Global events may have slowed the rest of the world, but RSAM has kept rockin’ with some amazing events already this year. Check out what we’ve done: COVID Assistance Masks AAC Classes Family Check-ins Blue Sky Day / World Family Celebration Sibling Scholarship & Video Premiere Virtual Boston Marathon Scientific Symposium Family Beach Bash
Special thanks to Jeff Holt for this amazing video capturing the Boston cityscape as they lit up the skyline for us helping to celebrate our Blue Sky Day and Purple Sky Night.
All of us at RSAM would like to give a big THANK YOU (grazie) to Dr. Michela Fagiolini for spearheading an amazing an informative Science Symposium! This symposium gives so much hope, clarity and direction in what is to come for possibilities to those suffering from this disorder. We are honored and lucky to have collaborated with Children’s Hospital…
Watch as Mayor Walsh shares a message about Rett Syndrome as we welcome Rett Syndrome Awareness Month this October
Hello, Rett Families! We would like you to meet one of our board members, Tracy – a mom to three precious children. Her son has a diagnosis of Rett Syndrome. As a board, we felt it was important to learn more about boys living with Rett Syndrome. We hope you enjoy Tracy’s first blog as much as we do! WAY…
October is R ett S yndrome A wareness M onth and boy do we have plans. Our Quaranteam has been hard at work and we are honored and thrilled to roll out ALL FOUR events for Rett Awareness Month. This pandemic isn’t stopping RSAM from making Rett History! We need families from around the world to help make our October…
As we all cope with adjusting to life in the time of COVID-19, here’s what RSAM has done in an effort to help families.
Boston Children’s Hospital is continually re-assessing the situation and providing updates.
A Parent’s Journey: Helpful Tips for Completing Guardianship For Your Disabled Child In Massachusetts
