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X-WR-CALDESC:Events for Rett Syndrome Angels
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DTSTART;TZID=UTC:20250210T060000
DTEND;TZID=UTC:20250228T120000
DTSTAMP:20260428T061758
CREATED:20250209T200958Z
LAST-MODIFIED:20250209T201138Z
UID:8592-1739167200-1740744000@rsangels.org
SUMMARY:Rare Disease Day
DESCRIPTION:Rett Syndrome Awareness: Rare Disease Day 2025 \n\n\n\nEvery year on February 28th\, we come together to observe Rare Disease Day\, a global event dedicated to raising awareness for the over 7\,000 rare diseases that affect millions of people worldwide. Today\, we highlight Rett Syndrome—a rare neurological disorder that profoundly impacts individuals and families around the world. \n\n\n\nWhat is Rett Syndrome?\n\n\n\nRett Syndrome is a rare genetic disorder that primarily affects girls\, leading to a period of normal development followed by the loss of purposeful hand movements\, speech\, and motor skills. Individuals with Rett require lifelong support\, yet research continues to bring hope for treatments and a cure. \n\n\n\nAlthough October is Rett Syndrome Awareness Month\, Rare Disease Day gives us another opportunity to shine a light on Rett and amplify our voices for change. \n\n\n\nWhy Awareness Matters\n\n\n\nEven though Rett Syndrome is considered rare\, its impact is life-altering. Raising awareness helps to: \n\n\n\n\nAdvance research: More awareness leads to more funding and scientific breakthroughs.\n\n\n\nBuild community: Families affected by Rett need to connect and support each other.\n\n\n\nPromote advocacy: The more people know about Rett\, the more we can push for policies\, treatments\, and resources.\n\n\n\n\nJoin Us: Rett Is Rare\n\n\n\nThis Rare Disease Day\, we invite you to spread awareness by using our official Rett awareness profile picture on social media. Show your support by sharing the message that Rett is rare\, and our community is strong. \n\n\n\nHow You Can Help: \n\n\n\n✅ Post our profile picture on your social media accounts.✅ Use the hashtags #RettIsRare and #RettSyndromeAngels to start conversations and spread awareness.✅ Share your story if you or someone you love is affected by Rett Syndrome.✅ Support Rett research—every donation helps move us closer to a cure. \n\n\n\nTogether\, let’s use Rare Disease Day as another chance to shine a light on Rett Syndrome and make an impact. Thank you for standing with us! \n\n\n\n\n\n\n\n💜 #RettIsRare #RettSyndromeAngels
URL:https://rsangels.org/event/rare-disease-day/
ATTACH;FMTTYPE=image/png:https://rsangels.org/wp-content/uploads/2025/02/profile-rett-is-rate.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20250209T080000
DTEND;TZID=UTC:20250212T120000
DTSTAMP:20260428T061758
CREATED:20250209T195825Z
LAST-MODIFIED:20250209T195826Z
UID:8588-1739088000-1739361600@rsangels.org
SUMMARY:PROJECT SWIM
DESCRIPTION:A great opportunity for your child to exercise\, socialize and have FUN! \n\n\n\nThis wonderful swim program for our Rett community began in 2016 under the leadership of Dr. Michela Fagiolini. Over the years the program has grown and expanded. The sessions are presently held at Blodgett Pool at Harvard University. The volunteer coaches are members of the Harvard Varsity Swimming and Diving Team or another Crimson Aquatics team and they are passionate about sharing their love of the water with others. \n\n\n\nParticipants of all ages are welcome. No swimming experience required. \n\n\n\nSign ups are now open for the next session which begins on February 16. \n\n\n\nSessions are usually held on Sunday afternoons. \n\n\n\nFor more information email adaptiveswim617@gmail.com
URL:https://rsangels.org/event/project-swim/
ATTACH;FMTTYPE=image/png:https://rsangels.org/wp-content/uploads/2025/02/Copy-of-Copy-of-Copy-of-Circle-RDD-Facebook-Profile-Picture.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20250208T080000
DTEND;TZID=UTC:20250412T120000
DTSTAMP:20260428T061758
CREATED:20250102T034448Z
LAST-MODIFIED:20250209T202453Z
UID:8365-1739001600-1744459200@rsangels.org
SUMMARY:Maria McTernan Sibling College Scholarships
DESCRIPTION:Is now open! \n\n\n\nVisit https://rsangels.org/sibling-scholarship/ for application and more information
URL:https://rsangels.org/event/maria-mcternan-sibling-college-scholarship/
ATTACH;FMTTYPE=image/png:https://rsangels.org/wp-content/uploads/2025/01/sibling-scholarship-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20250101T080000
DTEND;TZID=UTC:20250118T120000
DTSTAMP:20260428T061758
CREATED:20241211T022314Z
