PURPLE SKY NIGHT The Grand Finale Saturday Evening To further honor the children and adults with Rett syndrome and to recognize October as Rett Syndrome Awareness Month, the Boston sky will be lit in purple on the night of October 24. Purple is the color symbolic of Rett syndrome. Boston City Hall and Plaza, the Zakim Bridge and…
PURPLE SKY NIGHT The Grand Finale Saturday Evening To further honor the children and adults with Rett syndrome and to recognize October as Rett Syndrome Awareness Month, the Boston sky will be lit in purple on the night of October 24. Purple is the color symbolic of Rett syndrome. Boston City Hall and Plaza, the Zakim Bridge and…
October is R ett S yndrome A wareness M onth and boy do we have plans. Our Quaranteam has been hard at work and we are honored and thrilled to roll out ALL FOUR events for Rett Awareness Month. This pandemic isn’t stopping RSAM from making Rett History! We need families from around the world to help make our October…
Download the Agenda for the BCH Rett Scientific Symposium Look at the progress Rett research has made in the last ten years! Thank you to Dr. Michela Fagiolini for spearheading this virtual event. She is gathering prominent researchers and clinicians who will participate, presenting information and answering your questions. This is sure to be a great opportunity for us. Make…
Download the Agenda for the BCH Rett Scientific Symposium Look at the progress Rett research has made in the last ten years! Thank you to Dr. Michela Fagiolini for spearheading this virtual event. She is gathering prominent researchers and clinicians who will participate, presenting information and answering your questions. This is sure to be a great opportunity for us. Make…
Great thanks to Sara Anastasi and Hannah Sweeney two of our 2020 Sibling Scholarship recipients and Michael Anastasi for creating this video starring 14 of our RSAM families. Get your popcorn ready for this at home theater event. This touching and beautiful video is one you don’t want to miss! We definitely give it FIVE stars! We will share the…
Great thanks to Sara Anastasi and Hannah Sweeney two of our 2020 Sibling Scholarship recipients and Michael Anastasi for creating this video starring 14 of our RSAM families. Get your popcorn ready for this at home theater event. This touching and beautiful video is one you don’t want to miss! We definitely give it FIVE stars! We will share the…
In-Person Family Gathering Observing COVID Precautions All our New England Families are invited to a Celebration Beach Bash and Family Picnic! Professional Family Pictures will be taken on the beach! Bring your favorite props and flip flops. Jessica & Tom Henry are offering 10 family edited portraits for $10 dollars, in honor of our 10th Year of Blue Sky Day.…
In-Person Family Gathering Observing COVID Precautions All our New England Families are invited to a Celebration Beach Bash and Family Picnic! Professional Family Pictures will be taken on the beach! Bring your favorite props and flip flops. Jessica & Tom Henry are offering 10 family edited portraits for $10 dollars, in honor of our 10th Year of Blue Sky Day.…
As we all cope with adjusting to life in the time of COVID-19, here’s what RSAM has done in an effort to help families.
