Blog List

03Mar

Tickets for Disney Immersion-Boston!

March 3, 2023By Larry Fallon

Disney Immersion Experience Family Gathering GET THEM BEFORE THEY ARE GONE! DATE: Saturday April 15, 2023TIME: 1:45P to 3:00P LOCATION: SoWa Power Station, 550 Harrison Ave, Boston MACOST: $20 Team Rett donation per ticket (No charge for Rett Angels) max 4 per family TICKET DIST: First-come basis per the instructions below PARKING: Suggested parking at 530 Harrison Ave at the driver’s expense A limited number of tickets are available for RSAngels families to attend the Disney Immersion Experience…

02Mar

Doctor in the House!

March 2, 2023By Larry Fallon

A VIRTUAL DISCUSSION March 23 at 7:30pm 3rd Annual House Call with Dr. David Lieberman The long awaited FDA decision regarding Trofinetide is scheduled to be announced prior to this meeting. Dr. Lieberman will discuss what this decision means for the Rett community. He will also address the upcoming and very exciting gene therapy trials for Rett syndrome. This is an evening you do not want to miss. …….And there will be a raffle!…… SIGN…

13Jan

Sibling Scholarships are Open!!! Apply by: 3/15/23

January 13, 2023By Larry Fallon

The Maria McTernan Sibling Scholarship was established in 2020. It is named in honor of Maria McTernan. For more than a decade, beginning in 2003, Maria served as RSAngels’ (known as RSAM at that time) Vice-President of Programming and then as Co-President. It was primarily because of Maria’s determination and effort that RSAngels was granted five entries for charity runners in the 2011 Boston Marathon. Maria chaired the RSAngels Marathon Committee until her passing in…

10Jan

Operation Secret Valentine is Back!!!

January 10, 2023By Larry Fallon

It's that time of year again to give and get some thoughtful valentine's day cards! This popular event is loved by everyone. This year more than ever our angels need some extra love and their spirits need to be lifted. The older gals and guys due to the crisis of staff shortage and demands in our day programs are often seeking some social interactions, friendships and what a simple and nice way to give that…

10Jan

Team Rett: Rachel Chase

January 10, 2023By Larry Fallon

Team Rett Runner Profile: Rachel Chase What inspired Rachel to run? Hi everyone! My name is Rachel Chase and this year is going to be my first year running the Boston Marathon. Running has been a very large goal of mine for years now and I am beyond excited and honored to run with Team Rett Angels!. I will be running in honor of my friend's cousin Sophia LaFort who has Rett syndrome, as well as all other…

20Nov

Giving Tuesday

November 20, 2022By Larry Fallon

Join Rett Syndrome Angels & Giving Tuesday on November 29, 2022 BE APART OF OUR GIVING DAY In honor of Giving Tuesday 2022, we ask you to share this campaign across all your social media outlets. Rett syndrome angels is dedicated to raising awareness and raising funds for programming, enrichment, and research. Every size donation brings us closer to treatments and a cure! Donations can be made by this link Give to RS Angels

26Aug

A nod to our Angels

August 26, 2022By Larry Fallon

Kindness spreads with brewing beer from two local breweries. Co-founder Christian McMahan is no stranger to our Rett community, he and his family are always ones to jump in and volunteer for Rett syndrome over many many years. Ever since Keilly was little (20+ years today) and diagnosed with Rett syndrome they haven’t stopped. They do it with pure love while spreading kindness and giving hope. Thank you! We are truly honored to be a…

27Feb

Team Rett: Nicole Wynters

February 27, 2022By Ken Drab

Team Rett Runner Profile: Maurice Lowman What inspired Maurice to run? Hi! As a returning runner for TEAM RETT this will be my 3rd live running of the Boston Marathon with this incredible community.With 39 marathons and several ultras under my belt it is a privilege to be able to do something I love while helping contribute to the RS ANGELS mission. Under Coach Lori’s guidance and with the continued support of my corporate sponsor…

27Feb

Team Rett: Nicole Wynters

February 27, 2022By Ken Drab

Team Rett Runner Profile: Nicole Wynters What inspired Nicole to run? Hi everyone! My name is Nicole & this is my second Boston Marathon with Team Rett Angels. I run for my cousin Sophia LaFort & all other angels affected by Rett Syndrome! Hopefully together we can raise awareness and find a cure! I am so excited to be apart of this team again & to cross that finish line! Support Nicole and Team Rett!DONATE NOW!