LAST-MODIFIED:20250106T044217Z
UID:8261-1735718400-1737201600@rsangels.org
SUMMARY:Operation Valentine Sign-Ups
DESCRIPTION:Our most heartfelt event is back for 5 years straight \n\n\n\nAny family living with Rett in any of the six New England States is eligible. \n\n\n\nRemember siblings sign up if you love receiving special cards. Our card makers make several cards and there are plenty to go around! Regardless of age you can receive one too!   \n\n\n\nOperation Valentine is underway!  \n\n\n\nIt’s easy and free. \n\n\n\nSignup from January 1st till January 18th!  \n\n\n\n\n\n\n\n*pst you will receive multiple cards in the month of February \n\n\n\nAny family living with Rett in any of the six New England States are eligible. \n\n\n\nScan or Click Below to Sign Up\n\n\n\n\n\n\n\n\nclick for card Receiver\n\n\n\nclick for Card Maker
URL:https://rsangels.org/event/operation-secret-valentine-signups/
ATTACH;FMTTYPE=image/png:https://rsangels.org/wp-content/uploads/2024/12/Black-and-White-Minimalist-Professional-Initial-Logo-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20241203T000000
DTEND;TZID=UTC:20241203T235900
DTSTAMP:20260428T061758
CREATED:20241201T205330Z
LAST-MODIFIED:20241201T205331Z
UID:8240-1733184000-1733270340@rsangels.org
SUMMARY:Giving Tuesday-Rise Above Rett
DESCRIPTION:Join Rett Syndrome Angels this Giving Tuesday on December 3\, 2024 to Rise Above Rett! \n\n\n\n\n\n\n #GivingTuesday\, support #RettSyndromeAngels\, #riseaboverett \nOver 95% of our proceeds impact our mission directly to our families and community\n\n\n\n\n\n\n\nYour meaningful contribution will enrich those living with Rett Syndrome \n\n\n\n\n\n\n\n\n\n\nGiving Tuesday-Rise Above Rett \n\n\n\n\nGive to Rett
URL:https://rsangels.org/event/giving-tuesday-rise-above-rett/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20230819T110000
DTEND;TZID=UTC:20230819T140000
DTSTAMP:20260428T061758
CREATED:20230806T165022Z
LAST-MODIFIED:20241223T001054Z
UID:7485-1692442800-1692453600@rsangels.org
SUMMARY:Spec Pond Picnic
DESCRIPTION:FAMILY PICNIC @ Spec Pond \n\n\n\nDATE: SATURDAY AUGUST 19TH\, 2023 \n\n\n\nAUG 10th deadline to RSVP \n\n\n\nLOCATION: 2540 Boston Post Road (Post Office Park)\, Wilbraham MA 01095 \n\n\n\nTIME: Family arrival 11-2pm (you can come stay for full day or part of the day) \n\n\n\nCOST: $4.00 per person for additional tickets- RSAngels will pay for 4 tickets per family. \n\n\n\nLUNCH: Families are asked to bring their own lunch for their families \n\n\n\n*RS Angels will be providing desserts (dietary restrictions are considered) and drinks* \n\n\n\nDIRECTIONS: Once you get off the Mass pike (Ludlow or Palmer) it’s about 25 minutes from that exit to arrive at Spec Pond. It’s in the same plaza as our YMCA in Wilbraham. When you are facing the YMCA-(the building with faces)-turn RIGHT.  You are now entering Spec Pond. Go straight til you hit the playground: turn LEFT. We are all the way at the end on the right-the only Pavillon spot \n\n\n\nPLACES TO STAY: if you need a place to stay The Holiday Inn Express\, Ludlow MA- is right off the pike  and it’s clean\, affordable and accessible for all! It would be about 10 minutes from our event. \n\n\n\nADDITIONAL INFORMATION: only Service dogs welcomed\, therapy dogs will be asked to leave by the park staff. no alcohol allowed at any time\,  \n\n\n\nThis spectacular picnic is going to be like no other picnic\, a low-key get together for time to become even more acquainted!  But with lots to do!! There will be corn hole\, music\, volleyball\, a small beach front (roll up only wheelchair to water)\, splash pad\, and accessible park. We will not have access to the basketball or other fields surrounding our reserved space. We will be under our own pavilion all together\, with access to a kitchen with a refrigerator (please mark your items if needed to use it). And an accessible bathroom right under the pavillion. Spec pond water and splash pad is fenced off allowing for assurance of safety-wanderers will be safe always. We can’t wait to see you!  \n\n\n\nOnly for families living in the New England states \n\n\n\n \n\n\n\nThis incredible group has done it again! Making a generous contribution to the Family Picnic in Wilbraham and will be attending this event with us! If\, you have questions about DayBue this is a great opportunity to talk to them in person\, we encourage you to say hello regardless!!  \n\n\n\nSignups are required for everyone attending!   \n\n\n\nWe hope you can join us and come see what surprises we have in stored for our families!!  \n\n\n\nREGISTER HERE \n\n\n\nFor questions: email Maggie@rsangels.org
