New England RettAway 2026

A heartfelt thank you to Acadia and the Adaptive Outdoor Education Center for making this incredible weekend possible. Your generosity and dedication to our families means everything. We can’t wait to see everyone in Maine!

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Rare Disease Day 2026

This February 28th, stand with families affected by Rett syndrome. Rett syndrome is rare, but its impact is profound. It affects families worldwide—primarily girls at 1 in 10,000 births, but boys too. Thousands are fighting this battle every day. Here’s how YOU can help: How to change your profile picture: On your phone: On computer: Our goal? Make Rett syndrome…

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