Team Rett: Abigail McLean

Team Rett Runner Profile: Abigail McLean How Abigail joined Team Rett I am so excited to be running my first marathon, the 2021 Boston Marathon as a member of Team Rett. Although my 2020 training was abruptly cut short, I am honored to have a second chance to run on behalf of an organization as amazing and special as the Rett Syndrome Angels. This is a challenge I have dreamt of taking on, and I can't express my excitement and…
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Team Rett: Nita Rossow

Team Rett Runner Profile: Nita Rossow How Nita joined Team Rett My friend, Maggie knowing I like to run, asked if I ever thought of running a marathon? She suggested Team Rett! As a Special Education teacher, I value the importance of an organization that is not only dedicated to research but also empowers and supports families.  Additionally, Maggie has shared personal experiences with me about the joys and challenges of raising a child diagnosed…
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Team Rett: Richard Kerr

Team Rett Runner Profile: Richard Kerr How Richard joined Team Rett I ran for Team Rett last year in the 2020 Virtual Boston Marathon. What inspired Richard to run? I would be running in honor of my nephew, Aidan Freeman, who recently passed away after struggling with Rett Syndrome since he was born. What is Richard's goal? My sister and brother-in-law have both run in the past, and I think it would be great for…
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Team Rett: Maurice Lowman

Team Rett Runner Profile: Maurice Lowman How Maurice joined Team Rett Maurice joined Team Rett in 2020 when approached by his coach Lori Mitchener, who has a personal connection to Rett Syndrome. "I am humbled and truly grateful to be raising funds and awareness for Rett!! To be able to do something I love while giving back is a blessing in itself." What inspired Maurice to run? Maurice embraces his role as a cheerleading hype-man…
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Maria McTernan Sibling Scholarship

Application Deadline – Mar. 1st, 2021 The Maria McTernan Sibling Scholarship was established in 2020. It is named in honor of Maria McTernan. For more than a decade, beginning in 2003, Maria served as the Rett Syndrome Association of Massachusetts (RSAM) Vice-President of Programming and then as Co-President. It was primarily because of Maria’s determination and effort that RSAM was granted five entries for charity runners in the 2011 Boston Marathon. Maria chaired the RSAM…

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Still Rockin’ in 2020

Global events may have slowed the rest of the world, but RSAM has kept rockin’ with some amazing events already this year. Check out what we’ve done: COVID Assistance Masks AAC Classes Family Check-ins Blue Sky Day / World Family Celebration Sibling Scholarship & Video Premiere Virtual Boston Marathon Scientific Symposium Family Beach Bash

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Scientific Symposium (Webinar)

All of us at RSAM would like to give a big THANK YOU (grazie) to Dr. Michela Fagiolini for spearheading an amazing an informative Science Symposium!   This symposium gives so much hope, clarity and direction in what is to come for possibilities to those suffering from this disorder. We are honored and lucky  to have collaborated with Children’s Hospital Boston, MIT, Rett Syndrome Research Trust, RSO and the University of Pennsylvania this webinar couldn’t…

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