A nod to our Angels

Kindness spreads with brewing beer from two local breweries. Co-founder Christian McMahan is no stranger to our Rett community, he and his family are always ones to jump in and volunteer for Rett syndrome over many many years. Ever since Keilly was little (20+ years today) and diagnosed with Rett syndrome they haven’t stopped. They do it with pure love…

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Team Rett: Andrew Killinger

Team Rett Runner Profile: Andrew Killinger What inspired Andrew to run? I am thrilled to have the opportunity to support Rett Syndrome Angels by running on Team Rett. This year's Boston Marathon will be my third full marathon since I began running routinely for the first time two years ago. I live in San Diego with my wife Brianne and…
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Rett is Rare

Join Rett Syndrome Angels & Rare Disease Day Campaign!(2.28.22) Rett syndrome is a rare, devastating disease affecting a special person in my life.  Please help make Rett syndrome not rare, but gone! Share now until Feb. 28th!  Spread the word and share.About a disease that is rare. Increase awareness of Rett syndrome and please let others know of this campaign by…

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Stay Connected

Do you want to stay informed with the newest information from RSAM? We send out monthly newsletters chalked with information revolving topics that help our families. We host a variety of virtual events, share resources, updates on research and so much more….. Don’t forget to update your email or join before you miss out! Connect with: Irene@rsangels.org

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Maria McTernan Sibling Scholarship 2022

Application Deadline – Mar. 1st, 2022 The Maria McTernan Sibling Scholarship was established in 2020. It is named in honor of Maria McTernan. For more than a decade, beginning in 2003, Maria served as the Rett Syndrome Association of Massachusetts (RSAM) Vice-President of Programming and then as Co-President. It was primarily because of Maria’s determination and effort that RSAM was…

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RSAngels’ ASCEND Summit Family Grant

RSAngels is offering a limited number of Grants to assist our local families to attend the summit.  Eligibility:  Grant recipients must meet all the following criteria Be the parent or legal guardian of a person with Rett Syndrome who currently resides in one of the six New England states, Apply here for the RSAngels’ 2022 Ascend Summit Grant, including all…

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lori mitchener

An angel amongst our angels

You may have heard her name over the years. Lori Mitchener. You may know her only as the woman that runs for Team Rett in the purple angel dress. Who is she? How did she come to devote herself to our cause? How did we get to be “her people?” Lori’s connection to the cause of Rett Syndrome started years…

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Team Rett: William Vital

Team Rett Runner Profile: William Vital How William joined Team Rett I am running in honor of Kelly Schoener who has Rett Syndrome. What inspired William to run? My wife has been Kelly's PCA for over 10 years. Kelly is a smart and loving young woman. She enjoys spending time with her family and caregivers. Kelly inspires those around her…
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Team Rett: Abigail McLean

Team Rett Runner Profile: Abigail McLean How Abigail joined Team Rett I am so excited to be running my first marathon, the 2021 Boston Marathon as a member of Team Rett. Although my 2020 training was abruptly cut short, I am honored to have a second chance to run on behalf of an organization as amazing and special as the Rett Syndrome Angels. This is…
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Team Rett: Nita Rossow

Team Rett Runner Profile: Nita Rossow How Nita joined Team Rett My friend, Maggie knowing I like to run, asked if I ever thought of running a marathon? She suggested Team Rett! As a Special Education teacher, I value the importance of an organization that is not only dedicated to research but also empowers and supports families.  Additionally, Maggie has…
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