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PRODID:-//Rett Syndrome Angels - ECPv6.17.4//NONSGML v1.0//EN
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METHOD:PUBLISH
X-WR-CALNAME:Rett Syndrome Angels
X-ORIGINAL-URL:https://rsangels.org
X-WR-CALDESC:Events for Rett Syndrome Angels
REFRESH-INTERVAL;VALUE=DURATION:PT1H
X-Robots-Tag:noindex
X-PUBLISHED-TTL:PT1H
BEGIN:VTIMEZONE
TZID:UTC
BEGIN:STANDARD
TZOFFSETFROM:+0000
TZOFFSETTO:+0000
TZNAME:UTC
DTSTART:20200101T000000
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END:VTIMEZONE
BEGIN:VEVENT
DTSTART;TZID=UTC:20220331T193000
DTEND;TZID=UTC:20220331T193000
DTSTAMP:20260502T182349Z
CREATED:20220309T022709Z
LAST-MODIFIED:20260502T182349Z
UID:9802-1648755000-1648755000@rsangels.org
SUMMARY:Virtual House Call with Dr. Lieberman
DESCRIPTION:We welcome you to join us at RS Angels and Doctor David Lieberman\, MD\, PhD  Assistant\, Department of Neurology (Boston Children’s Rett Clinic) in your home virtually on March 31st at 7:30pm EST.  Dr. L will be talking about Covid\, Rett Clinic Updates\, Boston Children’s Rett Research Projects\, Upcoming Clinical Trials and as always there will be time for questions and answers from our caregivers.   \n\n\n\nCLICK TO RSVP HERE
URL:https://rsangels.org/event/virtual-house-call-with-dr-lieberman-3/
ATTACH;FMTTYPE=image/png:https://rsangels.org/wp-content/uploads/2022/03/Dr.-L.-for-rs-angels-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20220331T193000
DTEND;TZID=UTC:20220331T193000
DTSTAMP:20220309T022709Z
CREATED:20220309T022709Z
LAST-MODIFIED:20220309T022709Z
UID:10613-1648755000-1648755000@rsangels.org
SUMMARY:Virtual House Call with Dr. Lieberman
DESCRIPTION:We welcome you to join us at RS Angels and Doctor David Lieberman\, MD\, PhD  Assistant\, Department of Neurology (Boston Children’s Rett Clinic) in your home virtually on March 31st at 7:30pm EST.  Dr. L will be talking about Covid\, Rett Clinic Updates\, Boston Children’s Rett Research Projects\, Upcoming Clinical Trials and as always there will be time for questions and answers from our caregivers.   \n\n\n\nCLICK TO RSVP HERE
URL:https://rsangels.org/event/virtual-house-call-with-dr-lieberman-3-2/
ATTACH;FMTTYPE=image/png:https://rsangels.org/wp-content/uploads/2022/03/Dr.-L.-for-rs-angels-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20220228T060000
DTEND;TZID=UTC:20220228T230000
DTSTAMP:20220226T162106Z
CREATED:20220226T162106Z
LAST-MODIFIED:20220226T162106Z
UID:10611-1646028000-1646089200@rsangels.org
SUMMARY:Rett is Rare Disease Day Campaign
DESCRIPTION:Join Rett Syndrome Angels & Rare Disease Day Campaign!(2.28.22) \n\n\n\nRett syndrome is a rare\, devastating disease affecting a special person in my life.  Please help make Rett syndrome not rare\, but gone!   \n\n\n\nShare now until Feb. 28th!  \n\n\n\nSpread the word and share.About a disease that is rare. Increase awareness of Rett syndrome and please let others know of this campaign by sharing through your social media. \n\n\n\nIn honor of Rare Disease Day 2022 we are asking you to help our Team Rett Marathon Runners.   They are dedicated to raising awareness of Rett syndrome and to raising funds for our Rett Angels for programming\, enrichment and research. Please help support them as they are working to support our loved ones. \n\n\n\nEvery size donation brings us closer to treatments and a cure! \n\n\n\nPlease read the compelling stories from the 5 members of Team Rett who will be running in the 2022 Boston Marathon®.  Please donate to one or more of these dedicated Rett Runners.  \n\n\n\nDonations can be made by this link:  Team Rett Link
URL:https://rsangels.org/event/rett-is-rare-disease-day-campaign-3-2/
LOCATION:All your social media platforms
ATTACH;FMTTYPE=image/png:https://rsangels.org/wp-content/uploads/2022/02/Circle-RDD.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20220228T060000
DTEND;TZID=UTC:20220228T230000
DTSTAMP:20260502T182349Z
CREATED:20220226T162106Z
LAST-MODIFIED:20260502T182349Z
UID:9800-1646028000-1646089200@rsangels.org
SUMMARY:Rett is Rare Disease Day Campaign
