Family Picnic

We’re excited to announce the return of our yearly family picnic this late September in North Attleboro, MA! Get ready for a delicious pig roast, along with a variety of other food options to make sure there’s something for everyone to enjoy. Our committee is hard at work putting together a fun-filled day for all ages — mark your calendars…

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RettEd Day coming to Boston

Join us for RettEd Day — immersive, full-day educational events happening at our Center of Excellence clinics nationwide. These special gatherings offer expert-led sessions, helpful local resources, and the chance to connect with other families and caregivers in your community. This event is going to be one you don’t want to miss! From 3:30-5:00pm there will be a social hour!…

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RettEd Day coming to Boston

Join us for RettEd Day — immersive, full-day educational events happening at our Center of Excellence clinics nationwide. These special gatherings offer expert-led sessions, helpful local resources, and the chance to connect with other families and caregivers in your community. This event is going to be one you don’t want to miss! From 3:30-5:00pm there will be a social hour!…

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3rd Annual WooSox Family Day

Swing by for a day you won’t forget! Private Buffet and Pavillon just for us! This family outing has become a popular event for the entire family. A private 2-hour buffet starting at 2:00 PM. and Pavillion seating at the Shaw’s Home Bullpen near the 3B/LF line. Worcester Red Sox vs the Durham Bulls starts at 3:05 PM. Access to…

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3rd Annual WooSox Family Day

Swing by for a day you won’t forget! Private Buffet and Pavillon just for us! This family outing has become a popular event for the entire family. A private 2-hour buffet starting at 2:00 PM. and Pavillion seating at the Shaw’s Home Bullpen near the 3B/LF line. Worcester Red Sox vs the Durham Bulls starts at 3:05 PM. Access to…

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Rare Disease Day

Rett Syndrome Awareness: Rare Disease Day 2025 Every year on February 28th, we come together to observe Rare Disease Day, a global event dedicated to raising awareness for the over 7,000 rare diseases that affect millions of people worldwide. Today, we highlight Rett Syndrome—a rare neurological disorder that profoundly impacts individuals and families around the world. What is Rett Syndrome?…

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Rare Disease Day

Rett Syndrome Awareness: Rare Disease Day 2025 Every year on February 28th, we come together to observe Rare Disease Day, a global event dedicated to raising awareness for the over 7,000 rare diseases that affect millions of people worldwide. Today, we highlight Rett Syndrome—a rare neurological disorder that profoundly impacts individuals and families around the world. What is Rett Syndrome?…

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PROJECT SWIM

A great opportunity for your child to exercise, socialize and have FUN! This wonderful swim program for our Rett community began in 2016 under the leadership of Dr. Michela Fagiolini. Over the years the program has grown and expanded. The sessions are presently held at Blodgett Pool at Harvard University. The volunteer coaches are members of the Harvard Varsity Swimming…

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PROJECT SWIM

A great opportunity for your child to exercise, socialize and have FUN! This wonderful swim program for our Rett community began in 2016 under the leadership of Dr. Michela Fagiolini. Over the years the program has grown and expanded. The sessions are presently held at Blodgett Pool at Harvard University. The volunteer coaches are members of the Harvard Varsity Swimming…

READ MORE