Our most heartfelt event is back for 5 years straight Any family living with Rett in any of the six New England States is eligible. Remember siblings sign up if you love receiving special cards. Our card makers make several cards and there are plenty to go around! Regardless of age you can receive one too! Operation Valentine is underway! …
Is now open! Visit https://rsangels.org/sibling-scholarship/ for application and more information
A great opportunity for your child to exercise, socialize and have FUN! This wonderful swim program for our Rett community began in 2016 under the leadership of Dr. Michela Fagiolini. Over the years the program has grown and expanded. The sessions are presently held at Blodgett Pool at Harvard University. The volunteer coaches are members of the Harvard Varsity Swimming …
Rett Syndrome Awareness: Rare Disease Day 2025 Every year on February 28th, we come together to observe Rare Disease Day, a global event dedicated to raising awareness for the over 7,000 rare diseases that affect millions of people worldwide. Today, we highlight Rett Syndrome—a rare neurological disorder that profoundly impacts individuals and families around the world. What is Rett Syndrome? …
