Latest Past Events

Scientific/Research Webinar

Download the Agenda for the BCH Rett Scientific Symposium Look at the progress Rett research has made in the last ten years! Thank you to Dr. Michela Fagiolini for spearheading this virtual event. She is gathering prominent researchers and clinicians who will participate, presenting information and answering your questions. This is sure to be a great opportunity for us.  Make…

BLUE SKY DAY 2019

Saturday, October 26, 2019 - 10:30am An outdoor event to honor our children, gather with RSAM families, Rett researchers and members of the Boston Children's Hospital Rett Program. Lunch will follow. Please plan to attend and to continue the Blue Sky tradition here in Boston.   New This Year, "Blue Sky Day Purple Sky Night" This year the city of Boston is…

Research Update from Rett Syndrome Research Trust

Research Update From Rett Syndrome Research Trust September 24th, 7pm 79 Robbins St., Acton, MA Please join for a presentation from Tim Riley, Chief Scientific Office for RSRT. Tim will provide an update and overall review of RSRT's Roadmap to a Cure. Tim will be joined by Jonathan Watts from UMass Medical School, presenting his MECP2 DNA and RNA editing…