEADLINE: JULY 17TH

Runnin’ for Rett 5k and 1 mile walk
2026-10-18 10:00 - 15:00 | Belchertown, 59 State Street, Belchertown, 01007, United States
Please join us for the 1st annual Runnin’ for Rett 5k and 1 mile walk. All proceeds are to benefit Rett Syndrome Angels charity. There will be a 5k run and 1 mile walk starting and ending next to the fully handicap accessible Jessica’s Boundless Playground.

Come enjoy some exercise and activities for a fun day in October.

There will be food trucks for after your run or walk, bring your children for a kids fun run prior to the race. There will be activities for everyone such as face painting and raffle prizes following the race.

Start time: 5k and walk at 11:30. Free kids fun run between 10:45-11:00 for kids 10 and under

Events: food trucks, kids fun run, face painting , handicap accessible playground. Some raffle prizes

Price: $30 for 5k or for 1 mile walk.

T-shirts available if signed up prior to October 1st. Sign ups after October 1st then shirts are not guaranteed
