This February 28th, stand with families affected by Rett syndrome. Rett syndrome is rare, but its impact is profound. It affects families worldwide—primarily girls at 1 in 10,000 births, but boys too. Thousands are fighting this battle every day. Here’s how YOU can help: How to change your profile picture: On your phone: On computer: Our goal? Make Rett syndrome…
🏃♂️ New Parents, Jon & Erica Martins is All In for Rett! 💜 Duo runners for Team Rett! , Jon and Erica Martins are stepping up in a big way to support those affected by Rett Syndrome. They are kicking off Team Rett’s Raisin’ for Rett by running and fundraising to help make a difference in Maine on May 3rd…
Join Rett Syndrome Angels & Giving Tuesday on November 29, 2022 BE APART OF OUR GIVING DAY In honor of Giving Tuesday 2022, we ask you to share this campaign across all your social media outlets. Rett syndrome angels is dedicated to raising awareness and raising funds for programming, enrichment, and research. Every size donation brings us closer to treatments…
Join Rett Syndrome Angels & Rare Disease Day Campaign!(2.28.22) Rett syndrome is a rare, devastating disease affecting a special person in my life. Please help make Rett syndrome not rare, but gone! Share now until Feb. 28th! Spread the word and share.About a disease that is rare. Increase awareness of Rett syndrome and please let others know of this campaign by…
As we all cope with adjusting to life in the time of COVID-19, here’s what RSAM has done in an effort to help families.
Boston Children’s Hospital is continually re-assessing the situation and providing updates.
A Parent’s Journey: Helpful Tips for Completing Guardianship For Your Disabled Child In Massachusetts
“The families don’t give up and they do believe in basic research. ” Meet Michela Fagiolini, PhD, a neuroscience researcher at Boston Children’s Hospital, who studies how brain development is altered in autism-related disorders like Rett Syndrome and CDKL5.
Thank you to all our Team Rett Runners and all those who supported the team with generous donations, cheering the team along the way and overall encouragement and support.