DESCRIPTION:Join Rett Syndrome Angels & Rare Disease Day Campaign!(2.28.22) \n\n\n\nRett syndrome is a rare\, devastating disease affecting a special person in my life.  Please help make Rett syndrome not rare\, but gone!   \n\n\n\nShare now until Feb. 28th!  \n\n\n\nSpread the word and share.About a disease that is rare. Increase awareness of Rett syndrome and please let others know of this campaign by sharing through your social media. \n\n\n\nIn honor of Rare Disease Day 2022 we are asking you to help our Team Rett Marathon Runners.   They are dedicated to raising awareness of Rett syndrome and to raising funds for our Rett Angels for programming\, enrichment and research. Please help support them as they are working to support our loved ones. \n\n\n\nEvery size donation brings us closer to treatments and a cure! \n\n\n\nPlease read the compelling stories from the 5 members of Team Rett who will be running in the 2022 Boston Marathon®.  Please donate to one or more of these dedicated Rett Runners.  \n\n\n\nDonations can be made by this link:  Team Rett Link
URL:https://rsangels.org/event/rett-is-rare-disease-day-campaign-3/
LOCATION:All your social media platforms
ATTACH;FMTTYPE=image/png:https://rsangels.org/wp-content/uploads/2022/02/Circle-RDD.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20211023T113000
DTEND;TZID=UTC:20211023T153000
DTSTAMP:20260502T182349Z
CREATED:20211006T131411Z
LAST-MODIFIED:20260502T182349Z
UID:9799-1634988600-1635003000@rsangels.org
SUMMARY:Blue Sky Day and Family Picnic
DESCRIPTION:TWO DAY EVENTS-FREE!  Blue Sky Day and our first Halloween Picnic. Join us for a COVID friendly get together\, families bring their own picnics and RS Angels will provide the rest! We will have monster mash dancing\, speakers\, pumpkin decorating and so much more. These joined events are all about fun and enjoying much needed face to face time together. Don’t forget to dress up in your costume!  \n\n\n\nRVSP as soon as possible BUT no later than Oct. 18th.  \n\n\n\nClick link to RSVP:  \n\n\n\nhttps://forms.gle/d5WLcvrvWCMN1Z8J6
URL:https://rsangels.org/event/blue-sky-day-and-family-picnic-3/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20211023T113000
DTEND;TZID=UTC:20211023T153000
DTSTAMP:20211006T131411Z
CREATED:20211006T131411Z
LAST-MODIFIED:20211006T131411Z
UID:10610-1634988600-1635003000@rsangels.org
SUMMARY:Blue Sky Day and Family Picnic
DESCRIPTION:TWO DAY EVENTS-FREE!  Blue Sky Day and our first Halloween Picnic. Join us for a COVID friendly get together\, families bring their own picnics and RS Angels will provide the rest! We will have monster mash dancing\, speakers\, pumpkin decorating and so much more. These joined events are all about fun and enjoying much needed face to face time together. Don’t forget to dress up in your costume!  \n\n\n\nRVSP as soon as possible BUT no later than Oct. 18th.  \n\n\n\nClick link to RSVP:  \n\n\n\nhttps://forms.gle/d5WLcvrvWCMN1Z8J6
URL:https://rsangels.org/event/blue-sky-day-and-family-picnic-3-2/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20211011T080000
DTEND;TZID=UTC:20211011T170000
DTSTAMP:20210422T122345Z
CREATED:20210422T122345Z
LAST-MODIFIED:20210422T122345Z
UID:10599-1633939200-1633971600@rsangels.org
SUMMARY:Team Rett Run @ the Boston Marathon®
DESCRIPTION:Team Rett is running at the Boston Marathon® representing RS Angels – support the team\, support our efforts to raise awareness or simply support our fundraiser! \n\n\n\nFor more information\, visit our official Team Rett page here. \n\n\n\nYou can follow along for current updates on our TEAM RETT Facebook page here and our Facebook EVENT page is here. \n\n\n\nOR if you’re a real go-getter you can just jump right to donating here!
URL:https://rsangels.org/event/team-rett-run-the-boston-marathon-2/
LOCATION:Boston Marathon\, E Main St\, Hopkinton\, Massachusetts\, 01748\, United States
CATEGORIES:Fundraisers
ATTACH;FMTTYPE=image/jpeg:https://rsangels.org/wp-content/uploads/2021/04/team-rett-header-2021.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20211011T080000
DTEND;TZID=UTC:20211011T170000
DTSTAMP:20260502T182350Z
CREATED:20210422T122345Z
LAST-MODIFIED:20260502T182350Z
UID:9798-1633939200-1633971600@rsangels.org
SUMMARY:Team Rett Run @ the Boston Marathon®
DESCRIPTION:Team Rett is running at the Boston Marathon® representing RS Angels – support the team\, support our efforts to raise awareness or simply support our fundraiser! \n\n\n\nFor more information\, visit our official Team Rett page here. \n\n\n\nYou can follow along for current updates on our TEAM RETT Facebook page here and our Facebook EVENT page is here. \n\n\n\nOR if you’re a real go-getter you can just jump right to donating here!
