BEGIN:VCALENDAR VERSION:2.0 PRODID:-//Rett Syndrome Angels - ECPv6.17.0//NONSGML v1.0//EN CALSCALE:GREGORIAN METHOD:PUBLISH X-ORIGINAL-URL:https://rsangels.org X-WR-CALDESC:Events for Rett Syndrome Angels REFRESH-INTERVAL;VALUE=DURATION:PT1H X-Robots-Tag:noindex X-PUBLISHED-TTL:PT1H BEGIN:VTIMEZONE TZID:UTC BEGIN:STANDARD TZOFFSETFROM:+0000 TZOFFSETTO:+0000 TZNAME:UTC DTSTART:20190101T000000 END:STANDARD END:VTIMEZONE BEGIN:VTIMEZONE TZID:America/New_York BEGIN:DAYLIGHT TZOFFSETFROM:-0500 TZOFFSETTO:-0400 TZNAME:EDT DTSTART:20180311T070000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0400 TZOFFSETTO:-0500 TZNAME:EST DTSTART:20181104T060000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:-0500 TZOFFSETTO:-0400 TZNAME:EDT DTSTART:20190310T070000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0400 TZOFFSETTO:-0500 TZNAME:EST DTSTART:20191103T060000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:-0500 TZOFFSETTO:-0400 TZNAME:EDT DTSTART:20200308T070000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0400 TZOFFSETTO:-0500 TZNAME:EST DTSTART:20201101T060000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:-0500 TZOFFSETTO:-0400 TZNAME:EDT DTSTART:20210314T070000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:-0400 TZOFFSETTO:-0500 TZNAME:EST DTSTART:20211107T060000 END:STANDARD END:VTIMEZONE BEGIN:VEVENT DTSTART;TZID=UTC:20210126T120000 DTEND;TZID=UTC:20210205T120000 DTSTAMP:20260502T182256Z CREATED:20210128T033125Z LAST-MODIFIED:20260502T182256Z UID:6459-1611662400-1612526400@rsangels.org SUMMARY:Operation Valentine DESCRIPTION:Secret Valentine During Quarantime \n\n\n\nOperation Valentine mission is under way…..Best Buddies and Rett Syndrome Angels have partnered!! \n\n\n\nAre you a Rett Angel that wants to get a secret valentine? We are honored and lucky to partner with a few Best Buddies chapters. These students are making valentines for you! The love is all around us\, get some beautiful one of a kind valentines in the mail. This is limited to our New England families living in Connecticut\, Massachusetts\, Maine\, New Hampshire\, Rhode Island and Vermont. This is a wonderful way to start a new friendship\, maybe even pen pals! Our girls and boys deserve some extra kindness\, some extra love and more friends! \n\n\n\nDEADLINE: February 5th by noon! \n\n\n\nEmail: budd0806@gmail.com URL:https://rsangels.org/event/operation-valentine/ END:VEVENT BEGIN:VEVENT DTSTART;TZID=UTC:20210121T000000 DTEND;TZID=UTC:20210301T235959 DTSTAMP:20260502T182257Z CREATED:20210127T164743Z LAST-MODIFIED:20260502T182257Z UID:9692-1611187200-1614643199@rsangels.org SUMMARY:Maria McTernan Sibling Scholarship DESCRIPTION:Read more about the scholarship here – or click on the link below to fill out the form. URL:https://rsangels.org/event/maria-mcternan-sibling-scholarship-2/ ATTACH;FMTTYPE=image/jpeg:https://rsangels.org/wp-content/uploads/2021/01/RSA-headers-scholarship-scaled.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=UTC:20210120T193000 DTEND;TZID=UTC:20210120T193000 DTSTAMP:20260502T182257Z CREATED:20201110T184315Z LAST-MODIFIED:20260502T182257Z UID:6407-1611171000-1611171000@rsangels.org SUMMARY:Monthly Virtual Family Check In's DESCRIPTION:Come join other Rett Syndrome Angels families for an informal evening to chat. Often parents lead the way on conversational topics. These meetings give families opportunities to get much needed support on the many struggles from day to day living with Rett. Wear your pajamas\, bring your beverage\, snack of choice and get resources\, tips or just a lending ear from parents living this journey with you. \n\n\n\n R.S.V.P. two days prior to the event to get details on how to join us. \n\n\n\n Email: irene@rsangels.org URL:https://rsangels.org/event/monthly-virtual-family-check-ins-2/ END:VEVENT BEGIN:VEVENT DTSTART;TZID=UTC:20201203T193000 DTEND;TZID=UTC:20201203T203000 DTSTAMP:20260502T182257Z