You may have heard her name over the years. Lori Mitchener. You may know her only as the woman that runs for Team Rett in the purple angel dress. Who…
Tag: Rett Syndrome
RettEd Day
Exciting News! Registration for the RettEd Day Conference is now OPEN! Don't miss this amazing opportunity to hear from the leading doctors, researchers and service professionals in the Boston area.…
RettEd Day
Exciting News! Registration for the RettEd Day Conference is now OPEN! Don't miss this amazing opportunity to hear from the leading doctors, researchers and service professionals in the Boston area.…
The Day We Met Dr. Rett
My daughter, Erika, is now forty years old so we have been in the Rett World for a long time. We had never heard of Rett syndrome until Erika was six years old, but neither had almost anyone else in the world!
Taking steps towards Rett syndrome awareness: Blue Sky Day
Every October, families from across the globe celebrate Blue Sky Day as a way to bring awareness to Rett syndrome, a neurological disorder that affects one out of every 10,000 girls born each year