URL:https://rsangels.org/event/team-rett-run-the-boston-marathon-4/
LOCATION:Boston Marathon\, E Main St\, Hopkinton\, Massachusetts\, 01748\, United States
CATEGORIES:Fundraisers
ATTACH;FMTTYPE=image/jpeg:https://rsangels.org/wp-content/uploads/2021/04/team-rett-header-2021.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20211011T080000
DTEND;TZID=UTC:20211011T170000
DTSTAMP:20260502T182350Z
CREATED:20210422T122345Z
LAST-MODIFIED:20260502T182350Z
UID:9707-1633939200-1633971600@rsangels.org
SUMMARY:Team Rett Run @ the Boston Marathon®
DESCRIPTION:Team Rett is running at the Boston Marathon® representing RS Angels – support the team\, support our efforts to raise awareness or simply support our fundraiser! \n\n\n\nFor more information\, visit our official Team Rett page here. \n\n\n\nYou can follow along for current updates on our TEAM RETT Facebook page here and our Facebook EVENT page is here. \n\n\n\nOR if you’re a real go-getter you can just jump right to donating here!
URL:https://rsangels.org/event/team-rett-run-the-boston-marathon-3/
LOCATION:Boston Marathon\, E Main St\, Hopkinton\, Massachusetts\, 01748\, United States
CATEGORIES:Fundraisers
ATTACH;FMTTYPE=image/jpeg:https://rsangels.org/wp-content/uploads/2021/04/team-rett-header-2021.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20211011T080000
DTEND;TZID=UTC:20211011T170000
DTSTAMP:20210422T122345Z
CREATED:20210422T122345Z
LAST-MODIFIED:20210422T122345Z
UID:10609-1633939200-1633971600@rsangels.org
SUMMARY:Team Rett Run @ the Boston Marathon®
DESCRIPTION:Team Rett is running at the Boston Marathon® representing RS Angels – support the team\, support our efforts to raise awareness or simply support our fundraiser! \n\n\n\nFor more information\, visit our official Team Rett page here. \n\n\n\nYou can follow along for current updates on our TEAM RETT Facebook page here and our Facebook EVENT page is here. \n\n\n\nOR if you’re a real go-getter you can just jump right to donating here!
URL:https://rsangels.org/event/team-rett-run-the-boston-marathon-4-2/
LOCATION:Boston Marathon\, E Main St\, Hopkinton\, Massachusetts\, 01748\, United States
CATEGORIES:Fundraisers
ATTACH;FMTTYPE=image/jpeg:https://rsangels.org/wp-content/uploads/2021/04/team-rett-header-2021.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20211011T080000
DTEND;TZID=UTC:20211011T170000
DTSTAMP:20260502T182350Z
CREATED:20210422T122345Z
LAST-MODIFIED:20260502T182350Z
UID:6650-1633939200-1633971600@rsangels.org
SUMMARY:Team Rett Run @ the Boston Marathon®
DESCRIPTION:Team Rett is running at the Boston Marathon® representing RS Angels – support the team\, support our efforts to raise awareness or simply support our fundraiser! \n\n\n\nFor more information\, visit our official Team Rett page here. \n\n\n\nYou can follow along for current updates on our TEAM RETT Facebook page here and our Facebook EVENT page is here. \n\n\n\nOR if you’re a real go-getter you can just jump right to donating here!
URL:https://rsangels.org/event/team-rett-run-the-boston-marathon/
LOCATION:Boston Marathon\, E Main St\, Hopkinton\, Massachusetts\, 01748\, United States
CATEGORIES:Fundraisers
ATTACH;FMTTYPE=image/jpeg:https://rsangels.org/wp-content/uploads/2021/04/team-rett-header-2021.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20211011T080000
DTEND;TZID=UTC:20211011T170000
DTSTAMP:20210422T122345Z
CREATED:20210422T122345Z
LAST-MODIFIED:20210422T122345Z
UID:10604-1633939200-1633971600@rsangels.org
SUMMARY:Team Rett Run @ the Boston Marathon®
DESCRIPTION:Team Rett is running at the Boston Marathon® representing RS Angels – support the team\, support our efforts to raise awareness or simply support our fundraiser! \n\n\n\nFor more information\, visit our official Team Rett page here. \n\n\n\nYou can follow along for current updates on our TEAM RETT Facebook page here and our Facebook EVENT page is here. \n\n\n\nOR if you’re a real go-getter you can just jump right to donating here!