URL:https://rsangels.org/event/7485/
LOCATION:Spec Pond-Post Office Park Wilbraham\, MA\, 2540 Boston Post Road\, Wilbraham\, Massachusetts\, 01095
ATTACH;FMTTYPE=image/png:https://rsangels.org/wp-content/uploads/2023/08/Copy-of-RSAM-picnic-Rounded-Business-Card.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20221222T190000
DTEND;TZID=UTC:20221222T190000
DTSTAMP:20260428T061758
CREATED:20221202T021645Z
LAST-MODIFIED:20221202T122025Z
UID:7264-1671735600-1671735600@rsangels.org
SUMMARY:Santa Stories
DESCRIPTION: Ho Ho Ho!Santa is Back! Our popular event is back for the 3rd time!  \n\n\n\nThe Board at Rett Syndrome Angels want to end the year once again by giving our families a  little magical experience. A time that can bring joy\, comfort\, hope and bring all of our inner child out with a little believing or make believing 😉  \n\n\n\n No matter what your religious beliefs are\, the guy in the red suit can bring that to all of us. Santa will read a nondenominational story and a Christmas story. Everyone will sing with Santa and have a chance to ask him questions with in the hour on December 22nd at 7:00pm (eastern standard time). This exclusive invite is for all our families living with MeCP2 disorders no matter where you live!  Our elves on the board have been chatting with Santa and he is excited to meet all of your children\, beloved Rett Angels no matter their age.  \n\n\n\nFeel free to share this invite to other families on this Rett journey and every family can invite up to 2 friends or family members to join them on this very jolly occasion.  \n\n\n\nHAPPY HOLIDAYS!                   REGISTER HERE : https://tinyurl.com/2p8x4km8
URL:https://rsangels.org/event/santa-stories/
ATTACH;FMTTYPE=image/png:https://rsangels.org/wp-content/uploads/2022/12/Screen-Shot-2022-12-01-at-9.12.53-PM.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20221002T123000
DTEND;TZID=UTC:20221002T153000
DTSTAMP:20260428T061758
CREATED:20220823T221102Z
LAST-MODIFIED:20220823T221102Z
UID:7152-1664713800-1664724600@rsangels.org
SUMMARY:Family Picnic & Blue Sky Day
DESCRIPTION:TWO Events ONE Day! \n\n\n\nWe are celebrating Blue Sky Day and a family picnic in person after 2 years. This event is outdoors at the beautiful Mass Audubon’s Broad Meadow Brook Conservation Center and Wildlife Sanctuary\, Worcester MA. A central location for families to come together and have fun. Come meet our volunteer board members and doctors from Children’s\, find out what is happening in the Rett world all the while meeting new and old friends.. RSAM will provide food and activities for all to enjoy. This event is free for all our families living in the New England states.    \n\n\n\nMUST RSVP TO COME!  https://tinyurl.com/22BlueSkyDay
URL:https://rsangels.org/event/family-picnic-blue-sky-day/
ATTACH;FMTTYPE=image/png:https://rsangels.org/wp-content/uploads/2022/08/BSD-profile-pic-website-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20220418T080000
DTEND;TZID=UTC:20220418T230000
DTSTAMP:20260428T061758
CREATED:20220226T231328Z
LAST-MODIFIED:20220226T231329Z
UID:7063-1650268800-1650322800@rsangels.org
SUMMARY:Team Rett Run @ the Boston Marathon®
DESCRIPTION:Team Rett is running at the Boston Marathon® representing RS Angels – support the team\, support our efforts to raise awareness or simply support our fundraiser! \n\n\n\nFor more information\, visit our official Team Rett page here. \n\n\n\nYou can follow along for current updates on our TEAM RETT Facebook page here! \n\n\n\nOR if you’re a real go-getter you can just jump right to donating here!
URL:https://rsangels.org/event/team-rett-run-the-boston-marathon-2/
ATTACH;FMTTYPE=image/jpeg:https://rsangels.org/wp-content/uploads/2021/12/Team-Rett-2022-header-scaled.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20220331T193000
DTEND;TZID=UTC:20220331T193000
DTSTAMP:20260428T061758
CREATED:20220309T022709Z
LAST-MODIFIED:20220309T022709Z
UID:7125-1648755000-1648755000@rsangels.org
SUMMARY:Virtual House Call with Dr. Lieberman
DESCRIPTION:We welcome you to join us at RS Angels and Doctor David Lieberman\, MD\, PhD  Assistant\, Department of Neurology (Boston Children’s Rett Clinic) in your home virtually on March 31st at 7:30pm EST.  Dr. L will be talking about Covid\, Rett Clinic Updates\, Boston Children’s Rett Research Projects\, Upcoming Clinical Trials and as always there will be time for questions and answers from our caregivers.   \n\n\n\nCLICK TO RSVP HERE
URL:https://rsangels.org/event/virtual-house-call-with-dr-lieberman/
