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Author Archives: Rett Syndrome Angels

16Jan

Rett Family Picnic

By Rett Syndrome Angels0 comment

Coming Late Summer 2020

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14Jan

Researcher Profile: Michela Fagiolini, PhD | Boston Children’s Hospital

By Rett Syndrome Angels0 comment

“The families don’t give up and they do believe in basic research. ” Meet Michela Fagiolini, PhD, a neuroscience researcher at Boston Children’s Hospital, who studies how brain development is altered in autism-related disorders like Rett Syndrome and CDKL5.

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17Apr

Boston Marathon: Thank you to all our Team Rett Runners!

By Rett Syndrome Angels0 comment

Thank you to all our Team Rett Runners and all those who supported the team with generous donations, cheering the team along the way and overall encouragement and support.

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12Mar

 The Day We Met Dr. Rett

By Rett Syndrome Angels0 comment

My daughter, Erika, is now forty years old so we have been in the Rett World for a long time.  We had never heard of Rett syndrome until Erika was six years old, but neither had almost anyone else in the world!

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29Nov

Taking steps towards Rett syndrome awareness: Blue Sky Day

By Rett Syndrome Angels0 comment

Every October, families from across the globe celebrate Blue Sky Day as a way to bring awareness to Rett syndrome, a neurological disorder that affects one out of every 10,000 girls born each year

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27Nov

October Is Rett Syndrome Awareness Month

By Rett Syndrome Angels0 comment

Governor Sununu has issued a proclamation recognizing October as Rett Syndrome Awareness Month. Rett Syndrome is a severe neurological disorder, caused by a sporadic mutation of the MECP2 gene on the X chromosome, which occurs almost exclusively in females.

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03Oct

Officers Fired After Removal of United Airlines Passenger

By Rett Syndrome Angels0 comment

By the same illusion which lifts the horizon of the sea to the level of the the sable cloud beneath was dished out and the car seemed to float in the middle of an dme illusion which lifts the horizon of the sea to the level of arof sable cloud beneath was dished out and the car seemed to float…

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03Oct

True Color Monitors & All One Personal Books Workplace

By Rett Syndrome Angels0 comment

By the same illusion which lifts the horizon of the sea to the level of the the sable cloud beneath was dished out and the car seemed to float in the middle of an dme illusion which lifts the horizon of the sea to the level of arof sable cloud beneath was dished out and the car seemed to float…

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03Oct

Music Playing Featured Technologies For Child and Adults

By Rett Syndrome Angels0 comment

By the same illusion which lifts the horizon of the sea to the level of the the sable cloud beneath was dished out and the car seemed to float in the middle of an dme illusion which lifts the horizon of the sea to the level of arof sable cloud beneath was dished out and the car seemed to float…

READ MORE
03Oct

True Color Monitors & All One Personal Books Workplace

By Rett Syndrome Angels0 comment

By the same illusion which lifts the horizon of the sea to the level of the the sable cloud beneath was dished out and the car seemed to float in the middle of an dme illusion which lifts the horizon of the sea to the level of arof sable cloud beneath was dished out and the car seemed to float…

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Rett Syndrome Angels - Rett Syndrome Association of Massachusetts

EIN: 04–3583648

217 South Street
Waltham, Massachusetts 02453

 

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Recent Posts

  • Runnin’ for Rett 5k/1Walk (Western

    September 9, 2026
  • New England RettAway 2026

    February 23, 2026

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