Rare Disease Day 2026

This February 28th, stand with families affected by Rett syndrome. Rett syndrome is rare, but its impact is profound. It affects families worldwide—primarily girls at 1 in 10,000 births, but boys too. Thousands are fighting this battle every day. Here’s how YOU can help: How to change your profile picture: On your phone: On computer: Our goal? Make Rett syndrome…

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RettEd Day coming to Boston

Join us for RettEd Day — immersive, full-day educational events happening at our Center of Excellence clinics nationwide. These special gatherings offer expert-led sessions, helpful local resources, and the chance to connect with other families and caregivers in your community. This event is going to be one you don’t want to miss! From 3:30-5:00pm there will be a social hour!…

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Baseball Family Day

Limited Seats Available Back by Popular Demand! Second Year of Baseball Fun! August 4, 2024  Thank you to Acadia Pharmaceuticals for supporting our event!!  Click Pictures Below to Expand Information Click to Sign Up
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Summer BBQ featuring Kevin Black!

Open to the Public (August 3rd, 2024) A BBQ with Country Recording Artist Kevin Black! Amazing Food and Win Big on Raffles and Silent Auctions! This event will be for sure the highlight of your summer! Details for the entire weekend can be scanned with the QR code on the flyer or by visiting, https://www.tickettailor.com/events/rettsyndromeangels/1273751 RSVP BY: July 27th Sponsored…
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Rett Camp in CT

Limited Space Rett Camp sign-ups are here! Families with loved ones living with Rett Syndrome in any of the New England States are invited down to Camp Harkness for a day of yard games, beach fun, arts and crafts, a campfire and s’mores, and enjoying the beautiful and accessible campground together! Click flyers below for more information DEADLINE To Sign…
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Crackin Up for a Cause Fundraiser

POSTPONED TIL FURTHER NOTICE! First Rett Syndrome Comedy Night with Comedian Marty Caproni and Friends Join us for lots of laughs to support the Rett communityProceeds will support education & hands-on experiences around assistive technology for our families and angelsAssistive technology can broaden independence, provide stability and improve overall well-beingwww.rsangels.org LIMITED SEATS! DATE: November 18, 2024DOORS OPEN: 6:00PMSHOW STARTS: 6:30PMLOCATION:   The…
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Giving Tuesday

Join Rett Syndrome Angels & Giving Tuesday on November 29, 2022 BE APART OF OUR GIVING DAY In honor of Giving Tuesday 2022, we ask you to share this campaign across all your social media outlets. Rett syndrome angels is dedicated to raising awareness and raising funds for programming, enrichment, and research. Every size donation brings us closer to treatments…

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Virtual House Call with Dr. Lieberman

We welcome you to join us at RS Angels and Doctor David Lieberman, MD, PhD Assistant, Department of Neurology (Boston Children’s Rett Clinic) in your home virtually on March 31st at 7:30pm EST. Dr. L will be talking about Covid, Rett Clinic Updates, Boston Children’s Rett Research Projects, Upcoming Clinical Trials and as always there will be time for questions…

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Rett is Rare Disease Day Campaign

Join Rett Syndrome Angels & Rare Disease Day Campaign!(2.28.22) Rett syndrome is a rare, devastating disease affecting a special person in my life.  Please help make Rett syndrome not rare, but gone! Share now until Feb. 28th!  Spread the word and share.About a disease that is rare. Increase awareness of Rett syndrome and please let others know of this campaign by…

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