Join Rett Syndrome Angels & Rare Disease Day Campaign!(2.28.22) Rett syndrome is a rare, devastating disease affecting a special person in my life. Please help make Rett syndrome not rare, but gone! Share now until Feb. 28th! Spread the word and share.About a disease that is rare. Increase awareness of Rett syndrome and please let others know of this campaign by…
Do you want to stay informed with the newest information from RSAM? We send out monthly newsletters chalked with information revolving topics that help our families. We host a variety of virtual events, share resources, updates on research and so much more….. Don’t forget to update your email or join before you miss out! Connect with: Irene@rsangels.org
Application Deadline – Mar. 1st, 2022 The Maria McTernan Sibling Scholarship was established in 2020. It is named in honor of Maria McTernan. For more than a decade, beginning in 2003, Maria served as the Rett Syndrome Association of Massachusetts (RSAM) Vice-President of Programming and then as Co-President. It was primarily because of Maria’s determination and effort that RSAM was…
RSAngels is offering a limited number of Grants to assist our local families to attend the summit. Eligibility: Grant recipients must meet all the following criteria Be the parent or legal guardian of a person with Rett Syndrome who currently resides in one of the six New England states, Apply here for the RSAngels’ 2022 Ascend Summit Grant, including all…
You may have heard her name over the years. Lori Mitchener. You may know her only as the woman that runs for Team Rett in the purple angel dress. Who is she? How did she come to devote herself to our cause? How did we get to be “her people?” Lori’s connection to the cause of Rett Syndrome started years…
Application Deadline – Mar. 1st, 2021 The Maria McTernan Sibling Scholarship was established in 2020. It is named in honor of Maria McTernan. For more than a decade, beginning in 2003, Maria served as the Rett Syndrome Association of Massachusetts (RSAM) Vice-President of Programming and then as Co-President. It was primarily because of Maria’s determination and effort that RSAM was…
Global events may have slowed the rest of the world, but RSAM has kept rockin’ with some amazing events already this year. Check out what we’ve done: COVID Assistance Masks AAC Classes Family Check-ins Blue Sky Day / World Family Celebration Sibling Scholarship & Video Premiere Virtual Boston Marathon Scientific Symposium Family Beach Bash
Special thanks to Jeff Holt for this amazing video capturing the Boston cityscape as they lit up the skyline for us helping to celebrate our Blue Sky Day and Purple Sky Night.
Watch as Mayor Walsh shares a message about Rett Syndrome as we welcome Rett Syndrome Awareness Month this October
Hello, Rett Families! We would like you to meet one of our board members, Tracy – a mom to three precious children. Her son has a diagnosis of Rett Syndrome. As a board, we felt it was important to learn more about boys living with Rett Syndrome. We hope you enjoy Tracy’s first blog as much as we do! WAY…