CREATED:20201110T190323Z LAST-MODIFIED:20260502T182257Z UID:6409-1607023800-1607027400@rsangels.org SUMMARY:ABLE ACCOUNTS/SPECIAL NEEDS TRUSTS (WEBINAR) DESCRIPTION:During this webinar caregivers/guardians will learn ways to secure your loved ones financial future. Annette Hines\, ESQ from the Special Needs Law Group of Massachusetts has graciously offered to present and offer guidance. An important topic for all of us families; as we think about the future. Annette will explain the difference between Special Needs Trusts and ABLE Accounts and after the presentation there will be time for Q & A. We hope you can join us for this important topic. \n\n\n\nRSVP by Nov. 30th to get webinar information \n\n\n\nEmail: irene@rsangels.org URL:https://rsangels.org/event/able-accounts-special-needs-trusts-webinar/ ATTACH;FMTTYPE=image/png:https://rsangels.org/wp-content/uploads/2019/04/special-needs-law-group.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=UTC:20201118T193000 DTEND;TZID=UTC:20201118T193000 DTSTAMP:20260502T182257Z CREATED:20201110T161750Z LAST-MODIFIED:20260502T182257Z UID:9790-1605727800-1605727800@rsangels.org SUMMARY:Monthly Virtual Family Check In's DESCRIPTION:Come join other Rett Syndrome Angels families for an informal evening to chat. Often parents lead the way on conversational topics. These meetings give families opportunities to get much needed support on the many struggles from day to day living with Rett. Wear your pajamas\, bring your beverage\, snack of choice and get resources\, tips or just a lending ear from parents living this journey with you. \n\n\n\n R.S.V.P. two days prior to the event to get details on how to join us. \n\n\n\n Email: irene@rsangels.org URL:https://rsangels.org/event/monthly-virtual-family-check-ins-5/ END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20201024T190000 DTEND;TZID=America/New_York:20201024T233000 DTSTAMP:20260502T182257Z CREATED:20200911T211222Z LAST-MODIFIED:20260502T182257Z UID:5757-1603566000-1603582200@rsangels.org SUMMARY:Purple Sky Night DESCRIPTION:PURPLE SKY NIGHT\nThe Grand Finale      Saturday Evening\nTo further honor the children and adults with Rett syndrome and to recognize October as Rett Syndrome Awareness Month\, the Boston sky will be lit in purple on the night of October 24. Purple is the color symbolic of Rett syndrome. Boston City Hall and Plaza\, the Zakim Bridge and other Boston landmarks will glow in purple.\n\nThank you to Mayor Walsh for arranging these breathtaking views!\n___________________________________ URL:https://rsangels.org/event/purple-sky-night/ ATTACH;FMTTYPE=image/jpeg:https://rsangels.org/wp-content/uploads/2019/08/zakim.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20201024T103000 DTEND;TZID=America/New_York:20201024T120000 DTSTAMP:20260502T182257Z CREATED:20200828T083524Z LAST-MODIFIED:20260502T182257Z UID:5470-1603535400-1603540800@rsangels.org SUMMARY:World Family Celebration DESCRIPTION:BLUE SKY DAY\n WORLD FAMILY CELEBRATION! \n  \nThis one is one to remember….. \n \nOnce again\, we will come together as a community to honor and to celebrate our very special children This year we will be watching and admiring from the comfort of our home starting at 10:30am EST. \n  \nJoin in our virtual observance this year will be families from around the world who are also facing the challenges of living with Rett Syndrome.  \nWe invite families from around the world to join us in this celebration of our amazing children. There are two ways families can participate. We need your help to make this day amazing!  