All of us at RSAM would like to give a big THANK YOU (grazie) to Dr. Michela Fagiolini for spearheading an amazing an informative Science Symposium! This symposium gives so much hope, clarity and direction in what is to come for possibilities to those suffering from this disorder. We are honored and lucky to have collaborated with Children’s Hospital…
Watch as Mayor Walsh shares a message about Rett Syndrome as we welcome Rett Syndrome Awareness Month this October
Hello, Rett Families! We would like you to meet one of our board members, Tracy – a mom to three precious children. Her son has a diagnosis of Rett Syndrome. As a board, we felt it was important to learn more about boys living with Rett Syndrome. We hope you enjoy Tracy’s first blog as much as we do! WAY…
PURPLE SKY NIGHT The Grand Finale Saturday Evening To further honor the children and adults with Rett syndrome and to recognize October as Rett Syndrome Awareness Month, the Boston sky will be lit in purple on the night of October 24. Purple is the color symbolic of Rett syndrome. Boston City Hall and Plaza, the Zakim Bridge and…
PURPLE SKY NIGHT The Grand Finale Saturday Evening To further honor the children and adults with Rett syndrome and to recognize October as Rett Syndrome Awareness Month, the Boston sky will be lit in purple on the night of October 24. Purple is the color symbolic of Rett syndrome. Boston City Hall and Plaza, the Zakim Bridge and…
October is R ett S yndrome A wareness M onth and boy do we have plans. Our Quaranteam has been hard at work and we are honored and thrilled to roll out ALL FOUR events for Rett Awareness Month. This pandemic isn’t stopping RSAM from making Rett History! We need families from around the world to help make our October…
Download the Agenda for the BCH Rett Scientific Symposium Look at the progress Rett research has made in the last ten years! Thank you to Dr. Michela Fagiolini for spearheading this virtual event. She is gathering prominent researchers and clinicians who will participate, presenting information and answering your questions. This is sure to be a great opportunity for us. Make…
Download the Agenda for the BCH Rett Scientific Symposium Look at the progress Rett research has made in the last ten years! Thank you to Dr. Michela Fagiolini for spearheading this virtual event. She is gathering prominent researchers and clinicians who will participate, presenting information and answering your questions. This is sure to be a great opportunity for us. Make…
Great thanks to Sara Anastasi and Hannah Sweeney two of our 2020 Sibling Scholarship recipients and Michael Anastasi for creating this video starring 14 of our RSAM families. Get your popcorn ready for this at home theater event. This touching and beautiful video is one you don’t want to miss! We definitely give it FIVE stars! We will share the…
Great thanks to Sara Anastasi and Hannah Sweeney two of our 2020 Sibling Scholarship recipients and Michael Anastasi for creating this video starring 14 of our RSAM families. Get your popcorn ready for this at home theater event. This touching and beautiful video is one you don’t want to miss! We definitely give it FIVE stars! We will share the…
