Boston Children’s Hospital is continually re-assessing the situation and providing updates.
Category: Blog
Guardianship Tips and Process
A Parent’s Journey: Helpful Tips for Completing Guardianship For Your Disabled Child In Massachusetts
Rett Family Picnic
Coming Late Summer 2020
Researcher Profile: Michela Fagiolini, PhD | Boston Children’s Hospital
“The families don’t give up and they do believe in basic research. ” Meet Michela Fagiolini, PhD, a neuroscience researcher at Boston Children’s Hospital, who studies how brain development is altered in autism-related disorders like Rett Syndrome and CDKL5.
Boston Marathon: Thank you to all our Team Rett Runners!
Thank you to all our Team Rett Runners and all those who supported the team with generous donations, cheering the team along the way and overall encouragement and support.
The Day We Met Dr. Rett
My daughter, Erika, is now forty years old so we have been in the Rett World for a long time. We had never heard of Rett syndrome until Erika was six years old, but neither had almost anyone else in the world!