Join Rett Syndrome Angels & Rare Disease Day Campaign!(2.28.22) Rett syndrome is a rare, devastating disease affecting a special person in my life. Please help make Rett syndrome not rare, but gone! Share now until Feb. 28th! Spread the word and share.About a disease that is rare. Increase awareness of Rett syndrome and please let others know of this campaign by …
We welcome you to join us at RS Angels and Doctor David Lieberman, MD, PhD Assistant, Department of Neurology (Boston Children's Rett Clinic) in your home virtually on March 31st at 7:30pm EST. Dr. L will be talking about Covid, Rett Clinic Updates, Boston Children's Rett Research Projects, Upcoming Clinical Trials and as always there will be time for questions …
Team Rett is running at the Boston Marathon® representing RS Angels - support the team, support our efforts to raise awareness or simply support our fundraiser! For more information, visit our official Team Rett page here. You can follow along for current updates on our TEAM RETT Facebook page here! OR if you're a real go-getter you can just jump …
TWO Events ONE Day! We are celebrating Blue Sky Day and a family picnic in person after 2 years. This event is outdoors at the beautiful Mass Audubon's Broad Meadow Brook Conservation Center and Wildlife Sanctuary, Worcester MA. A central location for families to come together and have fun. Come meet our volunteer board members and doctors from Children's, find …