ATTACH;FMTTYPE=image/png:https://rsangels.org/wp-content/uploads/2022/03/Dr.-L.-for-rs-angels-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20220228T060000
DTEND;TZID=UTC:20220228T230000
DTSTAMP:20260428T061758
CREATED:20220226T162106Z
LAST-MODIFIED:20220226T162107Z
UID:7056-1646028000-1646089200@rsangels.org
SUMMARY:Rett is Rare Disease Day Campaign
DESCRIPTION:Join Rett Syndrome Angels & Rare Disease Day Campaign!(2.28.22) \n\n\n\nRett syndrome is a rare\, devastating disease affecting a special person in my life.  Please help make Rett syndrome not rare\, but gone!   \n\n\n\nShare now until Feb. 28th!  \n\n\n\nSpread the word and share.About a disease that is rare. Increase awareness of Rett syndrome and please let others know of this campaign by sharing through your social media. \n\n\n\nIn honor of Rare Disease Day 2022 we are asking you to help our Team Rett Marathon Runners.   They are dedicated to raising awareness of Rett syndrome and to raising funds for our Rett Angels for programming\, enrichment and research. Please help support them as they are working to support our loved ones. \n\n\n\nEvery size donation brings us closer to treatments and a cure! \n\n\n\nPlease read the compelling stories from the 5 members of Team Rett who will be running in the 2022 Boston Marathon®.  Please donate to one or more of these dedicated Rett Runners.  \n\n\n\nDonations can be made by this link:  Team Rett Link
URL:https://rsangels.org/event/rett-is-rare-disease-day-campaign/
LOCATION:All your social media platforms
ATTACH;FMTTYPE=image/png:https://rsangels.org/wp-content/uploads/2022/02/Circle-RDD.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20211023T113000
DTEND;TZID=UTC:20211023T153000
DTSTAMP:20260428T061758
CREATED:20211006T131411Z
LAST-MODIFIED:20211006T131412Z
UID:6888-1634988600-1635003000@rsangels.org
SUMMARY:Blue Sky Day and Family Picnic
DESCRIPTION:TWO DAY EVENTS-FREE!  Blue Sky Day and our first Halloween Picnic. Join us for a COVID friendly get together\, families bring their own picnics and RS Angels will provide the rest! We will have monster mash dancing\, speakers\, pumpkin decorating and so much more. These joined events are all about fun and enjoying much needed face to face time together. Don’t forget to dress up in your costume!  \n\n\n\nRVSP as soon as possible BUT no later than Oct. 18th.  \n\n\n\nClick link to RSVP:  \n\n\n\nhttps://forms.gle/d5WLcvrvWCMN1Z8J6
URL:https://rsangels.org/event/blue-sky-day-and-family-picnic/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20211011T080000
DTEND;TZID=UTC:20211011T170000
DTSTAMP:20260428T061758
CREATED:20210422T122345Z
LAST-MODIFIED:20210427T193557Z
UID:6650-1633939200-1633971600@rsangels.org
SUMMARY:Team Rett Run @ the Boston Marathon®
DESCRIPTION:Team Rett is running at the Boston Marathon® representing RS Angels – support the team\, support our efforts to raise awareness or simply support our fundraiser! \n\n\n\nFor more information\, visit our official Team Rett page here. \n\n\n\nYou can follow along for current updates on our TEAM RETT Facebook page here and our Facebook EVENT page is here. \n\n\n\nOR if you’re a real go-getter you can just jump right to donating here!
URL:https://rsangels.org/event/team-rett-run-the-boston-marathon/
LOCATION:Boston Marathon\, E Main St\, Hopkinton\, Massachusetts\, 01748\, United States
CATEGORIES:Fundraisers
ATTACH;FMTTYPE=image/jpeg:https://rsangels.org/wp-content/uploads/2021/04/team-rett-header-2021.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20210326T193000
DTEND;TZID=UTC:20210326T193000
DTSTAMP:20260428T061758
CREATED:20201110T184447Z
LAST-MODIFIED:20210128T031312Z
UID:6408-1616787000-1616787000@rsangels.org
SUMMARY:Stay tuned....March Monthly Family Check In
DESCRIPTION:Stay tuned for March topic…. (wishes can come true) \n\n\n\n \n\n\n\nCome join other Rett Syndrome Angels families for an informal evening to chat. Often parents lead the way on conversational topics. These meetings give families opportunities to get much needed support on the many struggles from day to day living with Rett.  Wear your pajamas\, bring your beverage\, snack of choice and get resources\, tips or just a lending ear from parents living this journey with you.  \n\n\n\n R.S.V.P. two days prior to the event to get details on how to join us.  \n\n\n\n Email: irene@rsangels.org
URL:https://rsangels.org/event/monthly-virtual-family-check-ins-3/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20210226T193000
DTEND;TZID=UTC:20210226T193000
DTSTAMP:20260428T061758
