Hello, Rett Families! We would like you to meet one of our board members, Tracy – a mom to three precious children. Her son has a diagnosis of Rett Syndrome.…
Rett Syndrome Angels Latest News
October is Rett Syndrome Awareness Month
October is R ett S yndrome A wareness M onth and boy do we have plans. Our Quaranteam has been hard at work and we are honored and thrilled to…
RSAM Latest News
As we all cope with adjusting to life in the time of COVID-19, here’s what RSAM has done in an effort to help families.
Letter from Dr. Lieberman Concerning Covid-19
Boston Children’s Hospital is continually re-assessing the situation and providing updates.
Guardianship Tips and Process
A Parent’s Journey: Helpful Tips for Completing Guardianship For Your Disabled Child In Massachusetts
Rett Family Picnic
Coming Late Summer 2020
Researcher Profile: Michela Fagiolini, PhD | Boston Children’s Hospital
“The families don’t give up and they do believe in basic research. ” Meet Michela Fagiolini, PhD, a neuroscience researcher at Boston Children’s Hospital, who studies how brain development is altered in autism-related disorders like Rett Syndrome and CDKL5.
Boston Marathon: Thank you to all our Team Rett Runners!
Thank you to all our Team Rett Runners and all those who supported the team with generous donations, cheering the team along the way and overall encouragement and support.
The Day We Met Dr. Rett
My daughter, Erika, is now forty years old so we have been in the Rett World for a long time. We had never heard of Rett syndrome until Erika was six years old, but neither had almost anyone else in the world!
Taking steps towards Rett syndrome awareness: Blue Sky Day
Every October, families from across the globe celebrate Blue Sky Day as a way to bring awareness to Rett syndrome, a neurological disorder that affects one out of every 10,000 girls born each year