Rett Syndrome (RS) is a rare neurological disorder resulting from a defect in the MECP2 gene.

Rett Syndrome is significantly more prevalent in females but can affect males in a more challenging way. Despite the difficulties with symptoms, many individuals with Rett Syndrome continue to live well into middle age and beyond.

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You can help support RSAM by sporting our cool new swag! We've set up a shop on RedBubble with everything from shirts and...

He is my heart

Hello, Rett Families!...

He is my heart

Hello, Rett Families!...

Hello, Rett Families! We would like you to meet one of our board members, Tracy – a mom to three precious children. Her...

RSAM is Rett Syndrome Angels

Recent News and Events

See how we are reaching people all over Massachusetts and greater New England helping make a difference.

Team Rett: William Vital

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Team Rett: Abigail McLean

[vc_row css=".vc_custom_1619037459374{padding-bottom: 5% !important;}"][vc_column][vc_custom_heading text="Team Rett Runner Profile: Abigail McLean"...

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Team Rett: Nita Rossow

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Rett syndrome occurs worldwide in 1 of every 10,000 female births and at a lower prevalence in male births.