New England RettAway 2026

A heartfelt thank you to Acadia and the Adaptive Outdoor Education Center for making this incredible weekend possible. Your generosity and dedication to our families means everything. We can’t wait to see everyone in Maine!

READ MORE

Splashin’ at Spec Pond: 2nd Annual Family Picnic!

By popular demand, we are bringing back one of our favorite community traditions! After such a big hit a few years ago, the Rett Syndrome Angels are heading back to Spec Pond for another afternoon of sun, splashes, and smiles in Western MA! This is a wonderful opportunity for our families to get together, reconnect, and enjoy a fully accessible…

READ MORE

Splashin’ at Spec Pond (Annual Family Picnic)

By popular demand, we are bringing back one of our favorite community traditions! After such a big hit a few years ago, the Rett Syndrome Angels are heading back to Spec Pond for another afternoon of sun, splashes, and smiles in Western MA! This is a wonderful opportunity for our families to get together, reconnect, and enjoy a fully accessible…

READ MORE

Rare Disease Day 2026

This February 28th, stand with families affected by Rett syndrome. Rett syndrome is rare, but its impact is profound. It affects families worldwide—primarily girls at 1 in 10,000 births, but boys too. Thousands are fighting this battle every day. Here’s how YOU can help: How to change your profile picture: On your phone: On computer: Our goal? Make Rett syndrome…

READ MORE

Enchanted Dreams: A Fantasy Gala for Rett Syndrome

Have you ever wanted to dress like you were in a fairytale book? Maybe Yule Ball from Harry Potter, or even Velaris Starfall Ball and be like Feyre from ACOTAR. This is the night to shine with gorgeous ball gowns, masks, fae ears, wings, your most stylish tunic, suite or maybe you have a Jon Snow getup waiting to be…

READ MORE

Enchanted Dreams: A Fantasy Gala for Rett Syndrome

Have you ever wanted to dress like you were in a fairytale book? Maybe Yule Ball from Harry Potter, or even Velaris Starfall Ball and be like Feyre from ACOTAR. This is the night to shine with gorgeous ball gowns, masks, fae ears, wings, your most stylish tunic, suite or maybe you have a Jon Snow getup waiting to be…

READ MORE

2025 Awareness Social Media

💜 SHARE LOVE, SHARE HOPE, SPREAD AWARENESS WITH US 💜 October is Rett Syndrome Awareness Month! Join us in shining a light on this rare neurological disorder that affects our incredible warriors.  Tell the world you love someone living with Rett Syndrome. Tell them they are your everything, we sure do think ours are! Use the templates below, feel free…
READ MORE