About Us

Rett Syndrome Angels is an organization of parents, family, and friends committed to making Rett Syndrome history. Formally, we are the Rett Syndrome Association of Massachusetts (RSAM). We have been supporting families throughout New England by providing services, resources, and awareness. In addition; we raise funds towards the advancement of Rett syndrome research

Our Mission:

Rett Syndrome Angels is dedicated to enhancing the lives of individuals with Rett Syndrome through support, advocacy, community engagements, and awareness. In addition; we raise funds towards the advancement of Rett syndrome research.

We strive to create a brighter future for individuals and families impacted by Rett Syndrome. We achieve this through:

  1. Supportive Connections: We foster a compassionate community where caregivers can share experiences, find solace, and offer mutual support.
  2. Supportive Assistance : Our “Angel Fund” provides support during challenging times, easing the burden for families caring for loved ones with Rett Syndrome. The Maria McTernan Sibling Scholarship provides financial assistance for higher education to qualifying applicants.
  3. Education and Awareness: We empower families by keeping them informed about the latest developments in education, medical research, and legislation related to Rett Syndrome.
  4. Research Advancement: By funding cutting-edge research in the Boston area, we strive to unlock breakthroughs that enhance understanding and treatment options.
  5. Inclusive Activities: Our programs enable children and adults with Rett Syndrome to engage in enjoyable activities, promoting health, social interaction and community engagement.

How and Where We Put Our Funds to Work| Learn more about Rett Syndrome Learn more about our History | See our Board, Committee Members and Volunteers

Community Swim Class: Researcher supports Rett syndrome community

Boston Mayor Marty Walsh supports the Rett Syndrome Association of Massachusetts and names October Rett Syndrome Awareness Month by reading an official proclamation encouraging everyone to gain a better understanding through education and research to support those with Rett Syndrome and their families and to help search for a cure.

What We Do

Our team works throughout the year to support those afflicted with Rett Syndrome, each other and families. We need your help and there are many ways you can support us.

Join the Board

Join the Board

Our Board's primary goal is advancing our mission and is responsible for overseeing the organization's activities. Board members meet periodically to discuss and vote on the affairs of the organization.

Volunteer for Committees

Volunteer for Committees

Our Committees are vital in helping organize and grow our events and fundraising activities. Members may contribute on more than one committee to help grow awareness throughout the New England region.

Volunteering for Events

Volunteering for Events

Members can help organize, run or help get the word out about our events and fundraisers. Every helping hand plays a part in our larger initiatives and the more support we have means the more support we can provide.

Have a Passion for Writing?

Have a Passion for Writing?

Adding News, updates and articles to our website increases our standing with Search Engines like Google giving us greater "authority". This allows us to rise up in the search rankings gaining more visibility.

Are You Well Connected?

Are You Well Connected?

Does your employer have a matching gift program? Your donations to Rett Angels and those of your coworkers can be doubled! Tell your friends, relatives and business associates about Rett Syndrome Angels and the important work we do. Perhaps you will inspire them to help out or to make a donation. Do you know someone who can help spread Rett awareness: a writer, a news reporter? Post information about Rett Angels in your social media and encourage sharing.

Just Want to Help?

Just Want to Help?

Do you have an idea for helping Rett Angels or would you like to help, but are not sure how best to do it? Contact one of our board members. They will be happy to chat with you about joining the Rett Angels Team. Your help, large or small, will be truly appreciated.

We Believe...

We are committed to improving the lives of every child afflicted with Rett Syndrome. We have dedicated our efforts to support these strong angels and warriors.

  • We believe in the possibility of a world without Rett
  • We believe in being heard and that EVERY voice matters.
  • We believe science and technology will bring fuller, healthier lives to those with Rett.
  • We believe there is HOPE in the research for treatments and possible cure for Rett.
  • We believe there is STRENGTH in our families to make for a better life for our Rett Angels.
  • We believe in our Rett Angels being acknowledged, recognized, and celebrated.
  • We believe Rett Angels feel, think, and understand even if non-verbal.
  • We believe in a Rett Community that acknowledges males alongside females.
  • We believe in the power of families to support one another.
  • We believe a disability doesn’t define oneself.
  • We believe that our Rett Angels make those around them better people and the world a better place.
  • We believe that caring for a Rett Angel can feel daunting, but the joys can be immense.
  •  We believe in inclusion and a world without barriers.
  • We believe that we can make a difference.

Recent Rett Syndrome Angel News

October Is Rett Syndrome Awareness Month

Governor Sununu has issued a proclamation recognizing October as Rett Syndrome Awareness Month. Rett Syndrome is a severe neurological disorder, caused by a sporadic mutation of the MECP2 gene on the X chromosome, which occurs almost exclusively in females.

He is my heart

Hello, Rett Families! We would like you to meet one of our board members, Tracy – a mom to...

Mayor Walsh of Boston supports Rett Syndrome

Watch as Mayor Walsh shares a message about Rett Syndrome as we welcome Rett Syndrome Awareness...