Rett Syndrome (RS) is a rare neurological disorder resulting from a defect in the MECP2 gene.

Rett Syndrome is significantly more prevalent in females but can affect males in a more challenging way. Despite the difficulties with symptoms, many individuals with Rett Syndrome continue to live well into middle age and beyond.

Team Rett
Team RettRun With Us
We Support Research
We Support ResearchSee How
Anyone Can Help
Anyone Can HelpVolunteer

RSA Community

Mayor Walsh of Boston supports Rett Syndrome

Watch as Mayor Walsh shares a message about...

Mayor Walsh of Boston supports Rett Syndrome

Watch as Mayor Walsh shares a message about...

Watch as Mayor Walsh shares a message about Rett Syndrome as we welcome Rett Syndrome Awareness Month this October

Still Rockin’ in 2020

Global events may...

Still Rockin’ in 2020

Global events may...

Global events may have slowed the rest of the world, but RSAM has kept rockin' with some amazing events already this...

RSAM is Rett Syndrome Angels

Recent News and Events

See how we are reaching people all over Massachusetts and greater New England helping make a difference.

Still Rockin’ in 2020

Global events may have slowed the rest of the world,...

Read More

Purple Sky Boston Video

Special thanks to Jeff Holt for this amazing video capturing...

Read More

Scientific Symposium (Webinar)

All of us at RSAM would like to give a...

Read More

Our Partners

Rett syndrome occurs worldwide in 1 of every 10,000 female births and at a lower prevalence in male births.