A VIRTUAL DISCUSSION March 23 at 7:30pm 3rd Annual House Call with Dr. David Lieberman The long awaited FDA decision regarding Trofinetide is scheduled to be announced prior to this meeting. Dr. Lieberman will discuss what this decision means for the Rett community. He will also address the upcoming and very exciting gene therapy trials for Rett syndrome. This is…
The Maria McTernan Sibling Scholarship was established in 2020. It is named in honor of Maria McTernan. For more than a decade, beginning in 2003, Maria served as RSAngels’ (known as RSAM at that time) Vice-President of Programming and then as Co-President. It was primarily because of Maria’s determination and effort that RSAngels was granted five entries for charity runners…
Ho Ho Ho!Santa is Back! Our popular event is back for the 3rd time! The Board at Rett Syndrome Angels want to end the year once again by giving our families a little magical experience. A time that can bring joy, comfort, hope and bring all of our inner child out with a little believing or make believing 😉 No…
Ho Ho Ho!Santa is Back! Our popular event is back for the 3rd time! The Board at Rett Syndrome Angels want to end the year once again by giving our families a little magical experience. A time that can bring joy, comfort, hope and bring all of our inner child out with a little believing or make believing 😉 No…
Join Rett Syndrome Angels & Giving Tuesday on November 29, 2022 BE APART OF OUR GIVING DAY In honor of Giving Tuesday 2022, we ask you to share this campaign across all your social media outlets. Rett syndrome angels is dedicated to raising awareness and raising funds for programming, enrichment, and research. Every size donation brings us closer to treatments…
Kindness spreads with brewing beer from two local breweries. Co-founder Christian McMahan is no stranger to our Rett community, he and his family are always ones to jump in and volunteer for Rett syndrome over many many years. Ever since Keilly was little (20+ years today) and diagnosed with Rett syndrome they haven’t stopped. They do it with pure love…
TWO Events ONE Day! We are celebrating Blue Sky Day and a family picnic in person after 2 years. This event is outdoors at the beautiful Mass Audubon’s Broad Meadow Brook Conservation Center and Wildlife Sanctuary, Worcester MA. A central location for families to come together and have fun. Come meet our volunteer board members and doctors from Children’s, find…
TWO Events ONE Day! We are celebrating Blue Sky Day and a family picnic in person after 2 years. This event is outdoors at the beautiful Mass Audubon’s Broad Meadow Brook Conservation Center and Wildlife Sanctuary, Worcester MA. A central location for families to come together and have fun. Come meet our volunteer board members and doctors from Children’s, find…
