Special thanks to Jeff Holt for this amazing video capturing the Boston cityscape as they lit up the skyline for us helping to celebrate our Blue Sky Day and Purple…
Rett Syndrome Angels Latest News
Scientific Symposium (Webinar)
All of us at RSAM would like to give a big THANK YOU (grazie) to Dr. Michela Fagiolini for spearheading an amazing an informative Science Symposium! This symposium gives…
Mayor Walsh of Boston supports Rett Syndrome
Watch as Mayor Walsh shares a message about Rett Syndrome as we welcome Rett Syndrome Awareness Month this October https://www.youtube.com/embed/g5ek3pgGPt4
He is my heart
Hello, Rett Families! We would like you to meet one of our board members, Tracy – a mom to three precious children. Her son has a diagnosis of Rett Syndrome.…
October is Rett Syndrome Awareness Month
October is R ett S yndrome A wareness M onth and boy do we have plans. Our Quaranteam has been hard at work and we are honored and thrilled to…
RSAM Latest News
As we all cope with adjusting to life in the time of COVID-19, here’s what RSAM has done in an effort to help families.
Letter from Dr. Lieberman Concerning Covid-19
Boston Children’s Hospital is continually re-assessing the situation and providing updates.
Guardianship Tips and Process
A Parent’s Journey: Helpful Tips for Completing Guardianship For Your Disabled Child In Massachusetts
Rett Family Picnic
Coming Late Summer 2020
Researcher Profile: Michela Fagiolini, PhD | Boston Children’s Hospital
“The families don’t give up and they do believe in basic research. ” Meet Michela Fagiolini, PhD, a neuroscience researcher at Boston Children’s Hospital, who studies how brain development is altered in autism-related disorders like Rett Syndrome and CDKL5.