• Scientific/Research Webinar

    Download the Agenda for the BCH Rett Scientific Symposium Look at the progress Rett research has made in the last ten years! Thank you to Dr. Michela Fagiolini for spearheading this virtual event. She is gathering prominent researchers and clinicians who will participate, presenting information and answering your questions. This is sure to be a great opportunity for us.  Make …

  • World Family Celebration

    BLUE SKY DAY  WORLD FAMILY CELEBRATION!    This one is one to remember..... Once again, we will come together as a community to honor and to celebrate our very special children This year we will be watching and admiring from the comfort of our home starting at 10:30am EST.   Join in our virtual observance this year will be families …

  • World Family Celebration

    BLUE SKY DAY  WORLD FAMILY CELEBRATION!    This one is one to remember..... Once again, we will come together as a community to honor and to celebrate our very special children This year we will be watching and admiring from the comfort of our home starting at 10:30am EST.   Join in our virtual observance this year will be families …

  • Purple Sky Night

    PURPLE SKY NIGHT The Grand Finale      Saturday Evening To further honor the children and adults with Rett syndrome and to recognize October as Rett Syndrome Awareness Month, the Boston sky will be lit in purple on the night of October 24. Purple is the color symbolic of Rett syndrome. Boston City Hall and Plaza, the Zakim Bridge and …