This February 28th, stand with families affected by Rett syndrome. Rett syndrome is rare, but its impact is profound. It affects families worldwide—primarily girls at 1 in 10,000 births, but…
Category: News
Giving Tuesday
Join Rett Syndrome Angels & Giving Tuesday on November 29, 2022 BE APART OF OUR GIVING DAY In honor of Giving Tuesday 2022, we ask you to share this campaign…
Rett is Rare
Join Rett Syndrome Angels & Rare Disease Day Campaign!(2.28.22) Rett syndrome is a rare, devastating disease affecting a special person in my life. Please help make Rett syndrome not rare,…
RSAM Latest News
As we all cope with adjusting to life in the time of COVID-19, here’s what RSAM has done in an effort to help families.
Letter from Dr. Lieberman Concerning Covid-19
Boston Children’s Hospital is continually re-assessing the situation and providing updates.
Guardianship Tips and Process
A Parent’s Journey: Helpful Tips for Completing Guardianship For Your Disabled Child In Massachusetts
Rett Family Picnic
Coming Late Summer 2020
Researcher Profile: Michela Fagiolini, PhD | Boston Children’s Hospital
“The families don’t give up and they do believe in basic research. ” Meet Michela Fagiolini, PhD, a neuroscience researcher at Boston Children’s Hospital, who studies how brain development is altered in autism-related disorders like Rett Syndrome and CDKL5.
Boston Marathon: Thank you to all our Team Rett Runners!
Thank you to all our Team Rett Runners and all those who supported the team with generous donations, cheering the team along the way and overall encouragement and support.