Join Rett Syndrome Angels & Rare Disease Day Campaign!(2.28.22) Rett syndrome is a rare, devastating disease affecting a special person in my life. Please help make Rett syndrome not rare,…


Join Rett Syndrome Angels & Rare Disease Day Campaign!(2.28.22) Rett syndrome is a rare, devastating disease affecting a special person in my life. Please help make Rett syndrome not rare,…

Do you want to stay informed with the newest information from RSAM? We send out monthly newsletters chalked with information revolving topics that help our families. We host a variety…

Application Deadline - Mar. 1st, 2022 The Maria McTernan Sibling Scholarship was established in 2020. It is named in honor of Maria McTernan. For more than a decade, beginning in…

RSAngels is offering a limited number of Grants to assist our local families to attend the summit. Eligibility: Grant recipients must meet all the following criteria Be the parent or…

You may have heard her name over the years. Lori Mitchener. You may know her only as the woman that runs for Team Rett in the purple angel dress. Who…

Application Deadline - Mar. 1st, 2021 The Maria McTernan Sibling Scholarship was established in 2020. It is named in honor of Maria McTernan. For more than a decade, beginning in…

Global events may have slowed the rest of the world, but RSAM has kept rockin' with some amazing events already this year. Check out what we've done: COVID AssistanceMasksAAC ClassesFamily…

Special thanks to Jeff Holt for this amazing video capturing the Boston cityscape as they lit up the skyline for us helping to celebrate our Blue Sky Day and Purple…

Watch as Mayor Walsh shares a message about Rett Syndrome as we welcome Rett Syndrome Awareness Month this October https://www.youtube.com/embed/g5ek3pgGPt4

Hello, Rett Families! We would like you to meet one of our board members, Tracy – a mom to three precious children. Her son has a diagnosis of Rett Syndrome.…