Blog

14Jan

Researcher Profile: Michela Fagiolini, PhD | Boston Children’s Hospital

January 14, 2020By Rett Syndrome Angels0 comment

“The families don’t give up and they do believe in basic research. ” Meet Michela Fagiolini, PhD, a neuroscience researcher at Boston Children’s Hospital, who studies how brain development is altered in autism-related disorders like Rett Syndrome and CDKL5.

17Apr

Boston Marathon: Thank you to all our Team Rett Runners!

April 17, 2019By Rett Syndrome Angels0 comment

Thank you to all our Team Rett Runners and all those who supported the team with generous donations, cheering the team along the way and overall encouragement and support.

12Mar

The Day We Met Dr. Rett

March 12, 2019By Rett Syndrome Angels0 comment

My daughter, Erika, is now forty years old so we have been in the Rett World for a long time. We had never heard of Rett syndrome until Erika was six years old, but neither had almost anyone else in the world!