Team Rett: Nita Rossow
Team Rett: Richard Kerr
Team Rett: Maurice Lowman
Maria McTernan Sibling Scholarship
Application Deadline – Mar. 1st, 2021 The Maria McTernan Sibling Scholarship was established in 2020. It is named in honor of Maria McTernan. For more than a decade, beginning in 2003, Maria served as the Rett Syndrome Association of Massachusetts (RSAM) Vice-President of Programming and then as Co-President. It was primarily because of Maria’s determination and effort that RSAM was granted five entries for charity runners in the 2011 Boston Marathon. Maria chaired the RSAM…
Still Rockin’ in 2020
Global events may have slowed the rest of the world, but RSAM has kept rockin’ with some amazing events already this year. Check out what we’ve done: COVID Assistance Masks AAC Classes Family Check-ins Blue Sky Day / World Family Celebration Sibling Scholarship & Video Premiere Virtual Boston Marathon Scientific Symposium Family Beach Bash
Purple Sky Boston Video
Special thanks to Jeff Holt for this amazing video capturing the Boston cityscape as they lit up the skyline for us helping to celebrate our Blue Sky Day and Purple Sky Night.
Scientific Symposium (Webinar)
All of us at RSAM would like to give a big THANK YOU (grazie) to Dr. Michela Fagiolini for spearheading an amazing an informative Science Symposium! This symposium gives so much hope, clarity and direction in what is to come for possibilities to those suffering from this disorder. We are honored and lucky to have collaborated with Children’s Hospital Boston, MIT, Rett Syndrome Research Trust, RSO and the University of Pennsylvania this webinar couldn’t…
Mayor Walsh of Boston supports Rett Syndrome
Watch as Mayor Walsh shares a message about Rett Syndrome as we welcome Rett Syndrome Awareness Month this October