The festivities will include videos/photos how amazing our rett angels are the tradition of honoring our children in a very personal way from around the world. \n        \nTIME TO CELEBRATE OUR ANGELS! \n VIEWING INFORMATION:  \n10:30am united states\n (Eastern Standard Time) \nhttps://us02web.zoom.us/j/89371240017?pwd=TGMrRmlPWWs5VTZBUUY5MVNzcmUwdz09\nPasscode: family\nOr iPhone one-tap :\nUS: +13017158592\,\,89371240017#\,\,\,\,\,\,0#\,\,327783# or +13126266799\,\,89371240017#\,\,\,\,\,\,0#\,\,327783#\nOr Telephone:\nDial(for higher quality\, dial a number based on your current location):\nUS: +1 301 715 8592 or +1 312 626 6799 or +1 646 876 9923 or +1 669 900 6833 or +1 253 215 8782 or +1 346 248 7799 or +1 408 638 0968\nWebinar ID: 893 7124 0017\nPasscode: 327783\nInternational numbers available: https://us02web.zoom.us/u/kcFl9RdwI9 \n                                              \nDid you know Boston has continued on this event for ten consecutive years despite many challenges? Not even a Pandemic is going to stop us! It all started  as Blue Sky Girls with an idea from  Dr. Sasha Djukic from the Rett Clinic/ New York to have families from all over the world gather at the same time and climb stairs. \n“Each year in October the Blue Sky Girls was an event that is celebrated at multiple sites around the world. The purpose of the event is to celebrate Rett Syndrome Month and the strength and will that girls with Rett Syndrome have shown to keep going no matter the odds and the difficulties they face every minute of their lives. \nClimbing stairs is a symbolic gesture\, because climbing takes you upward and forward even if it is difficult.”  Just the past recent years\, the name changed to Blue Sky Day as more boys have been diagnosed with this disorder. \n \n \nThe Boston Children’s Hospital Rett Program Team celebrating Blue Sky Day at our Purple Sky Night themed selfie station 2019. \n  \nContact us: rettsyndromemassachusetts@gmail.com  \n \nSTAY SOCIAL (follow us)\n\n\n  URL:https://rsangels.org/event/annual-blue-sky-day/ CATEGORIES:Family Event ATTACH;FMTTYPE=image/jpeg:https://rsangels.org/wp-content/uploads/2019/11/RSAM-1112219-a.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20201017T000000 DTEND;TZID=America/New_York:20201017T235959 DTSTAMP:20260502T182257Z CREATED:20200910T152522Z LAST-MODIFIED:20260502T182257Z UID:6403-1602892800-1602979199@rsangels.org SUMMARY:Scientific/Research Webinar DESCRIPTION:Download the Agenda for the BCH Rett Scientific Symposium \nLook at the progress Rett research has made in the last ten years! \nThank you to Dr. Michela Fagiolini for spearheading this virtual event. \nShe is gathering prominent researchers and clinicians who will participate\, presenting information and answering your questions. \nThis is sure to be a great opportunity for us.  Make sure to sign up to get the updated information as we announce it! \nSign-Up to View our Virtual Event\n Click Here \nSTAY SOCIAL (follow us) URL:https://rsangels.org/event/scientific-research-webinar-2/ CATEGORIES:Education ATTACH;FMTTYPE=image/jpeg:https://rsangels.org/wp-content/uploads/2020/09/x-chromosome.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20201010T000000 DTEND;TZID=America/New_York:20201010T235959 DTSTAMP:20260502T182257Z CREATED:20200910T152329Z LAST-MODIFIED:20260502T182257Z UID:5698-1602288000-1602374399@rsangels.org SUMMARY:Premier Showing of RSAM’s Sibling Video  DESCRIPTION:Great thanks to Sara Anastasi and Hannah Sweeney two of our 2020 Sibling Scholarship recipients and Michael Anastasi for creating this video starring 14 of our RSAM families.  Get your popcorn ready for this at home theater event.  This touching and beautiful video is one you don’t want to miss! \nWe definitely give it FIVE stars!\nWe will share the private link closer to the date! \n  \nSign-Up to View our Virtual Events\n Click Here \nSTAY SOCIAL (follow us) URL:https://rsangels.org/event/premier-showing-of-rsams-sibling-video/ CATEGORIES:Family Event ATTACH;FMTTYPE=image/png:https://rsangels.org/wp-content/uploads/2020/09/movie-night.