A great opportunity for your child to exercise, socialize and have FUN! This wonderful swim program for our Rett community began in 2016 under the leadership of Dr. Michela Fagiolini. Over the years the program has grown and expanded. The sessions are presently held at Blodgett Pool at Harvard University. The volunteer coaches are members of the Harvard Varsity Swimming …
Rett Syndrome Awareness: Rare Disease Day 2025 Every year on February 28th, we come together to observe Rare Disease Day, a global event dedicated to raising awareness for the over 7,000 rare diseases that affect millions of people worldwide. Today, we highlight Rett Syndrome—a rare neurological disorder that profoundly impacts individuals and families around the world. What is Rett Syndrome? …
Rett Syndrome Angel’s Fifth Annual House Call with David Lieberman, MD,PhD, Director of the Boston Children’s Hospital Rett Clinic This Year’s Topic “Updates in Rett Syndrome Gene Therapy Trials” Zoom Program March 20, 2025 at 7:30pm EST Dr. Lieberman will discuss the Neurogene and Taysha gene therapy trials taking place at Boston Children’s Hospital. Dr. Lieberman will also discuss non-interventional …
Swing by for a day you won’t forget! Private Buffet and Pavillon just for us! This family outing has become a popular event for the entire family. A private 2-hour buffet starting at 2:00 PM. and Pavillion seating at the Shaw’s Home Bullpen near the 3B/LF line. Worcester Red Sox vs the Durham Bulls starts at 3:05 PM. Access to …
