Rett Syndrome Angels

Rett Family Picnic
2020-07-05 00:00 - 23:59 (America/New_York)
Due to COVID-19
Our Annual RSAM Family Picnic 2020 is postponed until we can get together safely.
Please stay tuned for the new date in 2021!

RSAM/Crimson Aquatics Swim Program
2020-03-31 14:00, 2020-02-29 14:00, 2020-01-25 14:00
The one hour, no cost, swim sessions are held at 2:00pm at West Suburban Y in Newton. For information and to join this wonderful program contact Irene at iglad@rcn.com
Open to “Rett Swimmers” of all ages and abilities.
Dates for upcoming RSAM/Crimson Aquatics Swim Program
1/25
2/29
3/21

Crimson/RSAM Swim Program
2019-12-14 14:00 - 15:00, 2019-10-05 14:00 - 15:00, 2019-09-14 14:00 - 15:00
Sept 14, 2-3pm
October 5, 2-3pm
December 14, 2-3pm
West Suburban YMCA
276 Church Street
Newton, MA
If you plan to attend this event, please send your confirmation email to iglad@rcn.com

BLUE SKY DAY 2019
2019-10-26 10:30
Saturday, October 26, 2019 – 10:30am

An outdoor event to honor our children, gather with RSAM families, Rett researchers and members of the Boston Children’s Hospital Rett Program. Lunch will follow. Please plan to attend and to continue the Blue Sky tradition here in Boston.

New This Year, “Blue Sky Day Purple Sky Night”
This year the city of Boston is again helping to bring more awareness to Rett Syndrome. The evening of October 26th, Boston City Hall and City Hall Plaza, The Top of the Prudential Building and the Zakim Bridge will all be lit up purple. If you are in town, be sure to catch the sights and make sure to tell all your family and friends as well.

Research Update from Rett Syndrome Research Trust
2019-09-24 19:00 - 21:00
Research Update From Rett Syndrome Research Trust
September 24th, 7pm
79 Robbins St., Acton, MA
Please join for a presentation from Tim Riley, Chief Scientific Office for RSRT. Tim will provide an update and overall review of RSRT’s Roadmap to a Cure. Tim will be joined by Jonathan Watts from UMass Medical School, presenting his MECP2 DNA and RNA editing project.
Please RSVP: info@rsam.org

Save the Date: RSAM Annual Family Picnic
2019-06-30 00:00 - 23:59
RSAM’S THIRD ANNUAL FAMILY BBQ
We are so excited for this day! Our Family BBQ is super fun! See old friends, make new ones. Eat an amazing BBQ feast, enjoy fun lawn games. Relax and Enjoy the simple pleasures of summer!
If you have not replied yet, please do it NOW.
We need a headcount in order to move ahead with planning.
Sunday, June 30
12 Noon to 4:00 pm
North Attleboro Elks Lodge
52 Bullfinch Street
North Attleboro, MA
Rain or Shine
THIS IS A FREE EVENT FOR THE WHOLE FAMILY!
A delicious barbecue lunch, a scenic location (with the option of moving indoors if needed), music, games, prizes and fun!
A day to connect with families in MA and elsewhere living with Rett syndrome and Rett related disorders.
Our past RSAM Family BBQ’s were well attended and received rave reviews!
RSVP here or to iglad@rcn.com
Please tell us how many adults will be attending and how many children.
If you will be providing your child’s food, please let us know.
Thanks and See you on June 30th at the BBQ!

RettEd Day
2019-06-22 08:30 - 17:00
Exciting News! Registration for the RettEd Day Conference is now OPEN! Don’t miss this amazing opportunity to hear from the leading doctors, researchers and service professionals in the Boston area.
Intended for everyone wanting to connect with experts in the field of Rett syndrome especially families, caregivers, educators, clinicians, and therapists. Attendees will enjoy a rich and informative day of topics and discussion that will cover: research updates, medical and therapeutic interventions, Massachusetts specific programs & services, school and communication strategies.
Program Subject to Change
WHEN | Saturday, June 22, 2019
WHERE | Boston Children’s Hospital, 1 Autumn Street, Boston, MA 02215
Auditorium A&B (located in the basement)
TIME | 8:30 a.m. – 5:00 p.m.
View Flyer »
RSAM will host an onsite networking reception immediately following.
Fee:
$10/per person. Diagnosed children are FREE.
Includes:
Presentations, interactive panel discussion, continental breakfast and lunch, evening reception
Register »