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20201003T120000 DTEND;TZID=America/New_York:20201003T160000 DTSTAMP:20260502T182257Z CREATED:20200910T152154Z LAST-MODIFIED:20260502T182257Z UID:5697-1601726400-1601740800@rsangels.org SUMMARY:Our Kick-Off Event DESCRIPTION:In-Person Family Gathering Observing COVID Precautions \nAll our New England Families are invited to a Celebration Beach Bash and Family Picnic! \nProfessional Family Pictures will be taken on the beach! Bring your favorite props and flip flops. \nJessica & Tom Henry are offering 10 family edited portraits for $10 dollars\, in honor of our 10th Year of Blue Sky Day. \nLet’s get together outside and enjoy much needed fun in the sun. \nWhen:  October 3rd from noon to 4pm\nWhere:   Waterford\, CT at a beautiful\, accessible seaside location!\n (RSVP is REQUIRED)\nDeadline Sept. 26th\, 2020                                                     \n R.S.V.P. Here \nhttps://forms.gle/KYQ1Bez87FcPLyX86 \nSTAY SOCIAL (follow us) URL:https://rsangels.org/event/our-kick-off-event/ CATEGORIES:Family Event ATTACH;FMTTYPE=image/jpeg:https://rsangels.org/wp-content/uploads/2020/09/beach.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20200914T000000 DTEND;TZID=America/New_York:20200914T235959 DTSTAMP:20260502T182258Z CREATED:20190905T173105Z LAST-MODIFIED:20260502T182258Z UID:2815-1600041600-1600127999@rsangels.org SUMMARY:Boston Marathon is Virtual DESCRIPTION:We are saddened that our Boston Marathon 2020 in person was cancelled.  “In the absence of the usual in-person marathon\, the Boston Athletic Association announced that it will hold a “virtual” race for the would-be participants.” Our runners continued to train and pushed themselves for the love of our girls and boys living with Rett Syndrome. The announcement came that participants in the virtual marathon will be required to complete a continuous marathon within a six-hour time period any time between September 7 and 14 and show their solo run using an app. Three of our marathon runners signed up for the virtual run to be able to earn their medals and awards. An extra shout out to Maurice\, Meredith and Richard we wish we could cheer you on at the finish line in person\, know we are your biggest cheerleaders!  Sending you some love below!  \nRooting for our RETT TEAM for all their perseverance and commitment. \nYour Cheerleaders are sending...\nBIG THANK YOU’S\n \n \n \nAnd we hope next year in 2021 we can cheer you on in person!  \nRSAM is always on the look out for new runners. Perhaps you want to start training now and apply for a spot\, TEAM RETT is preparing for 2021. Contact us if you would like to run for our nonprofit. \nPlease click the link below to learn more about each of our amazing runners\, dedicating themselves to run on behalf of RSAM and raise awareness and research funds for possible treatment of Rett syndrome and a hopeful cure one day.  Thank you to all our runners!! \nhttps://www.crowdrise.com/o/en/campaign/rett-syndrome-association-of-massachusetts\nhttps://charity.gofundme.com/o/en/campaign/rett-syndrome-association-of-massachusetts \n\nMarathon Application\nCredit Card Agreement URL:https://rsangels.org/event/boston-marathon/ CATEGORIES:Fundraisers ATTACH;FMTTYPE=image/jpeg:https://rsangels.org/wp-content/uploads/2018/11/BAA.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20200816T090000 DTEND;TZID=America/New_York:20200816T170000 DTSTAMP:20260502T182258Z CREATED:20200226T152225Z LAST-MODIFIED:20260502T182258Z UID:4165-1597568400-1597597200@rsangels.org SUMMARY:New Balance Falmouth Road Race (UPDATED) DESCRIPTION:Welcome to the 2020 New Balance Falmouth Road Race Numbers For Nonprofits Program! This year we are celebrating the 48th running of the race and for 22 of those years\, the Numbers for Nonprofits Program has been an integral piece of this event. Our amazing nonprofit runners raise millions of dollars for participating organizations every year and we know this year will be no different. Thank you to all the runners who have chosen to dedicate themselves to supporting these nonprofits and thank you to all who donate! \nUPDATE\nThe New Balance Falmouth Road Race for 2020 is going VIRTUAL! Please click through and learn more! RSAM is very excited to still participate in this event and there are more options for us to add interested runners.If interested please email us at: rettsyndromemassachusetts@gmail.com \nRead Press Release » URL:https://rsangels.org/event/new-balance-falmouth-road-race/ CATEGORIES:Fundraisers ATTACH;FMTTYPE=image/jpeg:https://rsangels.org/wp-content/uploads/2020/02/falmouth.