RettEd Day

Exciting News! Registration for the RettEd Day Conference is now OPEN! Don't miss this amazing opportunity to hear from the leading doctors, researchers and service professionals in the Boston area. Intended for everyone wanting to connect with experts in the field of Rett syndrome especially families, caregivers, educators, clinicians, and therapists. Attendees will enjoy a rich and informative day of topics …

Rett is Rare Disease Day Campaign

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Join Rett Syndrome Angels & Rare Disease Day Campaign!(2.28.22) Rett syndrome is a rare, devastating disease affecting a special person in my life.  Please help make Rett syndrome not rare, but gone! Share now until Feb. 28th!  Spread the word and share.About a disease that is rare. Increase awareness of Rett syndrome and please let others know of this campaign by …

Virtual House Call with Dr. Lieberman

We welcome you to join us at RS Angels and Doctor David Lieberman, MD, PhD Assistant, Department of Neurology (Boston Children's Rett Clinic) in your home virtually on March 31st at 7:30pm EST. Dr. L will be talking about Covid, Rett Clinic Updates, Boston Children's Rett Research Projects, Upcoming Clinical Trials and as always there will be time for questions …

RettEd Day coming to Boston

Join us for RettEd Day — immersive, full-day educational events happening at our Center of Excellence clinics nationwide. These special gatherings offer expert-led sessions, helpful local resources, and the chance to connect with other families and caregivers in your community. This event is going to be one you don't want to miss! From 3:30-5:00pm there will be a social hour! …