URL:https://rsangels.org/event/team-rett-run-the-boston-marathon-3-2/
LOCATION:Boston Marathon\, E Main St\, Hopkinton\, Massachusetts\, 01748\, United States
CATEGORIES:Fundraisers
ATTACH;FMTTYPE=image/jpeg:https://rsangels.org/wp-content/uploads/2021/04/team-rett-header-2021.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20210326T193000
DTEND;TZID=UTC:20210326T193000
DTSTAMP:20260502T182350Z
CREATED:20201110T184447Z
LAST-MODIFIED:20260502T182350Z
UID:6408-1616787000-1616787000@rsangels.org
SUMMARY:Stay tuned....March Monthly Family Check In
DESCRIPTION:Stay tuned for March topic…. (wishes can come true) \n\n\n\n \n\n\n\nCome join other Rett Syndrome Angels families for an informal evening to chat. Often parents lead the way on conversational topics. These meetings give families opportunities to get much needed support on the many struggles from day to day living with Rett.  Wear your pajamas\, bring your beverage\, snack of choice and get resources\, tips or just a lending ear from parents living this journey with you.  \n\n\n\n R.S.V.P. two days prior to the event to get details on how to join us.  \n\n\n\n Email: irene@rsangels.org
URL:https://rsangels.org/event/monthly-virtual-family-check-ins-3/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20210326T193000
DTEND;TZID=UTC:20210326T193000
DTSTAMP:20260502T182350Z
CREATED:20201110T184447Z
LAST-MODIFIED:20260502T182350Z
UID:9793-1616787000-1616787000@rsangels.org
SUMMARY:Stay tuned....March Monthly Family Check In
DESCRIPTION:Stay tuned for March topic…. (wishes can come true) \n\n\n\n \n\n\n\nCome join other Rett Syndrome Angels families for an informal evening to chat. Often parents lead the way on conversational topics. These meetings give families opportunities to get much needed support on the many struggles from day to day living with Rett.  Wear your pajamas\, bring your beverage\, snack of choice and get resources\, tips or just a lending ear from parents living this journey with you.  \n\n\n\n R.S.V.P. two days prior to the event to get details on how to join us.  \n\n\n\n Email: irene@rsangels.org
URL:https://rsangels.org/event/monthly-virtual-family-check-ins-3-3/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20210326T193000
DTEND;TZID=UTC:20210326T193000
DTSTAMP:20260502T182350Z
CREATED:20201110T184447Z
LAST-MODIFIED:20260502T182350Z
UID:9702-1616787000-1616787000@rsangels.org
SUMMARY:Stay tuned....March Monthly Family Check In
DESCRIPTION:Stay tuned for March topic…. (wishes can come true) \n\n\n\n \n\n\n\nCome join other Rett Syndrome Angels families for an informal evening to chat. Often parents lead the way on conversational topics. These meetings give families opportunities to get much needed support on the many struggles from day to day living with Rett.  Wear your pajamas\, bring your beverage\, snack of choice and get resources\, tips or just a lending ear from parents living this journey with you.  \n\n\n\n R.S.V.P. two days prior to the event to get details on how to join us.  \n\n\n\n Email: irene@rsangels.org
URL:https://rsangels.org/event/monthly-virtual-family-check-ins-3-2/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20210326T193000
DTEND;TZID=UTC:20210326T193000
DTSTAMP:20201110T184447Z
CREATED:20201110T184447Z
LAST-MODIFIED:20201110T184447Z
UID:10594-1616787000-1616787000@rsangels.org
SUMMARY:Stay tuned....March Monthly Family Check In
DESCRIPTION:Stay tuned for March topic…. (wishes can come true) \n\n\n\n \n\n\n\nCome join other Rett Syndrome Angels families for an informal evening to chat. Often parents lead the way on conversational topics. These meetings give families opportunities to get much needed support on the many struggles from day to day living with Rett.  Wear your pajamas\, bring your beverage\, snack of choice and get resources\, tips or just a lending ear from parents living this journey with you.  \n\n\n\n R.S.V.P. two days prior to the event to get details on how to join us.  \n\n\n\n Email: irene@rsangels.org
URL:https://rsangels.org/event/monthly-virtual-family-check-ins-3-4/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20210326T193000
DTEND;TZID=UTC:20210326T193000
DTSTAMP:20201110T184447Z
CREATED:20201110T184447Z
LAST-MODIFIED:20201110T184447Z
UID:10607-1616787000-1616787000@rsangels.org
SUMMARY:Stay tuned....March Monthly Family Check In
DESCRIPTION:Stay tuned for March topic…. (wishes can come true) \n\n\n\n \n\n\n\nCome join other Rett Syndrome Angels families for an informal evening to chat. Often parents lead the way on conversational topics. These meetings give families opportunities to get much needed support on the many struggles from day to day living with Rett.  Wear your pajamas\, bring your beverage\, snack of choice and get resources\, tips or just a lending ear from parents living this journey with you.  \n\n\n\n R.S.V.P. two days prior to the event to get details on how to join us.  \n\n\n\n Email: irene@rsangels.org
