02Dec
Silver Seal of Transparency
Rett Syndrome Angels did again! We’ve earned our Silver Seal of Transparencywith @CandidDotOrg! Check out our nonprofit profile to keep up to date with our impact.
16Sep
October Awareness Profile Picture
October is right around the corner and we have a new profile for 2024 for you to use for free!! Tell the world you love someone living with Rett Syndrome. Use the template below and upload your own Rett syndrome angels profile and post to your socials to tell everyone! Click Here to Use the Template (you must sign up…
02Jun
Baseball Family Day
Limited Seats Available Back by Popular Demand! Second Year of Baseball Fun! August 4, 2024 Thank you to Acadia Pharmaceuticals for supporting our event!! Click Pictures Below to Expand Information Click to Sign Up
01Jun
Summer BBQ featuring Kevin Black!
Open to the Public (August 3rd, 2024) A BBQ with Country Recording Artist Kevin Black! Amazing Food and Win Big on Raffles and Silent Auctions! This event will be for sure the highlight of your summer! Details for the entire weekend can be scanned with the QR code on the flyer or by visiting, https://www.tickettailor.com/events/rettsyndromeangels/1273751 RSVP BY: July 27th Sponsored…
14May
Rett Camp in CT
Limited Space Rett Camp sign-ups are here! Families with loved ones living with Rett Syndrome in any of the New England States are invited down to Camp Harkness for a day of yard games, beach fun, arts and crafts, a campfire and s’mores, and enjoying the beautiful and accessible campground together! Click flyers below for more information DEADLINE To Sign…
24Oct
Crackin Up for a Cause Fundraiser
POSTPONED TIL FURTHER NOTICE! First Rett Syndrome Comedy Night with Comedian Marty Caproni and Friends Join us for lots of laughs to support the Rett communityProceeds will support education & hands-on experiences around assistive technology for our families and angelsAssistive technology can broaden independence, provide stability and improve overall well-beingwww.rsangels.org LIMITED SEATS! DATE: November 18, 2024DOORS OPEN: 6:00PMSHOW STARTS: 6:30PMLOCATION: The…
17Sep
I Love my Angel Profile Frame
October Awareness Frame for your Profile Picture! Deadline Sept. 26th! Awareness for Rett is underway! October is Rett Syndrome Awareness and Rett Syndrome Angels is making profile frames for everyone free! The deadline is September 26th in order to have them done for Oct. 1st! Fill out the form below and upload a picture of your favorite angel (s). Then…
30Mar
Marathon Monday
COME TO MILE 16 ON MARATHON MONDAY ON APRIL 17TH Look for our 2023 Marathon Team singlets Encourage our Team Rett runners at our traditional group viewing spot. Expected times our runners pass by this location will vary, check out our facebook for exact times closer to the day of the run. *usually around lunchtime* TBD Meet in Wellesley near…
03Mar
Tickets for Disney Immersion-Boston!
Disney Immersion Experience Family Gathering GET THEM BEFORE THEY ARE GONE! DATE: Saturday April 15, 2023TIME: 1:45P to 3:00P LOCATION: SoWa Power Station, 550 Harrison Ave, Boston MACOST: $20 Team Rett donation per ticket (No charge for Rett Angels) max 4 per family TICKET DIST: First-come basis per the instructions below PARKING: Suggested parking at 530 Harrison Ave at the driver’s expense A…
02Mar
Doctor in the House!
A VIRTUAL DISCUSSION March 23 at 7:30pm 3rd Annual House Call with Dr. David Lieberman The long awaited FDA decision regarding Trofinetide is scheduled to be announced prior to this meeting. Dr. Lieberman will discuss what this decision means for the Rett community. He will also address the upcoming and very exciting gene therapy trials for Rett syndrome. This is…