Stay tuned for March topic…. (wishes can come true) Come join other Rett Syndrome Angels families for an informal evening to chat. Often parents lead the way on conversational topics. These meetings give families opportunities to get much needed support on the many struggles from day to day living with Rett. Wear your pajamas, bring your beverage, snack of choice…
Come join other Rett Syndrome Angels families for an informal evening to chat. Often parents lead the way on conversational topics. These meetings give families opportunities to get much needed support on the many struggles from day to day living with Rett. Wear your pajamas, bring your beverage, snack of choice and get resources, tips or just a lending ear…
Come join other Rett Syndrome Angels families for an informal evening to chat. Often parents lead the way on conversational topics. These meetings give families opportunities to get much needed support on the many struggles from day to day living with Rett. Wear your pajamas, bring your beverage, snack of choice and get resources, tips or just a lending ear…
Come join other Rett Syndrome Angels families for an informal evening to chat. Often parents lead the way on conversational topics. These meetings give families opportunities to get much needed support on the many struggles from day to day living with Rett. Wear your pajamas, bring your beverage, snack of choice and get resources, tips or just a lending ear…
Come join other Rett Syndrome Angels families for an informal evening to chat. Often parents lead the way on conversational topics. These meetings give families opportunities to get much needed support on the many struggles from day to day living with Rett. Wear your pajamas, bring your beverage, snack of choice and get resources, tips or just a lending ear…
Global events may have slowed the rest of the world, but RSAM has kept rockin’ with some amazing events already this year. Check out what we’ve done: COVID Assistance Masks AAC Classes Family Check-ins Blue Sky Day / World Family Celebration Sibling Scholarship & Video Premiere Virtual Boston Marathon Scientific Symposium Family Beach Bash
Special thanks to Jeff Holt for this amazing video capturing the Boston cityscape as they lit up the skyline for us helping to celebrate our Blue Sky Day and Purple Sky Night.
All of us at RSAM would like to give a big THANK YOU (grazie) to Dr. Michela Fagiolini for spearheading an amazing an informative Science Symposium! This symposium gives so much hope, clarity and direction in what is to come for possibilities to those suffering from this disorder. We are honored and lucky to have collaborated with Children’s Hospital…
Watch as Mayor Walsh shares a message about Rett Syndrome as we welcome Rett Syndrome Awareness Month this October
Hello, Rett Families! We would like you to meet one of our board members, Tracy – a mom to three precious children. Her son has a diagnosis of Rett Syndrome. As a board, we felt it was important to learn more about boys living with Rett Syndrome. We hope you enjoy Tracy’s first blog as much as we do! WAY…
