Rett Syndrome Angels

Equine Movement Experience
2025-07-20 09:00 - 11:00, 2025-08-24 09:00 - 11:00, 2025-09-21 09:00 - 11:00 UTC
Pre Registration Required

Sponsored by Acadia Pharmaceuticals

Sign up for a free 30 minute hippotherapy session with https://www.cloverphysicaltherapy.com/ in Pepperell, MA on Sunday mornings throughout the summer.

Sand, Sun & Speaking Fun
2025-08-23 10:00 - 15:00
Rett Camp Day 2025

Location: Waterford, CTDate: Saturday, August 23, 2025 (10:00am to 3:00pm)Rain Date: This is a one-day event — there is no rain date.

A Day of Joy, Communication & Community

Join Rett Syndrome Angels for a full day of beachside fun and meaningful connection designed for individuals with Rett Syndrome and their families.

Activities Include:

🏊‍♀️ Swimming

🔍 Interactive scavenger hunt

💬 AAC and low-tech communication exploration

🏖️ Beach fun, community time, and more!

A licensed speech-language pathologist from Village Voices, will lead the scavenger hunt with built-in communication supports. Whether you’re new to the communication journey, need a refresher, or just want to join the fun—this day is for you. No experience needed!

Registration Information

$30 Registration Fee

Covers up to 4 people per family (immediate family/caretakers only)

Please note: Registration does not guarantee participation due to limited availability

If selected, you’ll receive an email with instructions to confirm your spot and pay the $30 final participation fee. Be sure to respond promptly—spots will fill quickly!

Last year’s event had a waitlist, so timely follow-up is key!

📣 Important Notes

All camp activities are designed to be accessible and inclusive

Low-tech communication boards will be available on-site

Held at the beach pavilion with full access to restrooms and shaded areas

Accessible playground

Questions?

Contact Maggie at Maggie@rsangels.org

Social Story for Rett Camp 2025

My Day at Rett Camp

😊 Going to Camp

Today I go to Rett Camp by the ocean. I will have fun with friends. When I arrive, we will do scratch art and hair fun activities. The helpers are nice and will take care of me. I can communicate with them using my AAC device, communication board, or in my own way.

📷 Picture Time

We will walk to the ocean to take a group photo. I can see the beautiful water. I can be in the picture with my friends, or I can choose to watch from nearby. I can tell the helpers what I want using my communication device or board. Both choices are great.

🔍 Scavenger Hunt Teams

The helpers will make teams for a scavenger hunt. I will be on a team with other campers. My team will help me look for special things. I can use my AAC device to share ideas with my team. We will work together and have fun.

🍎 Lunch Time

Time to eat! The RS Angels will bring snacks and food for lunch. I can eat what I like and leave what I don’t want. I can tell helpers about my food preferences using my communication device. There will be a comfortable place to sit and eat.

💦 Splash Attack

After lunch, we play with water in an activity called “Splash Attack.” I can use my AAC device to tell helpers if I want to get wet and play in the water, or if I prefer to watch my friends play. The helpers will keep everyone safe and respect my choices.

🏖️ Beach Fun Time

This is my free time at the beach! I can touch the sand, look for pretty shells, or just sit and watch the waves. I can communicate my choices using my AAC device or communication board. I choose what feels good for me. The helpers will stay close by and understand how I communicate.

👋 Time to Go Home

At the end of our fun day, it’s time to say goodbye. I will pack up my things and say goodbye to my new friends and helpers using my communication device, AAC board, or however I like to communicate. I might feel happy or sad – both feelings are okay.

🌟 What I Know About Rett Camp

• The helpers keep me safe all day • I can do activities in my own way • I can take breaks whenever I need them • All my friends at camp are unique and special • I belong at this camp • Everyone understands how I communicate • I can use my AAC device, communication board, or communicate in my own special way • The helpers know different ways to communicate and will listen to me

🌊 I’m going to have a great day at the beach with my friends! 🌊

THANK YOU TO OUR DONORS!

Everyone deserves the opportunity to engage fully in life’s activities. EaZyHold’s mission is to deliver innovative tools that support individuals with physical challenge. We are grateful for their donation to make our day CAMP-TASTASTIC!

THANK YOU VILLAGE VOICES FOR YOUR CREATIVITY FOR OUR EVENT!

Contact Maggie at Maggie@rsangels.org

REGISTRATION IS CLOSED

see ya at the beach

RettEd Day coming to Boston
2025-09-13 09:00 - 17:00
Join us for RettEd Day — immersive, full-day educational events happening at our Center of Excellence clinics nationwide. These special gatherings offer expert-led sessions, helpful local resources, and the chance to connect with other families and caregivers in your community. This event is going to be one you don’t want to miss! From 3:30-5:00pm there will be a social hour!

Click below on International Rett Syndrome Foundation below as the details unfold! We hope to see you there.

RettEd Day BCH

Livy's V.I.P. Dance
2025-10-05 14:00 - 17:00
A Royal Invitation

You’re cordially invited to dance, dine, and dress up with Ariel, Cinderella, Prince Eric, and Prince Charming! Join us for appetizers, dancing, and fairy tale fun. Dress like royalty if you wish, or come as comfortable as you’d like for our enchanted celebration – after all, true magic comes from within!”

Join us for a Royal Meet & Greet!

NEW LOCATION!

Wilbraham Senior Center, 250 Springfield Street. You must have ticket purchased to attend!

Meet Ariel, Cinderella, Prince Eric, and Prince Charming!

✨ Dancing

✨ Food

✨ Photos

✨ Magical memories

In honor of Olivia Hillario and to those who lost their life from Rett Syndrome

THANK YOU TO OUR EVENT DONOR!

RAFFLES AND SILENT AUCTION ITEMS ARE LINING UP NICELY!

Graciously Donated by Country Bank:

Raffle Rules: One raffle entry per event ticket purchased by 11:59 PM on September 10th (supportive donation tickets do not qualify for raffle entries). Winner will be randomly selected and announced at the event. Winner must be present at Livy’s VIP Dance to claim prize. iPad will be a brand new iPad available at time of drawing. This promotion is not affiliated with or endorsed by Apple Inc. All purchased event tickets made prior to deadline are automatically entered.

WE HAVE MORE AT THE EVENT!!

Email: Shanon (Event Director), mom to Livy (shanon.m.hardy@gmail.com

Email: Maggie (Donation/Sponsor Coordinator), mom to Mads (maggie@rsangels.org)

ROYALLY RESERVE TODAY!

Blue Sky Day
2025-10-25 10:45 - 14:00 | Boston Children’s Hospital Area
Don’t miss this very special Saturday when families gather in Boston to honor our children. There will be clowns, cheerleaders, music, a selfie station and more.

There is no charge for this day and lunch will be provided by Rett Syndrome Angels.

Register by October 16th!

Check out the highlight video from last year here

Boston Prudential Center Lights up Purple for Rett
2025-12-21 17:00 - 23:30 | Prudential Center, 800 Boylston Street, Boston, Massachusetts, 02199
Boston Prudential Center shines purple in support of Rett Angels and families affected by Rett Syndrome. If you’re in the area, take a picture and tag us. #purpleforrett #RettSyndromeAngels #NewEnglandGlowsPurple
