• Boston Marathon is Virtual

    We are saddened that our Boston Marathon 2020 in person was cancelled.  "In the absence of the usual in-person marathon, the Boston Athletic Association announced that it will hold a “virtual” race for the would-be participants." Our runners continued to train and pushed themselves for the love of our girls and boys living with Rett Syndrome. The announcement came that …

  • Our Kick-Off Event

    In-Person Family Gathering Observing COVID Precautions All our New England Families are invited to a Celebration Beach Bash and Family Picnic! Professional Family Pictures will be taken on the beach! Bring your favorite props and flip flops. Jessica & Tom Henry are offering 10 family edited portraits for $10 dollars, in honor of our 10th Year of Blue Sky Day. …

  • Our Kick-Off Event

    In-Person Family Gathering Observing COVID Precautions All our New England Families are invited to a Celebration Beach Bash and Family Picnic! Professional Family Pictures will be taken on the beach! Bring your favorite props and flip flops. Jessica & Tom Henry are offering 10 family edited portraits for $10 dollars, in honor of our 10th Year of Blue Sky Day. …

  • Premier Showing of RSAM’s Sibling Video 

    Great thanks to Sara Anastasi and Hannah Sweeney two of our 2020 Sibling Scholarship recipients and Michael Anastasi for creating this video starring 14 of our RSAM families.  Get your popcorn ready for this at home theater event.  This touching and beautiful video is one you don’t want to miss! We definitely give it FIVE stars! We will share the …