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20200705T000000 DTEND;TZID=America/New_York:20200705T235900 DTSTAMP:20260502T182258Z CREATED:20200115T175517Z LAST-MODIFIED:20260502T182258Z UID:3761-1593907200-1593993540@rsangels.org SUMMARY:Rett Family Picnic DESCRIPTION:Due to COVID-19 \nOur Annual RSAM Family Picnic 2020 is postponed until we can get together safely.  \n Please stay tuned for the new date in 2021!  URL:https://rsangels.org/event/rett-family-picnic/ CATEGORIES:Recreation END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20200331T140000 DTEND;TZID=America/New_York:20200331T140000 DTSTAMP:20260502T182258Z CREATED:20200115T174658Z LAST-MODIFIED:20260502T182258Z UID:3760-1585663200-1585663200@rsangels.org SUMMARY:RSAM/Crimson Aquatics Swim Program DESCRIPTION:The one hour\, no cost\, swim sessions are held at 2:00pm at West Suburban Y in Newton. For information and to join this wonderful program contact Irene at iglad@rcn.com\nOpen to “Rett Swimmers” of all ages and abilities. \nDates for upcoming RSAM/Crimson Aquatics Swim Program\n1/25\n2/29\n3/21 URL:https://rsangels.org/event/rsam-crimson-aquatics-swim-program-3/ CATEGORIES:Recreation ATTACH;FMTTYPE=image/jpeg:https://rsangels.org/wp-content/uploads/2020/01/crimson-aquatics.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20191214T140000 DTEND;TZID=America/New_York:20191214T150000 DTSTAMP:20260502T182258Z CREATED:20190909T160504Z LAST-MODIFIED:20260502T182258Z UID:2846-1576332000-1576335600@rsangels.org SUMMARY:Crimson/RSAM Swim Program DESCRIPTION:Sept 14\, 2-3pm\nOctober 5\, 2-3pm\nDecember 14\, 2-3pm \nWest Suburban YMCA\n276 Church Street\nNewton\, MA \nIf you plan to attend this event\, please send your confirmation email to iglad@rcn.com URL:https://rsangels.org/event/crimson-rsam-swim-program-3/ CATEGORIES:Recreation ATTACH;FMTTYPE=image/jpeg:https://rsangels.org/wp-content/uploads/2018/11/RSAM-d.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20191026T103000 DTEND;TZID=America/New_York:20191026T103000 DTSTAMP:20260502T182258Z CREATED:20190820T104421Z LAST-MODIFIED:20260502T182258Z UID:6387-1572085800-1572085800@rsangels.org SUMMARY:BLUE SKY DAY 2019 DESCRIPTION:Saturday\, October 26\, 2019 – 10:30am \n\nAn outdoor event to honor our children\, gather with RSAM families\, Rett researchers and members of the Boston Children’s Hospital Rett Program. Lunch will follow. Please plan to attend and to continue the Blue Sky tradition here in Boston.\n \n\n\nNew This Year\, “Blue Sky Day Purple Sky Night” \nThis year the city of Boston is again helping to bring more awareness to Rett Syndrome. The evening of October 26th\, Boston City Hall and City Hall Plaza\, The Top of the Prudential Building and the Zakim Bridge will all be lit up purple. If you are in town\, be sure to catch the sights and make sure to tell all your family and friends as well. \n\n\n\n  URL:https://rsangels.org/event/blue-sky-day-2019-2/ CATEGORIES:Education,Recreation ATTACH;FMTTYPE=image/jpeg:https://rsangels.org/wp-content/uploads/2019/08/blue-sky-day-2019.