Join Rett Syndrome Angels & Rare Disease Day Campaign!(2.28.22) Rett syndrome is a rare, devastating disease affecting a special person in my life. Please help make Rett syndrome not rare, but gone! Share now until Feb. 28th! Spread the word and share.About a disease that is rare. Increase awareness of Rett syndrome and please let others know of this campaign by sharing through your social media. In honor of Rare Disease Day 2022 we are asking…
Do you want to stay informed with the newest information from RSAM? We send out monthly newsletters chalked with information revolving topics that help our families. We host a variety of virtual events, share resources, updates on research and so much more….. Don’t forget to update your email or join before you miss out! Connect with: Irene@rsangels.org
Application Deadline – Mar. 1st, 2022 The Maria McTernan Sibling Scholarship was established in 2020. It is named in honor of Maria McTernan. For more than a decade, beginning in 2003, Maria served as the Rett Syndrome Association of Massachusetts (RSAM) Vice-President of Programming and then as Co-President. It was primarily because of Maria’s determination and effort that RSAM was granted five entries for charity runners in the 2011 Boston Marathon. Maria chaired the RSAM…
RSAngels is offering a limited number of Grants to assist our local families to attend the summit. Eligibility: Grant recipients must meet all the following criteria Be the parent or legal guardian of a person with Rett Syndrome who currently resides in one of the six New England states, Apply here for the RSAngels’ 2022 Ascend Summit Grant, including all required supporting material, by March 4, 2022, Be registered with IRSF for the Ascend Summit…
You may have heard her name over the years. Lori Mitchener. You may know her only as the woman that runs for Team Rett in the purple angel dress. Who is she? How did she come to devote herself to our cause? How did we get to be “her people?” Lori’s connection to the cause of Rett Syndrome started years ago, in Early Intervention. One of her little cherubs participated in a therapeutic play group,…
