Board Member since: 2026

RS Angel: Karolina

Profession: Health Physical Therapist

About Jon: Jon lives in western Massachusetts with his wife Erica and their three kids. His daughter Karolina was diagnosed with Rett Syndrome in 2024 at the age of 3, inspiring Jon to become an active participant in the Rett Syndrome community.

Jon works as a home health physical therapist and outside of work he enjoys spending time with his family, enjoys sports and coaching his son.

Jon’s passion for RS Angels began when he wanted to make a difference but didn’t know where to turn to, and after meeting the members Jon and Erica decided to run a marathon and raise money for RS angels. Raising money running ignited more of a desire to create real impact for the Rett syndrome community. Jon believes that families and individuals affected by Rett syndrome deserve not only hope, but action, and that the future in research and support is bright and will continue to progress as long as individuals continue to support and advocate for all affected by Rett syndrome.