Rett Syndrome Angels - Rett Syndrome Association of Massachusetts

Rett Syndrome Angels

  • About Us
    • Our Support
    • Our Board
    • Our History
  • Find Support
    • About Rett Syndrome
    • Rett Program at BCH
    • Navigate New England Access
  • Give Support
    • Rett Syndrome Facts
    • Volunteer
  • Sibling Scholarship
  • Raisin’ For Rett
  • Donate
  • News
  • Events
  • Gallery
  • Contact Us
  • News
  • Events
  • Gallery
  • Contact Us
Rett Syndrome Angels - Rett Syndrome Association of Massachusetts

Rett Syndrome Angels

  • About Us
    • Our Support
    • Our Board
    • Our History
  • Find Support
    • About Rett Syndrome
    • Rett Program at BCH
    • Navigate New England Access
  • Give Support
    • Rett Syndrome Facts
    • Volunteer
  • Sibling Scholarship
  • Raisin’ For Rett
  • Donate

Category: News

Giving Tuesday

Maggie WurmNovember 20, 2022

Join Rett Syndrome Angels & Giving Tuesday on November 29, 2022 BE APART OF OUR GIVING DAY In honor of Giving Tuesday 2022, we ask you to share this campaign…

Read More

Rett is Rare

Maggie WurmFebruary 24, 2022

Join Rett Syndrome Angels & Rare Disease Day Campaign!(2.28.22) Rett syndrome is a rare, devastating disease affecting a special person in my life.  Please help make Rett syndrome not rare,…

Read More

RSAM Latest News

Rett Syndrome AngelsAugust 28, 2020Leave a comment

As we all cope with adjusting to life in the time of COVID-19, here’s what RSAM has done in an effort to help families.

Read More

Letter from Dr. Lieberman Concerning Covid-19

Rett Syndrome AngelsMay 4, 2020Leave a comment

Boston Children’s Hospital is continually re-assessing the situation and providing updates.

Read More

Guardianship Tips and Process

Rett Syndrome AngelsFebruary 26, 2020Leave a comment

A Parent’s Journey:   Helpful Tips for Completing Guardianship For Your Disabled Child In Massachusetts

Read More

Rett Family Picnic

Rett Syndrome AngelsJanuary 16, 2020Leave a comment

Coming Late Summer 2020

Read More

Researcher Profile: Michela Fagiolini, PhD | Boston Children’s Hospital

Rett Syndrome AngelsJanuary 14, 2020Leave a comment

“The families don’t give up and they do believe in basic research. ” Meet Michela Fagiolini, PhD, a neuroscience researcher at Boston Children’s Hospital, who studies how brain development is altered in autism-related disorders like Rett Syndrome and CDKL5.

Read More

Boston Marathon: Thank you to all our Team Rett Runners!

Rett Syndrome AngelsApril 17, 2019Leave a comment

Thank you to all our Team Rett Runners and all those who supported the team with generous donations, cheering the team along the way and overall encouragement and support.

Read More

 The Day We Met Dr. Rett

Rett Syndrome AngelsMarch 12, 2019Leave a comment

My daughter, Erika, is now forty years old so we have been in the Rett World for a long time.  We had never heard of Rett syndrome until Erika was six years old, but neither had almost anyone else in the world!

Read More

Taking steps towards Rett syndrome awareness: Blue Sky Day

Rett Syndrome AngelsNovember 29, 2018Leave a comment

Every October, families from across the globe celebrate Blue Sky Day as a way to bring awareness to Rett syndrome, a neurological disorder that affects one out of every 10,000 girls born each year

Read More

Posts navigation

Older posts

Recent Posts

  • Giddy Up-Horse Therapy
  • 2025 Sibling Scholars!
  • Team Rett is Launching Raisin’ for Rett-and The Martins are Kicking It Off!
  • Silver Seal of Transparency
  • October Awareness Profile Picture

News

  • Giddy Up-Horse Therapy
  • 2025 Sibling Scholars!
  • Team Rett is Launching Raisin’ for Rett-and The Martins are Kicking It Off!
  • Silver Seal of Transparency
  • October Awareness Profile Picture

Latest News

  • Giddy Up-Horse Therapy
  • 2025 Sibling Scholars!
  • Team Rett is Launching Raisin’ for Rett-and The Martins are Kicking It Off!

EIN: 04–3583648

Our Address

217 South Street
Waltham, Massachusetts 02453

  • Instagram
  • Facebook
© 2025 Rett Syndrome Association of Massachusetts // RSAngels.org // Privacy Policy