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Rett Syndrome Angels - Rett Syndrome Association of Massachusetts

Rett Syndrome Angels

  • News
  • About Us
    • Our Support
    • Our Board
    • Our History
  • Find Support
    • About Rett Syndrome
    • Rett Program at BCH
    • Additional Support
  • Give Support
    • Volunteer
  • Privacy Policy
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Rett Syndrome Angels Latest News

Maria McTernan Sibling Scholarship

adminJanuary 27, 2021

Application Deadline - Mar. 1st, 2021 The Maria McTernan Sibling Scholarship was established in 2020. It is named in honor of Maria McTernan. For more than a decade, beginning in…

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Still Rockin’ in 2020

adminNovember 1, 2020

Global events may have slowed the rest of the world, but RSAM has kept rockin' with some amazing events already this year. Check out what we've done: COVID AssistanceMasksAAC ClassesFamily…

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Purple Sky Boston Video

adminOctober 25, 2020

Special thanks to Jeff Holt for this amazing video capturing the Boston cityscape as they lit up the skyline for us helping to celebrate our Blue Sky Day and Purple…

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Scientific Symposium (Webinar)

adminOctober 21, 2020

All of us at RSAM would like to give a big THANK YOU (grazie) to Dr. Michela Fagiolini for spearheading an amazing an informative Science Symposium!   This symposium gives…

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Mayor Walsh of Boston supports Rett Syndrome

adminOctober 4, 2020Leave a comment

Watch as Mayor Walsh shares a message about Rett Syndrome as we welcome Rett Syndrome Awareness Month this October https://www.youtube.com/embed/g5ek3pgGPt4

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He is my heart

adminSeptember 14, 2020Leave a comment

Hello, Rett Families! We would like you to meet one of our board members, Tracy – a mom to three precious children. Her son has a diagnosis of Rett Syndrome.…

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October is Rett Syndrome Awareness Month

adminSeptember 11, 2020Leave a comment

October is R ett S yndrome A wareness M onth and boy do we have plans.  Our Quaranteam has been hard at work and we are honored and thrilled to…

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RSAM Latest News

adminAugust 28, 2020Leave a comment

As we all cope with adjusting to life in the time of COVID-19, here’s what RSAM has done in an effort to help families.

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Letter from Dr. Lieberman Concerning Covid-19

adminMay 4, 2020Leave a comment

Boston Children’s Hospital is continually re-assessing the situation and providing updates.

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Guardianship Tips and Process

adminFebruary 26, 2020Leave a comment

A Parent’s Journey:   Helpful Tips for Completing Guardianship For Your Disabled Child In Massachusetts

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  • Still Rockin’ in 2020
  • Purple Sky Boston Video
  • Scientific Symposium (Webinar)
  • Mayor Walsh of Boston supports Rett Syndrome

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    3 weeks ago

    Hi Rett friends. Is there anyone out there that knows of a over the counter medicine maybe a gummy that I could get for my daughter for her PMS symptoms. She is unable to be on birth control due to a spot on her liver so we had to take her off it. Any information would be greatly appreciate it thanks ... See MoreSee Less
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    2 weeks ago

    LET'S HEAR FOR THE BOYS! We encourage all families to join in. ... See MoreSee Less

    RettEd: Let's Hear It For The Boys! Males with MECP2 (2021-04-13)

    www.rettsyndrome.org

    We’ve learned a lot since the ‘80s—and it’s time to set the record straight! Dr. Bernard Suter of Texas Children’s Hospital will share what we know about males with Rett, males with MECP2 du...
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    3 weeks ago

    https://answers.childrenshospital.org/after-covid-19-vaccine/… ... See MoreSee Less

    You’ve had the COVID-19 vaccine. What now? - Boston Children's Answers

    answers.childrenshospital.org

    You’ve had the COVID-19 vaccine. What can you do now? Our infectious disease expert shares explains you should know.
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