We welcome you to join us at RS Angels and Doctor David Lieberman, MD, PhD Assistant, Department of Neurology (Boston Children's Rett Clinic) in your home virtually on March 31st…
Tag: Rett Syndrome
Rett is Rare Disease Day Campaign
Join Rett Syndrome Angels & Rare Disease Day Campaign!(2.28.22) Rett syndrome is a rare, devastating disease affecting a special person in my life. Please help make Rett syndrome not rare,…
Rett is Rare
Join Rett Syndrome Angels & Rare Disease Day Campaign!(2.28.22) Rett syndrome is a rare, devastating disease affecting a special person in my life. Please help make Rett syndrome not rare,…
An angel amongst our angels
You may have heard her name over the years. Lori Mitchener. You may know her only as the woman that runs for Team Rett in the purple angel dress. Who…
RettEd Day
Exciting News! Registration for the RettEd Day Conference is now OPEN! Don't miss this amazing opportunity to hear from the leading doctors, researchers and service professionals in the Boston area.…
RettEd Day
Exciting News! Registration for the RettEd Day Conference is now OPEN! Don't miss this amazing opportunity to hear from the leading doctors, researchers and service professionals in the Boston area.…
The Day We Met Dr. Rett
My daughter, Erika, is now forty years old so we have been in the Rett World for a long time. We had never heard of Rett syndrome until Erika was six years old, but neither had almost anyone else in the world!
Taking steps towards Rett syndrome awareness: Blue Sky Day
Every October, families from across the globe celebrate Blue Sky Day as a way to bring awareness to Rett syndrome, a neurological disorder that affects one out of every 10,000 girls born each year