RSAM/Crimson Swim Sessions
2019-05-04 14:00 - 15:00
Crimson Swim
May 4th, 2-3pm
Newton

Please contact Irene Gladstone if you are interested. iglad@rcn.com

RSAM at the Red Sox!!
2019-04-26 19:10 - 23:00
SOLD OUT – Thank you to all who supported this event! Be sure to watch the JumboTron as members of our RSAM family take the field before the game.
Deadline: April 1
Rett Syndrome Association of Massachusetts is excited to announce our 2nd Red Sox outing! Our mission is to improve and enhance the quality of life for all of those affected by Rett Syndrome in New England. We achieve this by providing supportive services, resources, advocacy, education, awareness, and raising funds towards the advancement of Rett Syndrome research. We welcome everyone to join us for some major league fun and cheer on the Red Sox!

A Portion of proceeds for this event will be used to support the Rett Syndrome Foundation’s Boston Marathon Runners.
Be sure to follow us on Facebook for updates regarding this event and we hope to see everyone at Fenway!
Anyone with a handicap need, call Matt Tieri on the link
Block of Rooms: 1 block from Fenway
Deadline: March 25
https://www.marriott.com/event-reservations/reservation-link.mi?id=1549556404169&key=GRP&app=resvlin
When calling need to give our name for discount. Can sleep 4 people for the same rate in 1 room.
All rooms are Studios are 1 King bed with a Queen Sofa Sleeper
with kitchenette with microwave, fridge. Continental breakfast.
50.00 parking fee a night

2019 Boston Marathon
2019-04-15 00:00 - 23:59
Thank you to all our Team Rett Runners and all those who supported the team with generous donations, cheering the team along the way and overall encouragement and support. They are an amazing group of runners and we are so grateful for their dedication.

Team RSAM
Monday, April 15, 2019​
Meet our team of amazing Rett runners! This dedicated group will run 26.2 miles on Monday, April 15, 2019 for all of our girls and boys. Each runner is committed to raising funds for RSAM, so please consider supporting our team with a donation at:
https://www.crowdrise.com/o/en/campaign/rett-syndrome-association-of-massachusetts-boston-2019
RSAM is proud to be an official Partner of John Hancock in the Marathon Non-Profit Program. The Non-Profit Program provides over 1000 Boston Marathon® bibs to select non-profit organizations throughout the community, which provides organizations with a significant fundraising opportunity. Last year, John Hancock Non-Profit Runners raised over $13.1M for their causes.

March Madness Bracket Challenge
2019-03-18 08:00 - 2019-03-21 09:00
Back by Popular Demand: Our 2nd March Madness Bracket Challenge
All donations to the March Madness Bracket Challenge go to our 2019 RSAM Marathon Team!!!
When it’s time to submit your picks:
Go to the Rett Syndrome Association of Massachusetts (RSAM) Marathon Team’s crowdrise site and select the Bracket Challenge team (or follow this link https://www.crowdrise.com/o/en/campaign/rett-syndrome-association-of-massachusetts-boston-2019/lawrencefallon1 ), Enter your name (same name you will use on your Bracket entry) on the donation scroll line. A donation of $10 per bracket is suggested.
Then proceed to the yahoo tourney pick’em group https://tournament.fantasysports.yahoo.com/t1/group/9547, create an account (if you don’t have one already), fill out your entries and enjoy the tournament. All entries must be submitted before the first game tip-off on Thursday morning, March 21. The password for the yahoo group is Dunk4Rett.
Round by Round Scoring will be as follows and represents approximately a 10% drop in total possible points per round:
Round 1: 10 points per win
Round 2: 18 points per win
Round 3: 32 points per win
Round 4: 57 points per win
Round 5: 102 points per win
Final game: 184 points per win
Thank you for participating and thank you to the Marathoners running for RSAM. Please feel free to invite your friends and family who enjoy the bracket challenge.