URL:https://rsangels.org/event/monthly-virtual-family-check-ins-3-3-2/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20210326T193000
DTEND;TZID=UTC:20210326T193000
DTSTAMP:20201110T184447Z
CREATED:20201110T184447Z
LAST-MODIFIED:20201110T184447Z
UID:10601-1616787000-1616787000@rsangels.org
SUMMARY:Stay tuned....March Monthly Family Check In
DESCRIPTION:Stay tuned for March topic…. (wishes can come true) \n\n\n\n \n\n\n\nCome join other Rett Syndrome Angels families for an informal evening to chat. Often parents lead the way on conversational topics. These meetings give families opportunities to get much needed support on the many struggles from day to day living with Rett.  Wear your pajamas\, bring your beverage\, snack of choice and get resources\, tips or just a lending ear from parents living this journey with you.  \n\n\n\n R.S.V.P. two days prior to the event to get details on how to join us.  \n\n\n\n Email: irene@rsangels.org
URL:https://rsangels.org/event/monthly-virtual-family-check-ins-3-2-2/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20210226T193000
DTEND;TZID=UTC:20210226T193000
DTSTAMP:20260502T182350Z
CREATED:20210128T020943Z
LAST-MODIFIED:20260502T182350Z
UID:9796-1614367800-1614367800@rsangels.org
SUMMARY:The Green Nurse
DESCRIPTION:We have been seeing a lot of talk by families on different forums about cannabis\, it’s a topic that is not fully understood nor much information is out there for Rett Syndrome. Our hope at Rett Syndrome Angels is to help with that.  So many variants\, so many unknowns\, what is the difference between CBD oil versus THC? How to find the balance? \n\n\n\n Let’s look at the word “endocannabinoid.” “Cannabinoid” comes from “cannabis\,” and “endo” is short for “endogenous\,” which means that it is produced naturally inside of our body. So “endocannabinoid” simply means cannabis-like substances that naturally occur inside us. Confused? Us too\, until we met The Green Nurse! Sherri Tutkus\, RN\, BSN and Co-Founder from the The Green Nurse will be providing information on approved products\, services and the importance of finding synergy within the endocannabinoid system in our bodies. Hear about the endocannabinoid system and cannabinoid therapeutics and how they relate to Rett syndrome. In this virtual session there will be time for questions from our families. (a waiver must be signed to attend).  \n\n\n\nR.S.V.P. two days prior to the event to get details on how to join us. \n \nEmail: irene@rsangels.org \n\n  \n  \n  \n\n  \n\n  \n \n \n \nR.S.V.P. two days prior to the event to get details on how to join us. \n \nEmail: irene@rsangels.org
URL:https://rsangels.org/event/the-green-nurse-3/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20210226T193000
DTEND;TZID=UTC:20210226T193000
DTSTAMP:20260502T182350Z
CREATED:20210128T020943Z
LAST-MODIFIED:20260502T182350Z
UID:9705-1614367800-1614367800@rsangels.org
SUMMARY:The Green Nurse
DESCRIPTION:We have been seeing a lot of talk by families on different forums about cannabis\, it’s a topic that is not fully understood nor much information is out there for Rett Syndrome. Our hope at Rett Syndrome Angels is to help with that.  So many variants\, so many unknowns\, what is the difference between CBD oil versus THC? How to find the balance? \n\n\n\n Let’s look at the word “endocannabinoid.” “Cannabinoid” comes from “cannabis\,” and “endo” is short for “endogenous\,” which means that it is produced naturally inside of our body. So “endocannabinoid” simply means cannabis-like substances that naturally occur inside us. Confused? Us too\, until we met The Green Nurse! Sherri Tutkus\, RN\, BSN and Co-Founder from the The Green Nurse will be providing information on approved products\, services and the importance of finding synergy within the endocannabinoid system in our bodies. Hear about the endocannabinoid system and cannabinoid therapeutics and how they relate to Rett syndrome. In this virtual session there will be time for questions from our families. (a waiver must be signed to attend).  \n\n\n\nR.S.V.P. two days prior to the event to get details on how to join us. \n \nEmail: irene@rsangels.org \n\n  \n  \n  \n\n  \n\n  \n \n \n \nR.S.V.P. two days prior to the event to get details on how to join us. \n \nEmail: irene@rsangels.org
URL:https://rsangels.org/event/the-green-nurse-2/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20210226T193000
DTEND;TZID=UTC:20210226T193000
DTSTAMP:20260502T182350Z
CREATED:20210128T020943Z
LAST-MODIFIED:20260502T182350Z
UID:6451-1614367800-1614367800@rsangels.org
SUMMARY:The Green Nurse