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20191005T140000 DTEND;TZID=America/New_York:20191005T150000 DTSTAMP:20260502T182258Z CREATED:20190909T160239Z LAST-MODIFIED:20260502T182258Z UID:2845-1570284000-1570287600@rsangels.org SUMMARY:Crimson/RSAM Swim Program DESCRIPTION:Sept 14\, 2-3pm\nOctober 5\, 2-3pm\nDecember 14\, 2-3pm \nWest Suburban YMCA\n276 Church Street\nNewton\, MA \nIf you plan to attend this event\, please send your confirmation email to iglad@rcn.com URL:https://rsangels.org/event/crimson-rsam-swim-program-2/ CATEGORIES:Recreation ATTACH;FMTTYPE=image/jpeg:https://rsangels.org/wp-content/uploads/2018/11/RSAM-m.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20190924T190000 DTEND;TZID=America/New_York:20190924T210000 DTSTAMP:20260502T182315Z CREATED:20190820T104220Z LAST-MODIFIED:20260502T182315Z UID:2684-1569351600-1569358800@rsangels.org SUMMARY:Research Update from Rett Syndrome Research Trust DESCRIPTION:Research Update From Rett Syndrome Research Trust\nSeptember 24th\, 7pm\n79 Robbins St.\, Acton\, MA\nPlease join for a presentation from Tim Riley\, Chief Scientific Office for RSRT. Tim will provide an update and overall review of RSRT’s Roadmap to a Cure. Tim will be joined by Jonathan Watts from UMass Medical School\, presenting his MECP2 DNA and RNA editing project.\nPlease RSVP: info@rsam.org\n  \n  URL:https://rsangels.org/event/research-update-from-rett-syndrome-research-trust/ CATEGORIES:Education ATTACH;FMTTYPE=image/png:https://rsangels.org/wp-content/uploads/2019/08/rsrt-1.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20190914T140000 DTEND;TZID=America/New_York:20190914T150000 DTSTAMP:20260502T182315Z CREATED:20190909T155843Z LAST-MODIFIED:20260502T182315Z UID:2844-1568469600-1568473200@rsangels.org SUMMARY:Crimson/RSAM Swim Program DESCRIPTION:Sept 14\, 2-3pm\nOctober 5\, 2-3pm\nDecember 14\, 2-3pm \nWest Suburban YMCA\n276 Church Street\nNewton\, MA \nIf you plan to attend this event\, please send your confirmation email to iglad@rcn.com URL:https://rsangels.org/event/crimson-rsam-swim-program/ CATEGORIES:Recreation ATTACH;FMTTYPE=image/jpeg:https://rsangels.org/wp-content/uploads/2018/11/RSAM-bb.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20190630T000000 DTEND;TZID=America/New_York:20190630T235959 DTSTAMP:20260502T182315Z CREATED:20190416T182646Z LAST-MODIFIED:20260502T182315Z UID:2215-1561852800-1561939199@rsangels.org SUMMARY:Save the Date: RSAM Annual Family Picnic DESCRIPTION:RSAM’S THIRD ANNUAL FAMILY BBQ \nWe are so excited for this day! Our Family BBQ is super fun! See old friends\, make new ones. Eat an amazing BBQ feast\, enjoy fun lawn games. Relax and Enjoy the simple pleasures of summer!\nIf you have not replied yet\, please do it NOW.\nWe need a headcount in order to move ahead with planning. \nSunday\, June 30\n12 Noon to 4:00 pm\nNorth Attleboro Elks Lodge\n52 Bullfinch Street\nNorth Attleboro\, MA\nRain or Shine\nTHIS IS A FREE EVENT FOR THE WHOLE FAMILY! \nA delicious barbecue lunch\, a scenic location (with the option of moving indoors if needed)\, music\, games\, prizes and fun!\nA day to connect with families in MA and elsewhere living with Rett syndrome and Rett related disorders.\nOur past RSAM Family BBQ’s were well attended and received rave reviews!\nRSVP here or to iglad@rcn.com\nPlease tell us how many adults will be attending and how many children.\nIf you will be providing your child’s food\, please let us know. \nThanks and See you on June 30th at the BBQ! URL:https://rsangels.org/event/save-the-date-rsam-annual-family-picnic/ CATEGORIES:Recreation END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20190622T083000 DTEND;TZID=America/New_York:20190622T170000 DTSTAMP:20260502T182316Z CREATED:20190424T081315Z LAST-MODIFIED:20260502T182316Z UID:2245-1561192200-1561222800@rsangels.org SUMMARY:RettEd Day DESCRIPTION:Exciting News! Registration for the RettEd Day Conference is now OPEN! Don’t miss this amazing opportunity to hear from the leading doctors\, researchers and service professionals in the Boston area.