October Awareness Frame for your Profile Picture! Deadline Sept. 26th! Awareness for Rett is underway! October is Rett Syndrome Awareness and Rett Syndrome Angels is making profile frames for everyone…
Author: Maggie Wurm
Marathon Monday
COME TO MILE 16 ON MARATHON MONDAY ON APRIL 17TH Look for our 2023 Marathon Team singlets Encourage our Team Rett runners at our traditional group viewing spot. Expected times…
Tickets for Disney Immersion-Boston!
Disney Immersion Experience Family GatheringGET THEM BEFORE THEY ARE GONE! DATE: Saturday April 15, 2023TIME: 1:45P to 3:00P LOCATION: SoWa Power Station, 550 Harrison Ave, Boston MACOST: $20 Team Rett donation per…
Doctor in the House!
A VIRTUAL DISCUSSIONMarch 23 at 7:30pm 3rd Annual House Call with Dr. David Lieberman The long awaited FDA decision regarding Trofinetide is scheduled to be announced prior to this meeting. Dr.…