CREATED:20210128T020943Z
LAST-MODIFIED:20210128T020948Z
UID:6451-1614367800-1614367800@rsangels.org
SUMMARY:The Green Nurse
DESCRIPTION:We have been seeing a lot of talk by families on different forums about cannabis\, it’s a topic that is not fully understood nor much information is out there for Rett Syndrome. Our hope at Rett Syndrome Angels is to help with that.  So many variants\, so many unknowns\, what is the difference between CBD oil versus THC? How to find the balance? \n\n\n\n Let’s look at the word “endocannabinoid.” “Cannabinoid” comes from “cannabis\,” and “endo” is short for “endogenous\,” which means that it is produced naturally inside of our body. So “endocannabinoid” simply means cannabis-like substances that naturally occur inside us. Confused? Us too\, until we met The Green Nurse! Sherri Tutkus\, RN\, BSN and Co-Founder from the The Green Nurse will be providing information on approved products\, services and the importance of finding synergy within the endocannabinoid system in our bodies. Hear about the endocannabinoid system and cannabinoid therapeutics and how they relate to Rett syndrome. In this virtual session there will be time for questions from our families. (a waiver must be signed to attend).  \n\n\n\nR.S.V.P. two days prior to the event to get details on how to join us. \n \nEmail: irene@rsangels.org \n\n  \n  \n  \n\n  \n\n  \n \n \n \nR.S.V.P. two days prior to the event to get details on how to join us. \n \nEmail: irene@rsangels.org
URL:https://rsangels.org/event/the-green-nurse/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20210129T193000
DTEND;TZID=UTC:20210129T193000
DTSTAMP:20260428T061758
CREATED:20210128T014652Z
LAST-MODIFIED:20210128T014854Z
UID:6445-1611948600-1611948600@rsangels.org
SUMMARY:Rett Syndrome and the Pandemic (Monthly Virtual Family Check In's)
DESCRIPTION:Join us for a special time and a special family check in! Join Dr. David Lieberman\, MD\, PhD. from the Rett Program at Children’s Boston Hospital on a much needed topic\, Rett Syndrome and The Pandemic! Come listen to the newest information on the vaccine and other COVID issues relevant to families living with Rett Syndrome. As always\, our family check in’s are an informal evening to chat. These meetings give families opportunities to get much needed support on the many struggles from day to day living with Rett. Wear your pajamas\, bring your beverage\, snack of choice. There will be time for questions and answers with the doc! This discussion will not be recorded.  \n\n\n\n  \nR.S.V.P. two days prior to the event to get details on how to join us. \n \nEmail: irene@rsangels.org \n\n\n \n\n\n \n \n\n\n\n \n\n\n \n\n \nR.S.V.P. two days prior to the event to get details on how to join us.  \n \nEmail: irene@rsangels.org \n\n \n \n\n\n\n \n\n\n \n\n \nR.S.V.P. two days prior to the event to get details on how to join us.  \n \nEmail: irene@rsangels.org
URL:https://rsangels.org/event/rett-syndrome-and-the-pandemic-monthly-virtual-family-check-ins/
ATTACH;FMTTYPE=image/jpeg:https://rsangels.org/wp-content/uploads/2021/01/Dr.-Lieberman.jpeg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20210126T120000
DTEND;TZID=UTC:20210205T120000
DTSTAMP:20260428T061758
CREATED:20210128T033125Z
LAST-MODIFIED:20210128T135810Z
UID:6459-1611662400-1612526400@rsangels.org
SUMMARY:Operation Valentine
DESCRIPTION:Secret Valentine During Quarantime \n\n\n\nOperation Valentine mission is under way…..Best Buddies and Rett Syndrome Angels have partnered!!   \n\n\n\nAre you a Rett Angel that wants to get a secret valentine? We are honored and lucky to partner with a few Best Buddies chapters. These  students are making valentines for you!  The love is all around us\, get some beautiful one of a kind valentines in the mail. This is limited to our New England families living in Connecticut\, Massachusetts\, Maine\, New Hampshire\, Rhode Island and Vermont.  This is a wonderful way to start a new friendship\, maybe even pen pals!  Our girls and boys deserve some extra kindness\, some extra love and more friends!   \n\n\n\nDEADLINE: February 5th by noon!  \n\n\n\nEmail: budd0806@gmail.com
URL:https://rsangels.org/event/operation-valentine/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20210121T000000
DTEND;TZID=UTC:20210301T235959
DTSTAMP:20260428T061758
CREATED:20210127T164743Z
LAST-MODIFIED:20210128T134525Z
UID:6435-1611187200-1614643199@rsangels.org
SUMMARY:Maria McTernan Sibling Scholarship
DESCRIPTION:Read more about the scholarship here – or click on the link below to fill out the form.
