Rare Disease Day 2026

This February 28th, stand with families affected by Rett syndrome. Rett syndrome is rare, but its impact is profound. It affects families worldwide—primarily girls at 1 in 10,000 births, but boys too. Thousands are fighting this battle every day. Here’s how YOU can help: How to change your profile picture: On your phone: On computer: Our goal? Make Rett syndrome…

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Enchanted Dreams: A Fantasy Gala for Rett Syndrome

Have you ever wanted to dress like you were in a fairytale book? Maybe Yule Ball from Harry Potter, or even Velaris Starfall Ball and be like Feyre from ACOTAR. This is the night to shine with gorgeous ball gowns, masks, fae ears, wings, your most stylish tunic, suite or maybe you have a Jon Snow getup waiting to be…

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Enchanted Dreams: A Fantasy Gala for Rett Syndrome

Have you ever wanted to dress like you were in a fairytale book? Maybe Yule Ball from Harry Potter, or even Velaris Starfall Ball and be like Feyre from ACOTAR. This is the night to shine with gorgeous ball gowns, masks, fae ears, wings, your most stylish tunic, suite or maybe you have a Jon Snow getup waiting to be…

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2025 Awareness Social Media

💜 SHARE LOVE, SHARE HOPE, SPREAD AWARENESS WITH US 💜 October is Rett Syndrome Awareness Month! Join us in shining a light on this rare neurological disorder that affects our incredible warriors.  Tell the world you love someone living with Rett Syndrome. Tell them they are your everything, we sure do think ours are! Use the templates below, feel free…
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Blue Sky Day is October 25th!

October is Rett Syndrome Awareness Month. During October, Rett Syndrome Angels will be involved in programs not only to raise awareness of Rett syndrome but will also continue to be involved in fundraising that benefits Rett research and supports families living with Rett syndrome. As the month draws to a close, Rett Syndrome Angels will hold its Fifteenth Annual Blue…

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Blue Sky Day

Don’t miss this very special Saturday when families gather in Boston to honor our children. There will be clowns, cheerleaders, music, a selfie station and more. There is no charge for this day and lunch will be provided by Rett Syndrome Angels.   Register by October 16th! Check out the highlight video from last year here

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Blue Sky Day

Don’t miss this very special Saturday when families gather in Boston to honor our children. There will be clowns, cheerleaders, music, a selfie station and more. There is no charge for this day and lunch will be provided by Rett Syndrome Angels.   Register by October 16th! Check out the highlight video from last year here

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