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Rett Syndrome Angels - Rett Syndrome Association of Massachusetts

Rett Syndrome Angels

  • News
  • About Us
    • Our Support
    • Our Board
    • Our History
  • Find Support
    • About Rett Syndrome
    • Rett Program at BCH
    • Additional Support
  • Give Support
    • Volunteer
  • Privacy Policy
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Category: Blog

Still Rockin’ in 2020

adminNovember 1, 2020

Global events may have slowed the rest of the world, but RSAM has kept rockin' with some amazing events already this year. Check out what we've done: COVID AssistanceMasksAAC ClassesFamily…

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Purple Sky Boston Video

adminOctober 25, 2020

Special thanks to Jeff Holt for this amazing video capturing the Boston cityscape as they lit up the skyline for us helping to celebrate our Blue Sky Day and Purple…

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Scientific Symposium (Webinar)

adminOctober 21, 2020

All of us at RSAM would like to give a big THANK YOU (grazie) to Dr. Michela Fagiolini for spearheading an amazing an informative Science Symposium!   This symposium gives…

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October is Rett Syndrome Awareness Month

adminSeptember 11, 2020Leave a comment

October is R ett S yndrome A wareness M onth and boy do we have plans.  Our Quaranteam has been hard at work and we are honored and thrilled to…

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RSAM Latest News

adminAugust 28, 2020Leave a comment

As we all cope with adjusting to life in the time of COVID-19, here’s what RSAM has done in an effort to help families.

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Letter from Dr. Lieberman Concerning Covid-19

adminMay 4, 2020Leave a comment

Boston Children’s Hospital is continually re-assessing the situation and providing updates.

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Guardianship Tips and Process

adminFebruary 26, 2020Leave a comment

A Parent’s Journey:   Helpful Tips for Completing Guardianship For Your Disabled Child In Massachusetts

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Rett Family Picnic

adminJanuary 16, 2020Leave a comment

Coming Late Summer 2020

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Researcher Profile: Michela Fagiolini, PhD | Boston Children’s Hospital

adminJanuary 14, 2020Leave a comment

“The families don’t give up and they do believe in basic research. ” Meet Michela Fagiolini, PhD, a neuroscience researcher at Boston Children’s Hospital, who studies how brain development is altered in autism-related disorders like Rett Syndrome and CDKL5.

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Boston Marathon: Thank you to all our Team Rett Runners!

adminApril 17, 2019Leave a comment

Thank you to all our Team Rett Runners and all those who supported the team with generous donations, cheering the team along the way and overall encouragement and support.

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Attention Please! If, you registered for tomorrow's The Green Nurse tomorrow night..keep an eye out in your email as the link will be sent that way too. ... See MoreSee Less
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Only three days away!Sign up NOW!https://rsangels.org/event/the-green-nurse/… ... See MoreSee Less

The Green Nurse - Rett Syndrome Angels

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We have been seeing a lot of talk by families on different forums about cannabis, it’s a topic that is not fully understood nor much information is out there for Rett Syndrome. Our hope at Rett Synd...
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Just a question for everyone do you know if you can take ibuprofen with Trileptal or Lamictal. Those are the two seizure drugs that my daughter is on. I like to give her ibuprofen when she’s on her period does anyone else take these two drugs and if so do you know if ibuprofen is OK to take well on them. Thank you ... See MoreSee Less
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