URL:https://rsangels.org/event/maria-mcternan-sibling-scholarship/
ATTACH;FMTTYPE=image/jpeg:https://rsangels.org/wp-content/uploads/2021/01/RSA-headers-scholarship-scaled.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20210120T193000
DTEND;TZID=UTC:20210120T193000
DTSTAMP:20260428T061758
CREATED:20201110T184315Z
LAST-MODIFIED:20201110T184315Z
UID:6407-1611171000-1611171000@rsangels.org
SUMMARY:Monthly Virtual Family Check In's
DESCRIPTION:Come join other Rett Syndrome Angels families for an informal evening to chat. Often parents lead the way on conversational topics. These meetings give families opportunities to get much needed support on the many struggles from day to day living with Rett.  Wear your pajamas\, bring your beverage\, snack of choice and get resources\, tips or just a lending ear from parents living this journey with you.  \n\n\n\n R.S.V.P. two days prior to the event to get details on how to join us.  \n\n\n\n Email: irene@rsangels.org
URL:https://rsangels.org/event/monthly-virtual-family-check-ins-2/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20201216T193000
DTEND;TZID=UTC:20201216T193000
DTSTAMP:20260428T061758
CREATED:20201110T183944Z
LAST-MODIFIED:20201115T195123Z
UID:6406-1608147000-1608147000@rsangels.org
SUMMARY:Monthly Virtual Family Check In's
DESCRIPTION:Come join other Rett Syndrome Angels families for an informal evening to chat. Often parents lead the way on conversational topics. These meetings give families opportunities to get much needed support on the many struggles from day to day living with Rett.  Wear your pajamas\, bring your beverage\, snack of choice and get resources\, tips or just a lending ear from parents living this journey with you.  \n\n\n\n R.S.V.P. two days prior to the event to get details on how to join us.  \n\n\n\n Email: irene@rsangels.org
URL:https://rsangels.org/event/virtual-monthly-family-check-ins/
CATEGORIES:Virtual Check-
ATTACH;FMTTYPE=image/png:https://rsangels.org/wp-content/uploads/2020/09/RSAngels-Round-2000x1000px.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20201203T193000
DTEND;TZID=UTC:20201203T203000
DTSTAMP:20260428T061758
CREATED:20201110T190323Z
LAST-MODIFIED:20201115T193552Z
UID:6409-1607023800-1607027400@rsangels.org
SUMMARY:ABLE ACCOUNTS/SPECIAL NEEDS TRUSTS (WEBINAR)
DESCRIPTION:During this webinar caregivers/guardians will learn ways to secure your loved ones financial future.  Annette Hines\, ESQ from the Special Needs Law Group of Massachusetts  has graciously offered to present and offer guidance. An important topic for all of us families; as we think about the future. Annette will explain the difference between Special Needs Trusts and ABLE Accounts and after the presentation there will be time for Q & A.  We hope you can join us for this important topic.  \n\n\n\nRSVP by Nov. 30th to get webinar information   \n\n\n\nEmail: irene@rsangels.org
URL:https://rsangels.org/event/able-accounts-special-needs-trusts-webinar/
ATTACH;FMTTYPE=image/png:https://rsangels.org/wp-content/uploads/2019/04/special-needs-law-group.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20201118T193000
DTEND;TZID=UTC:20201118T193000
DTSTAMP:20260428T061758
CREATED:20201110T161750Z
LAST-MODIFIED:20201110T161750Z
UID:6405-1605727800-1605727800@rsangels.org
SUMMARY:Monthly Virtual Family Check In's
DESCRIPTION:Come join other Rett Syndrome Angels families for an informal evening to chat. Often parents lead the way on conversational topics. These meetings give families opportunities to get much needed support on the many struggles from day to day living with Rett.  Wear your pajamas\, bring your beverage\, snack of choice and get resources\, tips or just a lending ear from parents living this journey with you.  \n\n\n\n R.S.V.P. two days prior to the event to get details on how to join us.  \n\n\n\n Email: irene@rsangels.org
URL:https://rsangels.org/event/monthly-virtual-family-check-ins/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20201024T190000
DTEND;TZID=America/New_York:20201024T233000
DTSTAMP:20260428T061758
CREATED:20200911T211222Z
LAST-MODIFIED:20250908T124207Z
UID:5757-1603566000-1603582200@rsangels.org
SUMMARY:Purple Sky Night
DESCRIPTION:PURPLE SKY NIGHT\nThe Grand Finale      Saturday Evening\nTo further honor the children and adults with Rett syndrome and to recognize October as Rett Syndrome Awareness Month\, the Boston sky will be lit in purple on the night of October 24. Purple is the color symbolic of Rett syndrome. Boston City Hall and Plaza\, the Zakim Bridge and other Boston landmarks will glow in purple.\n\nThank you to Mayor Walsh for arranging these breathtaking views!\n___________________________________
URL:https://rsangels.org/event/purple-sky-night/
ATTACH;FMTTYPE=image/jpeg:https://rsangels.org/wp-content/uploads/2019/08/zakim.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20201024T190000
DTEND;TZID=America/New_York:20201024T233000
DTSTAMP:20260428T061758
CREATED:20200911T211222Z
LAST-MODIFIED:20250908T124238Z
UID:6404-1603566000-1603582200@rsangels.org
SUMMARY:Purple Sky Night