\nIntended for everyone wanting to connect with experts in the field of Rett syndrome especially families\, caregivers\, educators\, clinicians\, and therapists. Attendees will enjoy a rich and informative day of topics and discussion that will cover: research updates\, medical and therapeutic interventions\, Massachusetts specific programs & services\, school and communication strategies. \nProgram Subject to Change \nWHEN | Saturday\, June 22\, 2019\nWHERE | Boston Children’s Hospital\, 1 Autumn Street\, Boston\, MA 02215\nAuditorium A&B (located in the basement)\nTIME | 8:30 a.m. – 5:00 p.m.\nView Flyer »\nRSAM will host an onsite networking reception immediately following. \nFee:\n$10/per person. Diagnosed children are FREE. \nIncludes:\nPresentations\, interactive panel discussion\, continental breakfast and lunch\, evening reception \n[fusion_button link=”https://www.rettsyndrome.org/EdDayMA2019/registration” text_transform=”” title=”” target=”_blank” link_attributes=”” alignment=”” modal=”” hide_on_mobile=”small-visibility\,medium-visibility\,large-visibility” class=”” id=”” color=”default” button_gradient_top_color=”” button_gradient_bottom_color=”” button_gradient_top_color_hover=”” button_gradient_bottom_color_hover=”” accent_color=”” accent_hover_color=”” type=”” bevel_color=”” border_width=”” size=”” stretch=”default” shape=”” icon=”” icon_position=”left” icon_divider=”no” animation_type=”” animation_direction=”left” animation_speed=”0.3″ animation_offset=””]Register »[/fusion_button] URL:https://rsangels.org/event/retted-day/ CATEGORIES:Education ATTACH;FMTTYPE=image/png:https://rsangels.org/wp-content/uploads/2019/04/EdDay.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20190504T140000 DTEND;TZID=America/New_York:20190504T150000 DTSTAMP:20260502T182316Z CREATED:20190417T172606Z LAST-MODIFIED:20260502T182316Z UID:2235-1556978400-1556982000@rsangels.org SUMMARY:RSAM/Crimson Swim Sessions DESCRIPTION:Crimson Swim\nMay 4th\, 2-3pm\nNewton\n  \nPlease contact Irene Gladstone if you are interested. iglad@rcn.com URL:https://rsangels.org/event/rsam-crimson-swim-sessions-3/ CATEGORIES:Recreation ATTACH;FMTTYPE=image/jpeg:https://rsangels.org/wp-content/uploads/2018/11/RSAM-m.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20190426T191000 DTEND;TZID=America/New_York:20190426T230000 DTSTAMP:20260502T182316Z CREATED:20190227T070633Z LAST-MODIFIED:20260502T182316Z UID:2164-1556305800-1556319600@rsangels.org SUMMARY:RSAM at the Red Sox!! DESCRIPTION:SOLD OUT – Thank you to all who supported this event! Be sure to watch the JumboTron as members of our RSAM family take the field before the game.\nDeadline: April 1 \nRett Syndrome Association of Massachusetts is excited to announce our 2nd Red Sox outing! Our mission is to improve and enhance the quality of life for all of those affected by Rett Syndrome in New England. We achieve this by providing supportive services\, resources\, advocacy\, education\, awareness\, and raising funds towards the advancement of Rett Syndrome research. We welcome everyone to join us for some major league fun and cheer on the Red Sox! \n\nA Portion of proceeds for this event will be used to support the Rett Syndrome Foundation’s Boston Marathon Runners. \nBe sure to follow us on Facebook for updates regarding this event and we hope to see everyone at Fenway! \nAnyone with a handicap need\, call Matt Tieri on the link \nBlock of Rooms: 1 block from Fenway\nDeadline: March 25 \nhttps://www.marriott.com/event-reservations/reservation-link.mi?id=1549556404169&key=GRP&app=resvlin \nWhen calling need to give our name for discount. Can sleep 4 people for the same rate in 1 room.\nAll rooms are Studios are 1 King bed with a Queen Sofa Sleeper\nwith kitchenette with microwave\, fridge. Continental breakfast.\n50.00 parking fee a night URL:https://rsangels.org/event/rsam-at-the-red-sox/ CATEGORIES:Recreation ATTACH;FMTTYPE=image/png:https://rsangels.org/wp-content/uploads/2019/02/red-sox.