Rett Syndrome Angels - Rett Syndrome Association of Massachusetts

Rett Syndrome Angels

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Rett Syndrome Angels - Rett Syndrome Association of Massachusetts

Rett Syndrome Angels

  • About Us
    • Our Support
    • Our Board
    • Our History
  • Find Support
    • About Rett Syndrome
    • Rett Program at BCH
    • Navigate New England Access
  • Give Support
    • Rett Syndrome Facts
    • Volunteer
  • Sibling Scholarship
  • Raisin’ For Rett
  • Donate

Category: Blog

Team Rett: Maurice Lowman

Maggie WurmApril 27, 2021
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Still Rockin’ in 2020

Rett Syndrome AngelsNovember 1, 2020

Global events may have slowed the rest of the world, but RSAM has kept rockin' with some amazing events already this year. Check out what we've done: COVID AssistanceMasksAAC ClassesFamily…

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Purple Sky Boston Video

Rett Syndrome AngelsOctober 25, 2020

Special thanks to Jeff Holt for this amazing video capturing the Boston cityscape as they lit up the skyline for us helping to celebrate our Blue Sky Day and Purple…

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Scientific Symposium (Webinar)

Rett Syndrome AngelsOctober 21, 2020

All of us at RSAM would like to give a big THANK YOU (grazie) to Dr. Michela Fagiolini for spearheading an amazing an informative Science Symposium!   This symposium gives…

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October is Rett Syndrome Awareness Month

Rett Syndrome AngelsSeptember 11, 2020Leave a comment

October is R ett S yndrome A wareness M onth and boy do we have plans.  Our Quaranteam has been hard at work and we are honored and thrilled to…

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RSAM Latest News

Rett Syndrome AngelsAugust 28, 2020Leave a comment

As we all cope with adjusting to life in the time of COVID-19, here’s what RSAM has done in an effort to help families.

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Letter from Dr. Lieberman Concerning Covid-19

Rett Syndrome AngelsMay 4, 2020Leave a comment

Boston Children’s Hospital is continually re-assessing the situation and providing updates.

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Guardianship Tips and Process

Rett Syndrome AngelsFebruary 26, 2020Leave a comment

A Parent’s Journey:   Helpful Tips for Completing Guardianship For Your Disabled Child In Massachusetts

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Rett Family Picnic

Rett Syndrome AngelsJanuary 16, 2020Leave a comment

Coming Late Summer 2020

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Researcher Profile: Michela Fagiolini, PhD | Boston Children’s Hospital

Rett Syndrome AngelsJanuary 14, 2020Leave a comment

“The families don’t give up and they do believe in basic research. ” Meet Michela Fagiolini, PhD, a neuroscience researcher at Boston Children’s Hospital, who studies how brain development is altered in autism-related disorders like Rett Syndrome and CDKL5.

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Recent Posts

  • Giddy Up-Horse Therapy
  • 2025 Sibling Scholars!
  • Team Rett is Launching Raisin’ for Rett-and The Martins are Kicking It Off!
  • Silver Seal of Transparency
  • October Awareness Profile Picture

News

  • Giddy Up-Horse Therapy
  • 2025 Sibling Scholars!
  • Team Rett is Launching Raisin’ for Rett-and The Martins are Kicking It Off!
  • Silver Seal of Transparency
  • October Awareness Profile Picture

Latest News

  • Giddy Up-Horse Therapy
  • 2025 Sibling Scholars!
  • Team Rett is Launching Raisin’ for Rett-and The Martins are Kicking It Off!

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Waltham, Massachusetts 02453

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