DESCRIPTION:PURPLE SKY NIGHT\nThe Grand Finale      Saturday Evening\nTo further honor the children and adults with Rett syndrome and to recognize October as Rett Syndrome Awareness Month\, the Boston sky will be lit in purple on the night of October 24. Purple is the color symbolic of Rett syndrome. Boston City Hall and Plaza\, the Zakim Bridge and other Boston landmarks will glow in purple.\n\nThank you to Mayor Walsh for arranging these breathtaking views!\n___________________________________
URL:https://rsangels.org/event/purple-sky-night-2/
ATTACH;FMTTYPE=image/jpeg:https://rsangels.org/wp-content/uploads/2019/08/zakim.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20201024T103000
DTEND;TZID=America/New_York:20201024T120000
DTSTAMP:20260428T061758
CREATED:20200828T083524Z
LAST-MODIFIED:20200828T083524Z
UID:5470-1603535400-1603540800@rsangels.org
SUMMARY:World Family Celebration
DESCRIPTION:BLUE SKY DAY\n WORLD FAMILY CELEBRATION! \n  \nThis one is one to remember….. \n \nOnce again\, we will come together as a community to honor and to celebrate our very special children This year we will be watching and admiring from the comfort of our home starting at 10:30am EST. \n  \nJoin in our virtual observance this year will be families from around the world who are also facing the challenges of living with Rett Syndrome.  \nWe invite families from around the world to join us in this celebration of our amazing children. There are two ways families can participate.  We need your help to make this day amazing!  The festivities will include videos/photos how amazing our rett angels are the tradition of honoring our children in a very personal way from around the world. \n        \nTIME TO CELEBRATE OUR ANGELS! \n VIEWING INFORMATION:  \n10:30am united states\n (Eastern Standard Time) \nhttps://us02web.zoom.us/j/89371240017?pwd=TGMrRmlPWWs5VTZBUUY5MVNzcmUwdz09\nPasscode: family\nOr iPhone one-tap :\nUS: +13017158592\,\,89371240017#\,\,\,\,\,\,0#\,\,327783# or +13126266799\,\,89371240017#\,\,\,\,\,\,0#\,\,327783#\nOr Telephone:\nDial(for higher quality\, dial a number based on your current location):\nUS: +1 301 715 8592 or +1 312 626 6799 or +1 646 876 9923 or +1 669 900 6833 or +1 253 215 8782 or +1 346 248 7799 or +1 408 638 0968\nWebinar ID: 893 7124 0017\nPasscode: 327783\nInternational numbers available: https://us02web.zoom.us/u/kcFl9RdwI9 \n                                              \nDid you know Boston has continued on this event for ten consecutive years despite many challenges? Not even a Pandemic is going to stop us! It all started  as Blue Sky Girls with an idea from  Dr. Sasha Djukic from the Rett Clinic/ New York to have families from all over the world gather at the same time and climb stairs. \n“Each year in October the Blue Sky Girls was an event that is celebrated at multiple sites around the world. The purpose of the event is to celebrate Rett Syndrome Month and the strength and will that girls with Rett Syndrome have shown to keep going no matter the odds and the difficulties they face every minute of their lives. \nClimbing stairs is a symbolic gesture\, because climbing takes you upward and forward even if it is difficult.”  Just the past recent years\, the name changed to Blue Sky Day as more boys have been diagnosed with this disorder. \n \n \nThe Boston Children’s Hospital Rett Program Team celebrating Blue Sky Day at our Purple Sky Night themed selfie station 2019. \n  \nContact us: rettsyndromemassachusetts@gmail.com   \n \nSTAY SOCIAL (follow us)\n\n\n 
URL:https://rsangels.org/event/annual-blue-sky-day/
CATEGORIES:Family Event
ATTACH;FMTTYPE=image/jpeg:https://rsangels.org/wp-content/uploads/2019/11/RSAM-1112219-a.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20201024T103000
DTEND;TZID=America/New_York:20201024T120000
DTSTAMP:20260428T061758
CREATED:20200828T083524Z
LAST-MODIFIED:20200828T083524Z
UID:6400-1603535400-1603540800@rsangels.org
SUMMARY:World Family Celebration
DESCRIPTION:BLUE SKY DAY\n WORLD FAMILY CELEBRATION! \n  \nThis one is one to remember….. \n \nOnce again\, we will come together as a community to honor and to celebrate our very special children This year we will be watching and admiring from the comfort of our home starting at 10:30am EST. \n  \nJoin in our virtual observance this year will be families from around the world who are also facing the challenges of living with Rett Syndrome.  \nWe invite families from around the world to join us in this celebration of our amazing children. There are two ways families can participate.  We need your help to make this day amazing!  The festivities will include videos/photos how amazing our rett angels are the tradition of honoring our children in a very personal way from around the world. \n        \nTIME TO CELEBRATE OUR ANGELS! \n VIEWING INFORMATION:  \n10:30am united states\n (Eastern Standard Time) \nhttps://us02web.zoom.us/j/89371240017?pwd=TGMrRmlPWWs5VTZBUUY5MVNzcmUwdz09\nPasscode: family\nOr iPhone one-tap :\nUS: +13017158592\,\,89371240017#\,\,\,\,\,\,0#\,\,327783# or +13126266799\,\,89371240017#\,\,\,\,\,\,0#\,\,327783#\nOr Telephone:\nDial(for higher quality\, dial a number based on your current location):\nUS: +1 301 715 8592 or +1 312 626 6799 or +1 646 876 9923 or +1 669 900 6833 or +1 253 215 8782 or +1 346 248 7799 or +1 408 638 0968\nWebinar ID: 893 7124 0017\nPasscode: 327783\nInternational numbers