09Sep
Crimson/RSAM Swim Program
Sept 14, 2-3pm October 5, 2-3pm December 14, 2-3pm West Suburban YMCA 276 Church Street Newton, MA If you plan to attend this event, please send your confirmation email to iglad@rcn.com
05Sep
Boston Marathon is Virtual
We are saddened that our Boston Marathon 2020 in person was cancelled. “In the absence of the usual in-person marathon, the Boston Athletic Association announced that it will hold a “virtual” race for the would-be participants.” Our runners continued to train and pushed themselves for the love of our girls and boys living with Rett Syndrome. The announcement came that…
05Sep
Boston Marathon is Virtual
We are saddened that our Boston Marathon 2020 in person was cancelled. “In the absence of the usual in-person marathon, the Boston Athletic Association announced that it will hold a “virtual” race for the would-be participants.” Our runners continued to train and pushed themselves for the love of our girls and boys living with Rett Syndrome. The announcement came that…
20Aug
BLUE SKY DAY 2019
Saturday, October 26, 2019 – 10:30am An outdoor event to honor our children, gather with RSAM families, Rett researchers and members of the Boston Children’s Hospital Rett Program. Lunch will follow. Please plan to attend and to continue the Blue Sky tradition here in Boston. New This Year, “Blue Sky Day Purple Sky Night” This year the city of Boston is…
20Aug
BLUE SKY DAY 2019
Saturday, October 26, 2019 – 10:30am An outdoor event to honor our children, gather with RSAM families, Rett researchers and members of the Boston Children’s Hospital Rett Program. Lunch will follow. Please plan to attend and to continue the Blue Sky tradition here in Boston. New This Year, “Blue Sky Day Purple Sky Night” This year the city of Boston is…
20Aug
Research Update from Rett Syndrome Research Trust
Research Update From Rett Syndrome Research Trust September 24th, 7pm 79 Robbins St., Acton, MA Please join for a presentation from Tim Riley, Chief Scientific Office for RSRT. Tim will provide an update and overall review of RSRT’s Roadmap to a Cure. Tim will be joined by Jonathan Watts from UMass Medical School, presenting his MECP2 DNA and RNA editing…
20Aug
Research Update from Rett Syndrome Research Trust
Research Update From Rett Syndrome Research Trust September 24th, 7pm 79 Robbins St., Acton, MA Please join for a presentation from Tim Riley, Chief Scientific Office for RSRT. Tim will provide an update and overall review of RSRT’s Roadmap to a Cure. Tim will be joined by Jonathan Watts from UMass Medical School, presenting his MECP2 DNA and RNA editing…
24Apr
RettEd Day
Exciting News! Registration for the RettEd Day Conference is now OPEN! Don’t miss this amazing opportunity to hear from the leading doctors, researchers and service professionals in the Boston area. Intended for everyone wanting to connect with experts in the field of Rett syndrome especially families, caregivers, educators, clinicians, and therapists. Attendees will enjoy a rich and informative day of topics…
24Apr
RettEd Day
Exciting News! Registration for the RettEd Day Conference is now OPEN! Don’t miss this amazing opportunity to hear from the leading doctors, researchers and service professionals in the Boston area. Intended for everyone wanting to connect with experts in the field of Rett syndrome especially families, caregivers, educators, clinicians, and therapists. Attendees will enjoy a rich and informative day of topics…
17Apr
RSAM/Crimson Swim Sessions
Crimson Swim May 4th, 2-3pm Newton Please contact Irene Gladstone if you are interested. iglad@rcn.com