DESCRIPTION:We have been seeing a lot of talk by families on different forums about cannabis\, it’s a topic that is not fully understood nor much information is out there for Rett Syndrome. Our hope at Rett Syndrome Angels is to help with that.  So many variants\, so many unknowns\, what is the difference between CBD oil versus THC? How to find the balance? \n\n\n\n Let’s look at the word “endocannabinoid.” “Cannabinoid” comes from “cannabis\,” and “endo” is short for “endogenous\,” which means that it is produced naturally inside of our body. So “endocannabinoid” simply means cannabis-like substances that naturally occur inside us. Confused? Us too\, until we met The Green Nurse! Sherri Tutkus\, RN\, BSN and Co-Founder from the The Green Nurse will be providing information on approved products\, services and the importance of finding synergy within the endocannabinoid system in our bodies. Hear about the endocannabinoid system and cannabinoid therapeutics and how they relate to Rett syndrome. In this virtual session there will be time for questions from our families. (a waiver must be signed to attend).  \n\n\n\nR.S.V.P. two days prior to the event to get details on how to join us. \n \nEmail: irene@rsangels.org \n\n  \n  \n  \n\n  \n\n  \n \n \n \nR.S.V.P. two days prior to the event to get details on how to join us. \n \nEmail: irene@rsangels.org
URL:https://rsangels.org/event/the-green-nurse/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20210226T193000
DTEND;TZID=UTC:20210226T193000
DTSTAMP:20210128T020943Z
CREATED:20210128T020943Z
LAST-MODIFIED:20210128T020943Z
UID:10608-1614367800-1614367800@rsangels.org
SUMMARY:The Green Nurse
DESCRIPTION:We have been seeing a lot of talk by families on different forums about cannabis\, it’s a topic that is not fully understood nor much information is out there for Rett Syndrome. Our hope at Rett Syndrome Angels is to help with that.  So many variants\, so many unknowns\, what is the difference between CBD oil versus THC? How to find the balance? \n\n\n\n Let’s look at the word “endocannabinoid.” “Cannabinoid” comes from “cannabis\,” and “endo” is short for “endogenous\,” which means that it is produced naturally inside of our body. So “endocannabinoid” simply means cannabis-like substances that naturally occur inside us. Confused? Us too\, until we met The Green Nurse! Sherri Tutkus\, RN\, BSN and Co-Founder from the The Green Nurse will be providing information on approved products\, services and the importance of finding synergy within the endocannabinoid system in our bodies. Hear about the endocannabinoid system and cannabinoid therapeutics and how they relate to Rett syndrome. In this virtual session there will be time for questions from our families. (a waiver must be signed to attend).  \n\n\n\nR.S.V.P. two days prior to the event to get details on how to join us. \n \nEmail: irene@rsangels.org \n\n  \n  \n  \n\n  \n\n  \n \n \n \nR.S.V.P. two days prior to the event to get details on how to join us. \n \nEmail: irene@rsangels.org
URL:https://rsangels.org/event/the-green-nurse-3-2/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20210226T193000
DTEND;TZID=UTC:20210226T193000
DTSTAMP:20210128T020943Z
CREATED:20210128T020943Z
LAST-MODIFIED:20210128T020943Z
UID:10603-1614367800-1614367800@rsangels.org
SUMMARY:The Green Nurse
DESCRIPTION:We have been seeing a lot of talk by families on different forums about cannabis\, it’s a topic that is not fully understood nor much information is out there for Rett Syndrome. Our hope at Rett Syndrome Angels is to help with that.  So many variants\, so many unknowns\, what is the difference between CBD oil versus THC? How to find the balance? \n\n\n\n Let’s look at the word “endocannabinoid.” “Cannabinoid” comes from “cannabis\,” and “endo” is short for “endogenous\,” which means that it is produced naturally inside of our body. So “endocannabinoid” simply means cannabis-like substances that naturally occur inside us. Confused? Us too\, until we met The Green Nurse! Sherri Tutkus\, RN\, BSN and Co-Founder from the The Green Nurse will be providing information on approved products\, services and the importance of finding synergy within the endocannabinoid system in our bodies. Hear about the endocannabinoid system and cannabinoid therapeutics and how they relate to Rett syndrome. In this virtual session there will be time for questions from our families. (a waiver must be signed to attend).  \n\n\n\nR.S.V.P. two days prior to the event to get details on how to join us. \n \nEmail: irene@rsangels.org \n\n  \n  \n  \n\n  \n\n  \n \n \n \nR.S.V.P. two days prior to the event to get details on how to join us. \n \nEmail: irene@rsangels.org
URL:https://rsangels.org/event/the-green-nurse-2-2/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20210226T193000
DTEND;TZID=UTC:20210226T193000
DTSTAMP:20210128T020943Z
CREATED:20210128T020943Z
LAST-MODIFIED:20210128T020943Z
UID:10597-1614367800-1614367800@rsangels.org
SUMMARY:The Green Nurse