available: https://us02web.zoom.us/u/kcFl9RdwI9 \n                                              \nDid you know Boston has continued on this event for ten consecutive years despite many challenges? Not even a Pandemic is going to stop us! It all started  as Blue Sky Girls with an idea from  Dr. Sasha Djukic from the Rett Clinic/ New York to have families from all over the world gather at the same time and climb stairs. \n“Each year in October the Blue Sky Girls was an event that is celebrated at multiple sites around the world. The purpose of the event is to celebrate Rett Syndrome Month and the strength and will that girls with Rett Syndrome have shown to keep going no matter the odds and the difficulties they face every minute of their lives. \nClimbing stairs is a symbolic gesture\, because climbing takes you upward and forward even if it is difficult.”  Just the past recent years\, the name changed to Blue Sky Day as more boys have been diagnosed with this disorder. \n \n \nThe Boston Children’s Hospital Rett Program Team celebrating Blue Sky Day at our Purple Sky Night themed selfie station 2019. \n  \nContact us: rettsyndromemassachusetts@gmail.com   \n \nSTAY SOCIAL (follow us)\n\n\n 
URL:https://rsangels.org/event/annual-blue-sky-day-2/
CATEGORIES:Family Event
ATTACH;FMTTYPE=image/jpeg:https://rsangels.org/wp-content/uploads/2019/11/RSAM-1112219-a.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20201017T000000
DTEND;TZID=America/New_York:20201017T235959
DTSTAMP:20260428T061758
CREATED:20200910T152522Z
LAST-MODIFIED:20200910T152522Z
UID:5699-1602892800-1602979199@rsangels.org
SUMMARY:Scientific/Research Webinar
DESCRIPTION:Download the Agenda for the BCH Rett Scientific Symposium \nLook at the progress Rett research has made in the last ten years! \nThank you to Dr. Michela Fagiolini for spearheading this virtual event. \nShe is gathering prominent researchers and clinicians who will participate\, presenting information and answering your questions. \nThis is sure to be a great opportunity for us.  Make sure to sign up to get the updated information as we announce it! \nSign-Up to View our Virtual Event\n Click Here \nSTAY SOCIAL (follow us)
URL:https://rsangels.org/event/scientific-research-webinar/
CATEGORIES:Education
ATTACH;FMTTYPE=image/jpeg:https://rsangels.org/wp-content/uploads/2020/09/x-chromosome.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20201017T000000
DTEND;TZID=America/New_York:20201017T235959
DTSTAMP:20260428T061758
CREATED:20200910T152522Z
LAST-MODIFIED:20200910T152522Z
UID:6403-1602892800-1602979199@rsangels.org
SUMMARY:Scientific/Research Webinar
DESCRIPTION:Download the Agenda for the BCH Rett Scientific Symposium \nLook at the progress Rett research has made in the last ten years! \nThank you to Dr. Michela Fagiolini for spearheading this virtual event. \nShe is gathering prominent researchers and clinicians who will participate\, presenting information and answering your questions. \nThis is sure to be a great opportunity for us.  Make sure to sign up to get the updated information as we announce it! \nSign-Up to View our Virtual Event\n Click Here \nSTAY SOCIAL (follow us)
URL:https://rsangels.org/event/scientific-research-webinar-2/
CATEGORIES:Education
ATTACH;FMTTYPE=image/jpeg:https://rsangels.org/wp-content/uploads/2020/09/x-chromosome.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20201010T000000
DTEND;TZID=America/New_York:20201010T235959
DTSTAMP:20260428T061758
CREATED:20200910T152329Z
LAST-MODIFIED:20200910T152329Z
UID:6402-1602288000-1602374399@rsangels.org
SUMMARY:Premier Showing of RSAM’s Sibling Video 
DESCRIPTION:Great thanks to Sara Anastasi and Hannah Sweeney two of our 2020 Sibling Scholarship recipients and Michael Anastasi for creating this video starring 14 of our RSAM families.  Get your popcorn ready for this at home theater event.  This touching and beautiful video is one you don’t want to miss! \nWe definitely give it FIVE stars!\nWe will share the private link closer to the date! \n  \nSign-Up to View our Virtual Events\n Click Here \nSTAY SOCIAL (follow us)
URL:https://rsangels.org/event/premier-showing-of-rsams-sibling-video-2/
CATEGORIES:Family Event
ATTACH;FMTTYPE=image/png:https://rsangels.org/wp-content/uploads/2020/09/movie-night.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20201010T000000
DTEND;TZID=America/New_York:20201010T235959
DTSTAMP:20260428T061758
CREATED:20200910T152329Z
LAST-MODIFIED:20200910T152329Z
UID:5698-1602288000-1602374399@rsangels.org
SUMMARY:Premier Showing of RSAM’s Sibling Video 
DESCRIPTION:Great thanks to Sara Anastasi and Hannah Sweeney two of our 2020 Sibling Scholarship recipients and Michael Anastasi for creating this video starring 14 of our RSAM families.  Get your popcorn ready for this at home theater event.  This touching and beautiful video is one you don’t want to miss! \nWe definitely give it FIVE stars!\nWe will share the private link closer to the date! \n  \nSign-Up to View our Virtual Events\n Click Here \nSTAY SOCIAL (follow us)
URL:https://rsangels.org/event/premier-showing-of-rsams-sibling-video/
CATEGORIES:Family Event
ATTACH;FMTTYPE=image/png:https://rsangels.org/wp-content/uploads/2020/09/movie-night.png
END:VEVENT
END:VCALENDAR