Rare Disease Day

Rett Syndrome Awareness: Rare Disease Day 2025

Every year on February 28th, we come together to observe Rare Disease Day, a global event dedicated to raising awareness for the over 7,000 rare diseases that affect millions of people worldwide. Today, we highlight Rett Syndrome—a rare neurological disorder that profoundly impacts individuals and families around the world.

What is Rett Syndrome?

Rett Syndrome is a rare genetic disorder that primarily affects girls, leading to a period of normal development followed by the loss of purposeful hand movements, speech, and motor skills. Individuals with Rett require lifelong support, yet research continues to bring hope for treatments and a cure.

Although October is Rett Syndrome Awareness Month, Rare Disease Day gives us another opportunity to shine a light on Rett and amplify our voices for change.

Why Awareness Matters

Even though Rett Syndrome is considered rare, its impact is life-altering. Raising awareness helps to:

• Advance research: More awareness leads to more funding and scientific breakthroughs.
• Build community: Families affected by Rett need to connect and support each other.
• Promote advocacy: The more people know about Rett, the more we can push for policies, treatments, and resources.

Join Us: Rett Is Rare

This Rare Disease Day, we invite you to spread awareness by using our official Rett awareness profile picture on social media. Show your support by sharing the message that Rett is rare, and our community is strong.

How You Can Help:

✅ Post our profile picture on your social media accounts.
✅ Use the hashtags #RettIsRare and #RettSyndromeAngels to start conversations and spread awareness.
✅ Share your story if you or someone you love is affected by Rett Syndrome.
✅ Support Rett research—every donation helps move us closer to a cure.

Together, let’s use Rare Disease Day as another chance to shine a light on Rett Syndrome and make an impact. Thank you for standing with us!

💜 #RettIsRare #RettSyndromeAngels