DESCRIPTION:We have been seeing a lot of talk by families on different forums about cannabis\, it’s a topic that is not fully understood nor much information is out there for Rett Syndrome. Our hope at Rett Syndrome Angels is to help with that.  So many variants\, so many unknowns\, what is the difference between CBD oil versus THC? How to find the balance? \n\n\n\n Let’s look at the word “endocannabinoid.” “Cannabinoid” comes from “cannabis\,” and “endo” is short for “endogenous\,” which means that it is produced naturally inside of our body. So “endocannabinoid” simply means cannabis-like substances that naturally occur inside us. Confused? Us too\, until we met The Green Nurse! Sherri Tutkus\, RN\, BSN and Co-Founder from the The Green Nurse will be providing information on approved products\, services and the importance of finding synergy within the endocannabinoid system in our bodies. Hear about the endocannabinoid system and cannabinoid therapeutics and how they relate to Rett syndrome. In this virtual session there will be time for questions from our families. (a waiver must be signed to attend).  \n\n\n\nR.S.V.P. two days prior to the event to get details on how to join us. \n \nEmail: irene@rsangels.org \n\n  \n  \n  \n\n  \n\n  \n \n \n \nR.S.V.P. two days prior to the event to get details on how to join us. \n \nEmail: irene@rsangels.org
URL:https://rsangels.org/event/the-green-nurse-4/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20210129T193000
DTEND;TZID=UTC:20210129T193000
DTSTAMP:20260502T182256Z
CREATED:20210128T014652Z
LAST-MODIFIED:20260502T182256Z
UID:9704-1611948600-1611948600@rsangels.org
SUMMARY:Rett Syndrome and the Pandemic (Monthly Virtual Family Check In's)
DESCRIPTION:Join us for a special time and a special family check in! Join Dr. David Lieberman\, MD\, PhD. from the Rett Program at Children’s Boston Hospital on a much needed topic\, Rett Syndrome and The Pandemic! Come listen to the newest information on the vaccine and other COVID issues relevant to families living with Rett Syndrome. As always\, our family check in’s are an informal evening to chat. These meetings give families opportunities to get much needed support on the many struggles from day to day living with Rett. Wear your pajamas\, bring your beverage\, snack of choice. There will be time for questions and answers with the doc! This discussion will not be recorded.  \n\n\n\n  \nR.S.V.P. two days prior to the event to get details on how to join us. \n \nEmail: irene@rsangels.org \n\n\n \n\n\n \n \n\n\n\n \n\n\n \n\n \nR.S.V.P. two days prior to the event to get details on how to join us.  \n \nEmail: irene@rsangels.org \n\n \n \n\n\n\n \n\n\n \n\n \nR.S.V.P. two days prior to the event to get details on how to join us.  \n \nEmail: irene@rsangels.org
URL:https://rsangels.org/event/rett-syndrome-and-the-pandemic-monthly-virtual-family-check-ins-2/
ATTACH;FMTTYPE=image/jpeg:https://rsangels.org/wp-content/uploads/2021/01/Dr.-Lieberman.jpeg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20210129T193000
DTEND;TZID=UTC:20210129T193000
DTSTAMP:20260502T182256Z
CREATED:20210128T014652Z
LAST-MODIFIED:20260502T182256Z
UID:6445-1611948600-1611948600@rsangels.org
SUMMARY:Rett Syndrome and the Pandemic (Monthly Virtual Family Check In's)
DESCRIPTION:Join us for a special time and a special family check in! Join Dr. David Lieberman\, MD\, PhD. from the Rett Program at Children’s Boston Hospital on a much needed topic\, Rett Syndrome and The Pandemic! Come listen to the newest information on the vaccine and other COVID issues relevant to families living with Rett Syndrome. As always\, our family check in’s are an informal evening to chat. These meetings give families opportunities to get much needed support on the many struggles from day to day living with Rett. Wear your pajamas\, bring your beverage\, snack of choice. There will be time for questions and answers with the doc! This discussion will not be recorded.  \n\n\n\n  \nR.S.V.P. two days prior to the event to get details on how to join us. \n \nEmail: irene@rsangels.org \n\n\n \n\n\n \n \n\n\n\n \n\n\n \n\n \nR.S.V.P. two days prior to the event to get details on how to join us.  \n \nEmail: irene@rsangels.org \n\n \n \n\n\n\n \n\n\n \n\n \nR.S.V.P. two days prior to the event to get details on how to join us.  \n \nEmail: irene@rsangels.org
URL:https://rsangels.org/event/rett-syndrome-and-the-pandemic-monthly-virtual-family-check-ins/
ATTACH;FMTTYPE=image/jpeg:https://rsangels.org/wp-content/uploads/2021/01/Dr.-Lieberman.jpeg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20210129T193000
DTEND;TZID=UTC:20210129T193000
DTSTAMP:20210128T014652Z
CREATED:20210128T014652Z
LAST-MODIFIED:20210128T014652Z
UID:10602-1611948600-1611948600@rsangels.org
SUMMARY:Rett Syndrome and the Pandemic (Monthly Virtual Family Check In's)