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20190415T000000 DTEND;TZID=America/New_York:20190415T235959 DTSTAMP:20260502T182316Z CREATED:20181106T153521Z LAST-MODIFIED:20260502T182316Z UID:2022-1555286400-1555372799@rsangels.org SUMMARY:2019 Boston Marathon DESCRIPTION:Thank you to all our Team Rett Runners and all those who supported the team with generous donations\, cheering the team along the way and overall encouragement and support. They are an amazing group of runners and we are so grateful for their dedication.\n\n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \nTeam RSAM \nMonday\, April 15\, 2019​\nMeet our team of amazing Rett runners! This dedicated group will run 26.2 miles on Monday\, April 15\, 2019 for all of our girls and boys. Each runner is committed to raising funds for RSAM\, so please consider supporting our team with a donation at:\nhttps://www.crowdrise.com/o/en/campaign/rett-syndrome-association-of-massachusetts-boston-2019 \nRSAM is proud to be an official Partner of John Hancock in the Marathon Non-Profit Program. The Non-Profit Program provides over 1000 Boston Marathon® bibs to select non-profit organizations throughout the community\, which provides organizations with a significant fundraising opportunity. Last year\, John Hancock Non-Profit Runners raised over $13.1M for their causes. \n  URL:https://rsangels.org/event/2019-boston-marathon/ CATEGORIES:Fundraisers ATTACH;FMTTYPE=image/jpeg:https://rsangels.org/wp-content/uploads/2018/11/BAA.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20190318T080000 DTEND;TZID=America/New_York:20190321T090000 DTSTAMP:20260502T182316Z CREATED:20190312T085154Z LAST-MODIFIED:20260502T182316Z UID:6382-1552896000-1553158800@rsangels.org SUMMARY:March Madness Bracket Challenge DESCRIPTION:Back by Popular Demand: Our 2nd March Madness Bracket Challenge\nAll donations to the March Madness Bracket Challenge go to our 2019 RSAM Marathon Team!!! \nWhen it’s time to submit your picks:\nGo to the Rett Syndrome Association of Massachusetts (RSAM) Marathon Team’s crowdrise site and select the Bracket Challenge team (or follow this link https://www.crowdrise.com/o/en/campaign/rett-syndrome-association-of-massachusetts-boston-2019/lawrencefallon1 )\, Enter your name (same name you will use on your Bracket entry) on the donation scroll line. A donation of $10 per bracket is suggested. \nThen proceed to the yahoo tourney pick’em group https://tournament.fantasysports.yahoo.com/t1/group/9547\, create an account (if you don’t have one already)\, fill out your entries and enjoy the tournament. All entries must be submitted before the first game tip-off on Thursday morning\, March 21. The password for the yahoo group is Dunk4Rett. \nRound by Round Scoring will be as follows and represents approximately a 10% drop in total possible points per round:\nRound 1: 10 points per win\nRound 2: 18 points per win\nRound 3: 32 points per win\nRound 4: 57 points per win\nRound 5: 102 points per win\nFinal game: 184 points per win \nThank you for participating and thank you to the Marathoners running for RSAM.  Please feel free to invite your friends and family who enjoy the bracket challenge. \n  URL:https://rsangels.org/event/march-madness-bracket-challenge-2/ CATEGORIES:Fundraisers ATTACH;FMTTYPE=image/png:https://rsangels.org/wp-content/uploads/2019/03/march-madness.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=America/New_York:20190302T000000 DTEND;TZID=America/New_York:20190302T235959 DTSTAMP:20260502T182316Z CREATED:20181220T080205Z LAST-MODIFIED:20260502T182316Z UID:6076-1551484800-1551571199@rsangels.org SUMMARY:RSAM/Crimson Swim Sessions DESCRIPTION:RSAM/Crimson Swim Sessions at the Newton Y – January 26 and March 2   (Saturdays). URL:https://rsangels.org/event/rsam-crimson-swim-sessions-2/ CATEGORIES:Recreation ATTACH;FMTTYPE=image/jpeg:https://rsangels.org/wp-content/uploads/2018/11/RSAM-bb.jpg END:VEVENT END:VCALENDAR