Raisin’ For Rett

What is Rett Syndrome?

Rett Syndrome is a unique developmental disorder caused by mutations on the X chromosome on a gene called MECP2, which occurs in about one in 10,000 children. It is even rarer in boys. The course of Rett syndrome, including the age of onset and severity, varies from child to child. As the syndrome progresses, most children lose purposeful use of their hands and the ability to speak. Other symptoms may include loss of motor skills, the onset of breathing and cardiac irregularities, seizures, digestive problems, scoliosis, and tremors.

Raisin’ for Rett:

We’re excited to offer a new fundraising platform where you and your family can help raise awareness and support for those affected by Rett Syndrome. Whether you’re hosting an in person or virtual event, starting a campaign, or spreading the word, every effort helps!

When you join Team Rett, we’ll link your fundraising platform to our website through our “Raisin’ for Rett” initiative to help raise even more support.

Together, we can shine a light on Rett Syndrome and work toward a brighter, more inclusive future. Let’s make a lasting impact—one campaign at a time!