DESCRIPTION:Join us for a special time and a special family check in! Join Dr. David Lieberman\, MD\, PhD. from the Rett Program at Children’s Boston Hospital on a much needed topic\, Rett Syndrome and The Pandemic! Come listen to the newest information on the vaccine and other COVID issues relevant to families living with Rett Syndrome. As always\, our family check in’s are an informal evening to chat. These meetings give families opportunities to get much needed support on the many struggles from day to day living with Rett. Wear your pajamas\, bring your beverage\, snack of choice. There will be time for questions and answers with the doc! This discussion will not be recorded.  \n\n\n\n  \nR.S.V.P. two days prior to the event to get details on how to join us. \n \nEmail: irene@rsangels.org \n\n\n \n\n\n \n \n\n\n\n \n\n\n \n\n \nR.S.V.P. two days prior to the event to get details on how to join us.  \n \nEmail: irene@rsangels.org \n\n \n \n\n\n\n \n\n\n \n\n \nR.S.V.P. two days prior to the event to get details on how to join us.  \n \nEmail: irene@rsangels.org
URL:https://rsangels.org/event/rett-syndrome-and-the-pandemic-monthly-virtual-family-check-ins-2-2/
ATTACH;FMTTYPE=image/jpeg:https://rsangels.org/wp-content/uploads/2021/01/Dr.-Lieberman.jpeg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20210129T193000
DTEND;TZID=UTC:20210129T193000
DTSTAMP:20210128T014652Z
CREATED:20210128T014652Z
LAST-MODIFIED:20210128T014652Z
UID:10596-1611948600-1611948600@rsangels.org
SUMMARY:Rett Syndrome and the Pandemic (Monthly Virtual Family Check In's)
DESCRIPTION:Join us for a special time and a special family check in! Join Dr. David Lieberman\, MD\, PhD. from the Rett Program at Children’s Boston Hospital on a much needed topic\, Rett Syndrome and The Pandemic! Come listen to the newest information on the vaccine and other COVID issues relevant to families living with Rett Syndrome. As always\, our family check in’s are an informal evening to chat. These meetings give families opportunities to get much needed support on the many struggles from day to day living with Rett. Wear your pajamas\, bring your beverage\, snack of choice. There will be time for questions and answers with the doc! This discussion will not be recorded.  \n\n\n\n  \nR.S.V.P. two days prior to the event to get details on how to join us. \n \nEmail: irene@rsangels.org \n\n\n \n\n\n \n \n\n\n\n \n\n\n \n\n \nR.S.V.P. two days prior to the event to get details on how to join us.  \n \nEmail: irene@rsangels.org \n\n \n \n\n\n\n \n\n\n \n\n \nR.S.V.P. two days prior to the event to get details on how to join us.  \n \nEmail: irene@rsangels.org
URL:https://rsangels.org/event/rett-syndrome-and-the-pandemic-monthly-virtual-family-check-ins-3/
ATTACH;FMTTYPE=image/jpeg:https://rsangels.org/wp-content/uploads/2021/01/Dr.-Lieberman.jpeg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20210126T120000
DTEND;TZID=UTC:20210205T120000
DTSTAMP:20260502T182256Z
CREATED:20210128T033125Z
LAST-MODIFIED:20260502T182256Z
UID:6459-1611662400-1612526400@rsangels.org
SUMMARY:Operation Valentine
DESCRIPTION:Secret Valentine During Quarantime \n\n\n\nOperation Valentine mission is under way…..Best Buddies and Rett Syndrome Angels have partnered!!   \n\n\n\nAre you a Rett Angel that wants to get a secret valentine? We are honored and lucky to partner with a few Best Buddies chapters. These  students are making valentines for you!  The love is all around us\, get some beautiful one of a kind valentines in the mail. This is limited to our New England families living in Connecticut\, Massachusetts\, Maine\, New Hampshire\, Rhode Island and Vermont.  This is a wonderful way to start a new friendship\, maybe even pen pals!  Our girls and boys deserve some extra kindness\, some extra love and more friends!   \n\n\n\nDEADLINE: February 5th by noon!  \n\n\n\nEmail: budd0806@gmail.com
URL:https://rsangels.org/event/operation-valentine/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20210126T120000
DTEND;TZID=UTC:20210205T120000
DTSTAMP:20210128T033125Z
CREATED:20210128T033125Z
LAST-MODIFIED:20210128T033125Z
UID:10598-1611662400-1612526400@rsangels.org
SUMMARY:Operation Valentine
DESCRIPTION:Secret Valentine During Quarantime \n\n\n\nOperation Valentine mission is under way…..Best Buddies and Rett Syndrome Angels have partnered!!   \n\n\n\nAre you a Rett Angel that wants to get a secret valentine? We are honored and lucky to partner with a few Best Buddies chapters. These  students are making valentines for you!  The love is all around us\, get some beautiful one of a kind valentines in the mail. This is limited to our New England families living in Connecticut\, Massachusetts\, Maine\, New Hampshire\, Rhode Island and Vermont.  This is a wonderful way to start a new friendship\, maybe even pen pals!  Our girls and boys deserve some extra kindness\, some extra love and more friends!   \n\n\n\nDEADLINE: February 5th by noon!  \n\n\n\nEmail: budd0806@gmail.com
URL:https://rsangels.org/event/operation-valentine-2/
END:VEVENT
END:VCALENDAR