October Awareness Frame for your Profile Picture! Deadline Sept. 26th! Awareness for Rett is underway! October is Rett Syndrome Awareness and Rett Syndrome Angels is making profile frames for everyone free! The deadline is September 26th in order to have them done for Oct. 1st! Fill out the form below and upload a picture of your favorite angel (s). Then…
COME TO MILE 16 ON MARATHON MONDAY ON APRIL 17TH Look for our 2023 Marathon Team singlets Encourage our Team Rett runners at our traditional group viewing spot. Expected times our runners pass by this location will vary, check out our facebook for exact times closer to the day of the run. *usually around lunchtime* TBD Meet in Wellesley near…
Disney Immersion Experience Family Gathering GET THEM BEFORE THEY ARE GONE! DATE: Saturday April 15, 2023TIME: 1:45P to 3:00P LOCATION: SoWa Power Station, 550 Harrison Ave, Boston MACOST: $20 Team Rett donation per ticket (No charge for Rett Angels) max 4 per family TICKET DIST: First-come basis per the instructions below PARKING: Suggested parking at 530 Harrison Ave at the driver’s expense A…
A VIRTUAL DISCUSSION March 23 at 7:30pm 3rd Annual House Call with Dr. David Lieberman The long awaited FDA decision regarding Trofinetide is scheduled to be announced prior to this meeting. Dr. Lieberman will discuss what this decision means for the Rett community. He will also address the upcoming and very exciting gene therapy trials for Rett syndrome. This is…
The Maria McTernan Sibling Scholarship was established in 2020. It is named in honor of Maria McTernan. For more than a decade, beginning in 2003, Maria served as RSAngels’ (known as RSAM at that time) Vice-President of Programming and then as Co-President. It was primarily because of Maria’s determination and effort that RSAngels was granted five entries for charity runners…
