Rare Disease Day 2026

This February 28th, stand with families affected by Rett syndrome. Rett syndrome is rare, but its impact is profound. It affects families worldwide—primarily girls at 1 in 10,000 births, but boys too. Thousands are fighting this battle every day. Here’s how YOU can help: How to change your profile picture: On your phone: On computer: Our goal? Make Rett syndrome…

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Team Rett: Rachel Chase

Team Rett Runner Profile: Rachel Chase What inspired Rachel to run? Hi everyone! My name is Rachel Chase and this year is going to be my first year running the Boston Marathon. Running has been a very large goal of mine for years now and I am beyond excited and honored to run with Team Rett Angels!. I will be running in honor…
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Team Rett: Nicole Wynters

Team Rett Runner Profile: Maurice Lowman What inspired Maurice to run? Hi! As a returning runner for TEAM RETT this will be my 3rd live running of the Boston Marathon with this incredible community.With 39 marathons and several ultras under my belt it is a privilege to be able to do something I love while helping contribute to the RS…
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Team Rett: Nicole Wynters

Team Rett Runner Profile: Nicole Wynters What inspired Nicole to run? Hi everyone! My name is Nicole & this is my second Boston Marathon with Team Rett Angels. I run for my cousin Sophia LaFort & all other angels affected by Rett Syndrome! Hopefully together we can raise awareness and find a cure! I am so excited to be apart of this…
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Team Rett: Andrew Killinger

Team Rett Runner Profile: Andrew Killinger What inspired Andrew to run? I am thrilled to have the opportunity to support Rett Syndrome Angels by running on Team Rett. This year's Boston Marathon will be my third full marathon since I began running routinely for the first time two years ago. I live in San Diego with my wife Brianne and…
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Team Rett: Tenley Fitzgerald

Team Rett Runner Profile:Tenley Fitzgerald What inspired Tenley to run? I am a wife, mom, and the VP of Marketing at Yes! Apples. I love to read, cook and bake (read: eat), garden/plant, and traverse our fantastic world. I have run 14 marathons and have always dreamt of running Boston. It is one of the six Abbott World Major Marathons…
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Team Rett: Nicola Hensch

Team Rett Runner Profile: Nicola Hensch What inspired Nicola to run? I am 18 years old and graduating from high school this year. I have attended numerous Blue-Sky Days and Boston Marathon events for Rett Syndrome Angels throughout the years, so I am well acquainted with this incredible community.  In 2017, my brothers, mother, and I created an adaptive swim…
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Rett is Rare Disease Day Campaign

Join Rett Syndrome Angels & Rare Disease Day Campaign!(2.28.22) Rett syndrome is a rare, devastating disease affecting a special person in my life.  Please help make Rett syndrome not rare, but gone! Share now until Feb. 28th!  Spread the word and share.About a disease that is rare. Increase awareness of Rett syndrome and please let others know of this campaign by…

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Rett is Rare

Join Rett Syndrome Angels & Rare Disease Day Campaign!(2.28.22) Rett syndrome is a rare, devastating disease affecting a special person in my life.  Please help make Rett syndrome not rare, but gone! Share now until Feb. 28th!  Spread the word and share.About a disease that is rare. Increase awareness of Rett syndrome and please let others know of this campaign by…

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lori mitchener

An angel amongst our angels

You may have heard her name over the years. Lori Mitchener. You may know her only as the woman that runs for Team Rett in the purple angel dress. Who is she? How did she come to devote herself to our cause? How did we get to be “her people?” Lori’s connection to the cause of Rett Syndrome started years…

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