Join Rett Syndrome Angels & Rare Disease Day Campaign!(2.28.22) Rett syndrome is a rare, devastating disease affecting a special person in my life. Please help make Rett syndrome not rare, but gone! Share now until Feb. 28th! Spread the word and share.About a disease that is rare. Increase awareness of Rett syndrome and please let others know of this campaign by…
You may have heard her name over the years. Lori Mitchener. You may know her only as the woman that runs for Team Rett in the purple angel dress. Who is she? How did she come to devote herself to our cause? How did we get to be “her people?” Lori’s connection to the cause of Rett Syndrome started years…
Exciting News! Registration for the RettEd Day Conference is now OPEN! Don’t miss this amazing opportunity to hear from the leading doctors, researchers and service professionals in the Boston area. Intended for everyone wanting to connect with experts in the field of Rett syndrome especially families, caregivers, educators, clinicians, and therapists. Attendees will enjoy a rich and informative day of topics…
My daughter, Erika, is now forty years old so we have been in the Rett World for a long time. We had never heard of Rett syndrome until Erika was six years old, but neither had almost anyone else in the world!
Every October, families from across the globe celebrate Blue Sky Day as a way to bring awareness to Rett syndrome, a neurological disorder that affects one out of every 10,000 girls born each year
